Mentions:
1: Kate Hollern (LAB - Blackburn) My constituent Enola Halleron-Clarke, who is 11 years old, suffers from Morquio syndrome. - Speech Link
2: David Cameron (CON - Witney) dialogue with the drug companies, because of the vast prices that are being charged for some of these drugs - Speech Link
Mentions:
1: Greg Mulholland (LDEM - Leeds North West) In 2009, when Sam was 16 months old, he was diagnosed with Morquio syndrome, an ultra-rare disease that - Speech Link
2: Mark Tami (LAB - Alyn and Deeside) Gentleman, I have been involved in the issue of Morquio. - Speech Link
3: Caroline Nokes (CON - Romsey and Southampton North) I also pay tribute to him for the enormous amount of work he has done on Morquio syndrome, which he has - Speech Link
4: Philippa Whitford (SNP - Central Ayrshire) People with Morquio already have the changes. - Speech Link
Mentions:
1: None therapy to treat Morquio syndrome is unlikely to be approved due to cost saving; and further that the - Speech Link
2: None in England for rarer conditions like Elosulfase alpha (Vimizim) for the treatment of Morquio syndrome - Speech Link
3: None receiving Elosulfase alpha have every chance of continuity of treatment, provided the supplier of the drugs - Speech Link
Mentions:
1: Greg Mulholland (LDEM - Leeds North West) I urge him to intervene in the campaign to get the drugs that are needed for those with Morquio syndrome - Speech Link
2: Nick Clegg (LDEM - Sheffield, Hallam) children and their families who are—quite understandably—concerned about the continued provision of these drugs - Speech Link
Mentions:
1: Greg Mulholland (LDEM - Leeds North West) letters to him about the NHS England failure to come up with a process to allow the NHS to fund the drugs - Speech Link
2: David Cameron (CON - Witney) Gentleman and the young boy with Duchenne muscular dystrophy syndrome. I have looked into this. - Speech Link
Mentions:
1: Greg Mulholland (LDEM - Leeds North West) That is very much the case with Morquio, too. - Speech Link
2: Greg Mulholland (LDEM - Leeds North West) Without such drugs, boys with Duchenne and children with Morquio are deteriorating now while waiting. - Speech Link
3: George Freeman (CON - Mid Norfolk) Both conditions are very rare—there are about 80 children living with Morquio syndrome in England, and - Speech Link