Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment has been made of the adequacy of the transitional care arrangements for young people with phenylketonuria between the ages of 10 and 25.

Patients with phenylketonuria (PKU) access care via their general practitioner and metabolic services. The treatment for PKU is a very strict low protein diet. This includes supplementation with artificial protein, vitamin and mineral supplements and prescribable low protein food.

Transition in health care is recognised as a developmentally mediated process which ensures optimal health and wellbeing outcomes for young people as they move, in partnership with their health care teams, towards and into adult services and lifestyles. Continuity of care is provided through communication and treatment planning between children and adult services to ensure management of symptoms and compliance with the low protein diet.