Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the (a) diagnosis, (b) mortality and (c) morbidity rate of thrombotic thrombocytopenic purpura.
The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.