Neurofibromatosis: Health Services

(asked on 9th September 2020) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that adequate funding is being made available for neurofibromatosis Type 1 patients.


Answered by
Jo Churchill Portrait
Jo Churchill
Minister of State (Department for Work and Pensions)
This question was answered on 22nd October 2020

NHS England has commissioned a national specialised service to address the healthcare needs of neurofibromatosis type 1 (NF1) patients with rare complications that cause major health problems (called complex-NF1).

NHS England has published processes on its website that set out how it decides which treatments to prioritise for funding at the following link:

https://www.england.nhs.uk/allocations/

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