Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that adequate funding is being made available for neurofibromatosis Type 1 patients.
NHS England has commissioned a national specialised service to address the healthcare needs of neurofibromatosis type 1 (NF1) patients with rare complications that cause major health problems (called complex-NF1).
NHS England has published processes on its website that set out how it decides which treatments to prioritise for funding at the following link: