To match an exact phrase, use quotation marks around the search term. eg. "Parliamentary Estate". Use "OR" or "AND" as link words to form more complex queries.


View sample alert

Keep yourself up-to-date with the latest developments by exploring our subscription options to receive notifications direct to your inbox

Select Committee
Second Report - Assisted Dying/Assisted Suicide

Report Feb. 29 2024

Committee: Health and Social Care Committee (Department: Department of Health and Social Care)

Found: their mother to Dignitas told the Committee: [ … ] as soon as she [the mother] found out that she had motor


Scottish Government Publication (Speech/statement)

Feb. 29 2024

Source Page: Debate on the National Care Service (Scotland) Bill Stage 1 - Ministerial speech 29 February
Document: Debate on the National Care Service (Scotland) Bill Stage 1 - Ministerial speech 29 February (webpage)

Found: I was very moved to meet an advocate for motor neurone disease recently.


Scottish Parliament Debate - Main Chamber
National Care Service (Scotland) Bill: Stage 1 - Thu 29 Feb 2024

Mentions:
1: Todd, Maree (SNP - Caithness, Sutherland and Ross) I was very moved when I met an advocate for those with motor neurone disease recently. - Speech Link
2: Cole-Hamilton, Alex (LD - Edinburgh Western) Beveridge report, he identified five great evils in our society: ignorance, idleness, squalor, want and disease - Speech Link


Written Question
Motor Neurone Disease
Tuesday 27th February 2024

Asked by: Julian Sturdy (Conservative - York Outer)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps she is taking to support people living with motor neurone disease.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The National Institute for Health and Care Excellence has published a clinical guideline on the assessment and management of motor neurone disease (MND), to support its diagnosis. The guideline recommends coordinated care for people with MND, using a clinic based, MND specialist, multi-disciplinary team approach. The core multi-disciplinary team should consist of healthcare and other professionals with expertise in MND, and should include specialist nurses.

The Government has committed to delivering at least £50 million to support MND research over five years, from 2022 onwards, as part of a package of £375 million for research into neurodegenerative diseases. In June 2023, the Government announced that more than £35 million of the £50 million pledged to cutting-edge MND research has now been allocated, just two years into a five-year funding commitment. Work continues at pace to support MND researchers in submitting high-quality bids for open funding calls. Further information is available at the following link:

https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research

NHS England commissions specialised services to support people living with MND, as set out in the published service specification for specialised neurology services. The support provided includes the provision of multi-disciplinary care from specialist clinicians, including neurologists, specialist nurses, speech and language therapists, dietetics and nutrition support, and physiotherapy, depending on individual clinical need. The service specification for specialised neurology services is available at the following link:

https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf

In addition, NHS England commissions a specialised communication aid service known as Augmentative and Alternative Communication, as set out in the published service specification. This service supports and prioritises individuals with rapidly degenerative conditions, including MND. The service specification for Augmentative and Alternative Communication, is available at the following link:

https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf


Select Committee
MND Association
ENB0010 - Energy bills for domestic customers

Written Evidence Feb. 08 2024

Inquiry: Energy bills for domestic customers
Inquiry Status: Closed
Committee: Energy Security and Net Zero Committee

Found: by MND Association (ENB0010) About MND and the MND Association Few conditions are as devastating as motor


Scottish Parliament Debate - Main Chamber
Social Security (Investment) - Wed 07 Feb 2024

Mentions:
1: Doris, Bob (SNP - Glasgow Maryhill and Springburn) Ahead of this afternoon’s debate, Marie Curie Scotland and Motor Neurone Disease Scotland gave us a briefing - Speech Link
2: Marra, Michael (Lab - North East Scotland) There are certainly issues to deal with in the post-Covid environment, with its burden of legacy disease - Speech Link


Scottish Government Publication (FOI/EIR release)
Digital Directorate

Feb. 06 2024

Source Page: Information on the CivTech programme: FOI Review
Document: Annex A (Excel)

Found: dexterity to select number buttons, or live with lifelong or acquired conditions, such as cerebral palsy or motor


Commons Chamber
Social Energy Tariff
1st reading - Tue 06 Feb 2024
No Department present

Mentions:
1: Marion Fellows (SNP - Motherwell and Wishaw) households, as they would not survive.A coalition of charities—Age UK, Scope, Fair By Design, Mencap, the Motor - Speech Link


Select Committee
2024-02-05 16:00:00+00:00

Oral Evidence Feb. 05 2024

Inquiry: Disabled people in the housing sector
Inquiry Status: Closed
Committee: Levelling Up, Housing and Communities Committee (Department: Department for Levelling Up, Housing & Communities)

Found: I am thinking about conditions such as motor neurone disease , which moves very quickly .


Select Committee
2024-02-05 16:00:00+00:00

Oral Evidence Feb. 05 2024

Inquiry: Disabled people in the housing sector
Inquiry Status: Closed
Committee: Levelling Up, Housing and Communities Committee (Department: Department for Levelling Up, Housing & Communities)

Found: I am thinking about conditions such as motor neurone disease, which moves very quickly.