Epilepsy APPG

First Registered: 30/07/2015 • Last updated on: 14/07/2021

Official Page

To raise awareness of epilepsy among parliamentarians and to engage with individuals and organisations in supporting the promotion of the needs of the epilepsy community.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Epilepsy

1. SUDEP Action - written evidence
12/03/2019 - Inquiry: Drugs policy: medicinal cannabis - Health and Social Care Committee
- View source

Found: dedicated to raising awareness of epilepsy risks, tackling epilepsy-related deaths (including those due

2. Epilepsy Action and improvements to Personal Independence Payments processes
19/05/2021 - Early Day Motions

Found: That this House supports Epilepsy Action's Personal Independence Payments (PIP) Pledge calling for improvements

3. Young Epilepsy - written evidence
12/03/2019 - Inquiry: Drugs policy: medicinal cannabis - Health and Social Care Committee
- View source

Found: evidence - Young Epilepsy  DMC0051 Written evidence from Young Epilepsy  IntroductionYoung Epilepsy is the national

4. EPILEPSY AND PERSONAL INDEPENDENCE PAYMENT
27/02/2019 - Early Day Motions

Found: serious concern at the high number of people with epilepsy being denied Personal Independence Payment (PIP);

5. Dr Ruth Williams - written evidence
12/03/2019 - Inquiry: Drugs policy: medicinal cannabis - Health and Social Care Committee
- View source

Found: centre.  I work solely within the field of complex epilepsy in the outpatient clinic setting, both in the

Latest Documents
Recent Speeches related to Epilepsy

1. Human Medicines (Amendment) Regulations
18/03/2019 - Commons Chamber

1: aware of the particular concern among people with epilepsy, who require absolute consistency of supply and - Speech Link
2: right to raise those concerns about patients with epilepsy, which I will touch on in the course of my remarks - Speech Link
3: Brexit.”.It was a similar story from the epilepsy bodies, who said:“We do not have confidence - Speech Link

2. Sudden Adult Death Syndrome
09/06/2021 - Lords Chamber

1: Lords, as president of the small sudden deaths in epilepsy charity SUDEP Action, based in my former constituency - Speech Link
2: care for people with epilepsy, and to raising awareness of sudden deaths in epilepsy. Guidance has been - Speech Link

3. Covid-19: People with Neurological Conditions
27/05/2021 - Grand Committee

1: also vital to people with multiple sclerosis, epilepsy, motor neurone disease, migraine and other disorders - Speech Link
2: death in epilepsy”; it is perhaps astonishing to learn that 21 people a week die suddenly of epilepsy, often - Speech Link

4. Access to Medical Cannabis
08/04/2019 - Commons Chamber

1: to treat her very ill daughter Teagan’s extreme epilepsy, and to take steps to make sure that medical cannabis - Speech Link
2: normally be the case.In relation to childhood epilepsy, the British Paediatric Neurology Association - Speech Link
3: cancer, AIDS, muscular dystrophy, Crohn’s disease, epilepsy, Parkinson’s disease and arthritis? Is he aware - Speech Link

5. Valproate and Foetal Anticonvulsant Syndrome
19/10/2017 - Commons Chamber

1: failure to inform women of the dangers of taking the epilepsy drug sodium valproate during pregnancy, resulting - Speech Link
2: failure to inform women of the dangers of taking the epilepsy drug sodium valproate during pregnancy, resulting - Speech Link
3: three leading epilepsy charities—Epilepsy Society, Epilepsy Action and Young Epilepsy—found that the - Speech Link

Latest Speeches
Recent Questions related to Epilepsy
1. Epilepsy
asked by: Ben Bradshaw
10/09/2020
... what steps he is taking in response to the recent Learning Disability Mortality Review's (LeDeR) recommendation that epilepsy safety should be prioritised with basic safety measures including (a) the completion of SUDEP Action’s SUDEP and Seizure Safety Checklist and (b) regular risk assessments integrated into care to prevent future avoidable epilepsy deaths; and if he will meet with representatives of SUDEP Action to discuss the Government’s plans.

2. Epilepsy
asked by: Ben Bradshaw
10/09/2020
... what steps the Government is taking to (a) promote the NHS Rightcare Epilepsy Toolkit and (b) implement best practice highlighted in that toolkit on tackling epilepsy mortality.

3. Epilepsy
asked by: Valerie Vaz
29/01/2021
... how many people have been diagnosed with epilepsy by (a) gender and (b) age in each of the last five years.

4. Epilepsy
asked by: Valerie Vaz
29/01/2021
... what estimate he has made of the cost to the NHS of unplanned hospitalisations for those with epilepsy in each of the last five years.

5. Epilepsy
asked by: David Amess
09/03/2021
... EpSMon App and other evidence-based epilepsy risk solutions are fully utilised across the NHS to tackle the recent increase in epilepsy deaths.

Latest Questions
Contact Details

Registered Contact:

Valerie Vaz MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 2237.

Email: valerie.vaz.mp@parliament.uk

Public Enquiry Point:

Daniel Jennings, Epilepsy Action, New Anstey House, Gateway Drive, Yeadon, Leeds LS19 7XY. Tel: 0113 210 8866

Email: appg@epilepsy.org.uk

Secretariat:

Epilepsy Action acts as the group's secretariat. https://www.epilepsy.org.uk/

Group's Website:

https://www.epilepsy.org.uk/appg

Benefits in Kind
Date
12 Feb 2021
Source
Epilepsy Action
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Epilepsy Action
Description
Joint Secretariat   From : 12/02/2020 To : 11/02/2021
Value
£1,501
Date
12 Feb 2020
Source
SUDEP
Description
Joint Secretariat   From : 12/02/2020 To : 11/02/2021
Value
£1,501
Date
21 Nov 2017
Source
Epilepsy Action
Description
Secretariat   From : 21/11/2017 To : 20/11/2018
Value
£1,501
Date
11 Jul 2016
Source
Young Epilepsy
Description
Secretariat   From : 11/07/2016 To : 10/07/2017
Value
£1,501

No direct financial benefits are on record for the Epilepsy APPG

Former APPG Officers
Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 30th July 2015
Departed: 10th March 2021
No other APPG Memberships
Paula Sherriff Portrait
Paula Sherriff
Chair & Registered Contact
Labour - Former Member for Dewsbury
Joined: 31st August 2016
Departed: 5th November 2019
No other APPG Memberships
Valerie Vaz Portrait
Valerie Vaz
Vice Chair
Labour - Walsall South
Joined: 30th July 2015
Departed: 5th November 2019
Mike Kane Portrait
Mike Kane
Vice Chair
Labour - Wythenshawe and Sale East
Joined: 8th May 2019
Departed: 5th November 2019
1 APPG Membership
Holy See
Melanie Onn Portrait
Melanie Onn
Vice Chair
Labour - Former Member for Great Grimsby
Joined: 8th May 2019
Departed: 5th November 2019
No other APPG Memberships
Teresa Pearce Portrait
Teresa Pearce
Secretary
Labour - Former Member for Erith and Thamesmead
Joined: 30th July 2015
Departed: 13th February 2019
No other APPG Memberships
Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Memberships
Greg Mulholland Portrait
Greg Mulholland
Vice Chair
Liberal Democrat - Former Member for Leeds North West
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Memberships
Paul Maynard Portrait
Paul Maynard
Vice Chair
Conservative - Blackpool North and Cleveleys
Joined: 30th July 2015
Departed: 2nd May 2017