Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, with reference to section 1.17 of the National Institute for Health and Care Excellence (NICE) guidelines entitled Myalgic encephalomyelitis (or encephalopathy) chronic fatigue syndrome: diagnosis and management, published on 29 October 2021, what steps her Department is taking to help ensure that hospital staff are aware of NICE guidelines for caring patients with very severe myalgic encephalomyelitis.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.
We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.
Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 March 2024 to Question 16630 on Chronic Fatigue Syndrome, when she plans to publish the final myalgic encephalomyelitis delivery plan.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.
We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.
Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether her Department is taking steps to increase inpatient provision for patients with myalgic encephalomyelitis.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.
We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent progress NHS England has made on developing a neuropsychiatric service specification.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
NHS England remains committed to the continued development and improvement of all services, including neuropsychiatry. Neuropsychiatry covers a broad spectrum of mental health support, for people with a broad spectrum of neurological conditions, and as such, provision of neuropsychiatry falls within the care pathway of a range of services.
The provision of neuropsychiatry is included in, and will be strengthened within, the updated neurology service specification, neurosurgery specification, and complex rehabilitation service specification. The requirement and scope of a standalone neuropsychiatry service specification is being discussed with the Royal College of Psychiatry and mental health colleagues.
The Neurology Clinical Reference Group (CRG) will continue to lead this work and take forward discussions with the Royal College of Psychiatry, which is represented on both the Neurology CRG and Complex Rehabilitation and Disability CRG, and is contributing to the development of the service specifications listed above.
Asked by: Jim Shannon (Democratic Unionist Party - Strangford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions she has had with her counterparts in the devolved administrations on ensuring (a) a consistent approach and (b) the applicability of the NHS National Review to ADHD services.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
My Rt hon. Friend, the Secretary of State for Health and Social Care has regular discussions on a wide range of matters, with a wide range of people. NHS England is establishing a new attention deficit hyperactivity disorder (ADHD) taskforce alongside the Government, to improve care for people living with the condition. The new taskforce will bring together expertise from across a broad range of sectors, including the National Health Service, education, and justice, to better understand the challenges affecting people with ADHD, and help provide a joined-up approach in response to concerns around rising demand for assessments and support. NHS England will continue to engage widely throughout the process, and will engage with the devolved administrations as appropriate.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment she has made of whether the NHS workforce plan should be updated by NHS England to reflect the staffing needs of the eight new children and young people's gender services regional centres.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
No specific formal assessment has been made. Gender medicine is a highly specialised field of medicine, and NHS England are actively working to recruit more staff for the new regional children and young people gender identity services. NHS England has also been working closely with other professional bodies to develop tailored training for these professionals. NHS England will commission the required professional training curriculum and competencies framework, not just for staff working in the new gender services, but also for clinicians working in secondary, primary, and community care. It is expected that this will also help to increase the support for children and young people, ensuring they receive a more holistic model of care.
Asked by: Rosena Allin-Khan (Labour - Tooting)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many child mental health patients have been held in inappropriate out of area placements since March 2021.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
While NHS England does collect internal management data on this topic, the statistics are not considered robust enough to be published.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 26 March 2024 to Question 19419 on Infant Mortality: Certification, what her planned timetable is for extending the scheme to pregnancy losses before 1 September 2018.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
On 22 February 2024, we launched the Baby Loss Certificate service, fulfilling our commitment in the Women’s Health Strategy. We recognise that some people will wish to obtain a certificate for a baby loss that happened in the past. It is currently open to pregnancy losses since 1 September 2018, and we will extend this to earlier losses as soon as we can.
Asked by: Preet Kaur Gill (Labour (Co-op) - Birmingham, Edgbaston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many NHS Inpatient Detox units there are by location.
Answered by Andrea Leadsom - Parliamentary Under-Secretary (Department of Health and Social Care)
There are eight NHS inpatient detoxification units in England. They are listed below:
Guys and St Thomas NHS Trust (London),
Bridge House, Kent and Medway NHS Trust (Maidstone, Kent),
Dame Carol Black Unit, Midlands Foundation NHS Trust (Fareham, Hampshire),
Acer Unit, Avon & Wiltshire Mental Health Partnership NHS Trust (Bristol),
Edward Myers Unit, Staffordshire Combined NHS Trust (Stoke),
New Beginnings, Rotherham, Doncaster, South Humber Foundation NHS Trust (Doncaster), Chapman Barker Unit, Greater Manchester Mental Health NHS Trust (Manchester),
Topaz Ward, Essex Partnership NHS Trust (Chelmsford, Essex).
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what funding support her Department is providing to Integrated Care Boards on the operation of (a) hospices, (b) palliative care and (c) end-of-life services.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The majority of palliative and end of life care is provided by core National Health Service staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services.
The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the integrated care board (ICB) footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide, and consequently, the funding arrangements reflect this.
However, since 2020, NHS England has provided hospices with over £350 million to secure and increase NHS capacity, and to support hospital discharge, as part of the COVID-19 response. In addition, since 2021/22, nearly £63 million has been provided to children’s hospices as part of the Children and Young People’s Hospice Grant. Furthermore, additional investment in children and young people’s palliative and end of life care, including hospices, has also been made through the NHS Long Term Plan’s commitment to match-fund clinical commissioning groups, and subsequently ICBs, totalling over £23 million.
As set out in the Health and Care Act 2022, ICBs are responsible for determining the level of NHS-funded palliative and end of life care locally, including hospice care, and are responsible for ensuring that the services they commission meet the needs of their local population.