Health Bill

Debate between Baroness Hollins and Baroness Coffey

Committee stage
Tuesday 3rd November 2026 Lords Chamber

[Baroness Coffey (Con)]

My Lords, I tabled Amendment 45, which refers to “Promoting palliative care equitably”. In particular, it refers to the need to be

“accessible to all regardless of wealth or geography”.

I am very fond of the Minister. Nobody can get grumpy with the Minister, but I am getting grumpy with the Department of Health and Social Care, and other Ministers, because we still do not have the modern service framework for end-of-life and palliative health care, which has been going on for some time. I think the latest Written Answer, published in September, said that it would be published in the autumn. To be generous to the Government, that normally means right up until Christmas Eve, but I hope we will see this framework; it is a long time coming. The stories that we hear, such as that which we just heard from the noble Baroness, Lady Finlay of Llandaff, illustrate that access to palliative care often seems to be a postcode lottery.

When I first moved to Suffolk, I became aware of the Halesworth Community Nursing Care Fund—it no longer exists, having been absorbed into the Pear Tree Fund, which is still in Halesworth. The local people, frankly, got fed up of waiting for a hospice, and there are still valiant efforts to try to have a building. I appreciate that hospice at home is a key element of the modern hospice service. Nevertheless, it was felt that, unless there were people with deep pockets or those who run marathons around the country, or take part in other ways of raising funding, too often either that nearby hospice would never open or its continuing support would collapse. That is why I welcome the proposals and ongoing targets—I think aimed at 2029—regarding this in the neighbourhood health plans, but we still need the substance. Living in a rural community, I am very conscious that not everything will be on hand, but that does not mean that it should be so far away that it more or less becomes irrelevant. I would like to understand more about how the Government will consider the provision of such care in rural settings.

Amendment 230, tabled by the noble Baroness, Lady Pidgeon, would, as I understand it, require a conversation about end-of-life care once a terminal illness has been diagnosed. The amendment as drafted provides that such a conversation would need to be offered but the person would not necessarily have to take it up. However, another provision in the proposed new clause suggests that, where the person does not or cannot take up the offer, the family must be offered it instead.

I appreciate that having conversations about the end of life can be very tricky. We should bear in mind what happened in the not-too-distant history to people who were nearing the end of their lives. I think of the heinous Liverpool care pathway, where people were, in effect, starved and not allowed water. That was horrific. I was pleased when the recommendations of the review by the noble Baroness, Lady Neuberger—it is good to see her here—were followed by the Government, and that was cast to history.

There is also the wide-ranging element of do not resuscitate, and here I will share a personal anecdote. I recall that, when my mother broke her hip, they constantly tried to get her to do a DNR but then told her that the consultant could do it anyway. It is not very encouraging. When she was finally, sadly, diagnosed in hospital, they did not know exactly what was wrong with her but told her that she had less than a month to live—which was true; that is what happened. It was very clear that, for my mother, her patient choice was that she was desperate to die at home. To be fair, a particular nurse tried everything and was successful, but there was argy-bargy to get it done. For a woman who was dying, I was prepared to shove her in my car and drive home, although eventually we got the agreement for an ambulance to take her home. Even then, all of a sudden, as we were ready to leave, the DNR was there, and I knew my mother did not want it. They went and found her; she was not speaking very much by then, but she shook her head to show that she did not want it. It involves an element of trust, and, frankly, I do not know how many people necessarily have confidence that end-of-life care will be provided.

My mother was a woman of faith, and a priest from the local Catholic church, Father Joseph Welch, happened to be on duty. He came in, and that conversation, more than anything, helped a woman of faith who was scared of dying to effectively be reconciled. It is important, in a different way, to recognise that this is not just about the NHS saying, “Let’s have a chat about the end of your life”, because I am afraid that there is still nervousness about where that will end up.

I am conscious that, when debating another Bill in this House, we spent a lot of time on the fact that people are scared, towards the end of their lives, and that there may be pressure to take a particular pathway. We need to be careful, and how we get that judgment right is important. That is why, although I understand the sentiment behind Amendment 230, I would be pretty nervous about putting it in the Bill and about how delivering it could be done in a way that is absolutely right for everybody. Can we get the quality and a real understanding that this would work to the benefit of the patient, albeit perhaps in their final weeks?

[Baroness Hollins (CB)]

My Lords, I thank my noble friend Lady Finlay for making the strong economic case for specialist palliative care and for these thoughtful amendments. I have added my name to several of them.

On Amendment 78, ICBs already have responsibility for commissioning palliative care. That came about following amendments to the 2022 health Act, which my noble friend Lady Finlay introduced, but there is insufficient accountability for whether and how they are meeting the needs of their local populations. The House of Commons Health and Social Care Committee’s recent inquiry found no clear standards or reporting requirements for ICBs for the provision of palliative and end-of-life care.

Geographic inequality is striking. In 2023, the proportion of people dying in hospital varied from 36% to 52% between ICB areas, and the proportion dying at home varied from 26% to 33%. Why are there so many differences between different areas? We cannot improve what we do not properly measure, and palliative care at the end of life is an essential component of healthcare, not an optional extra. This amendment would require annual performance assessments regarding the standard of palliative and end-of-life care provided.

Amendment 26 would require urgent investment in palliative care through a transformational fund. The Health and Social Care Committee considered the specialist palliative care workforce to be in a critical situation. It described 78 consultant vacancies and around 40% of hospitals not providing a seven-day face-to-face specialist palliative care service. More funding would support the Government’s intended move towards more care in the community and help to avoid needless prolonged hospital admissions.

Amendment 242 would ensure that NHS and hospice services can work together effectively, with timely information sharing and the access to beds, medicines, equipment and appropriately trained staff that patients need and deserve. At the moment, it is so fragmented; it is very hard for people trying to co-ordinate and manage their own end-of-life care at home, as I know only too well after my husband died last year.

The scale of the voluntary sector’s contribution is considerable. In 2024-25, hospices across the UK provided palliative and end-of-life care to 310,000 people, alongside direct support to 89,000 family members, friends and carers. But the financial pressures they face are significant, and of course they rely heavily on charitable donations and fundraising. However, voluntary sector providers are not peripheral to our health and care system; they are essential partners.

The Public Accounts Committee in the House of Commons has estimated that 300 hospice in-patient beds have been lost due to lack of funding. It would be very timely to agree all these amendments and I give my wholehearted support to them.

Terminally Ill Adults (End of Life) Bill

Debate between Baroness Hollins and Baroness Coffey

Committee stage
Friday 21st November 2025 Lords Chamber

[Baroness Coffey (Con)]

I think the noble Baroness’s amendment about videoing affects Clause 25, which is considerably later, when the Act is about to happen. I wonder whether she would consider whether it should be done earlier in order to reduce that because, by the point of her amendment, the certificate of eligibility has already been issued. I would be interested to hear her thoughts on that and on whether video recording, as proposed in Amendment 612, should be considered at a much earlier stage.

[Baroness Hollins (CB)]

I thank the noble Baroness. I thought about that, and it could indeed be brought back in a different way later in the debate, but I feel that the prevention of coercion is really important, so thinking about it at this stage is really helpful.