(1 month, 2 weeks ago)
Commons ChamberIt is a pleasure to follow the hon. Member for Mid Sussex (Alison Bennett). I wholeheartedly agree with her points about the importance of talking therapies. Those are incredibly important tools for children who are in gender distress. We need to see greater access to talking therapies for all children in a timely fashion.
May I first say that there is far too much debate about trans people without them? We would not tolerate this in any other debate. Yet somehow, whether in the media or in politics, in debate after debate—online, in the media and in this place—we talk about trans people and people in gender distress without acknowledging that we are lucky to be born into a body we identify with. I will never know the pain of gender distress. There are times when I look in the mirror and I think, “God, I wish I could change this.” Usually, I wish I could not look so tired, but I do not know what it is like to not be in a body that I identify with; I am fortunate and therefore speak from a position of great privilege.
I will start with the words of one of my constituents, an 83-year-old trans woman called Teraina. She said, “I was born a male but I have never been a man. I tried but I failed. I always have felt female. Even at school as a boy, I was bullied for being”—in her words—“a ‘sissy’ so I left. I am 83. I have lived my life. This is about the future generations and the others who come next.”
Teraina discharged herself from hospital to have that conversation with me because she feels so strongly about future generations: that they should not be bullied for who they are; that they should be able to access treatment; and that they should be able to be who they are. We must get this right for the future generations of people like Teraina, because too many have lost their lives, or have suffered, living a life that was not fully theirs.
It is fair to say that there is a varied range of views in the Cass review. However, if future access to treatment for gender dysphoria is dependent on more research, it is vital that the Pathways trial goes ahead with the additional safeguards now put in place. Whatever one’s views on the trial, it is clear that every step has been taken to put the safety of patients at its heart. It has been designed by experienced clinical researchers and checked by independent scientists who advise the National Institute for Health and Care Research, and has included independent academic peer reviewers. As with all clinical trials, this one will be overseen by the data monitoring committee, as the safety and wellbeing of those taking part is vital.
All those safeguards should be welcome. After all, those people are the experts when it comes to the medical procedures and the science. The experts when it comes to individual children, however, are the parents. Both today and yesterday, some of the rhetoric around the statement has ignored the important role of parents in the trial.
James Asser (West Ham and Beckton) (Lab)
I know the constituent my hon. Friend has spoken about. My hon. Friend also makes a valuable point about the need to speak with people who have lived a life, given that these things have been done in ignorance. Her point about parents is key. I have a constituent who is trans whose parents have engaged with me and explained the difficulties of learning to deal with and manage the situation. Their voices, alongside those of clinicians, are really important in understanding the issues. Does my hon. Friend agree?
Absolutely. I thank my hon. Friend for his commitment to the LGBT+ community and for his work, including with his constituents. We have heard a lot today about throwing children into wild experiments, but that is not what we are talking about. We are talking about something done in collaboration with parents—parents who love their children and want the best for them, and with medical professionals who want the same. The rhetoric around the trial really needs to change.
No child will be able to take part in the trial without parental consent. That has been confirmed again by the Secretary of State from the Dispatch Box. Of course, there will be some children who will never gain their parents’ consent: a heartbreaking situation for any family. However, there will be many parents who will truly support and know the wishes of their child; they will agree with the suitability of the treatment and want to support them on their journey.
Much has been discussed about the child, but parents have huge agency in the process. We are not just talking to the children; we are talking to adults who want the best for their child, and that point should be recognised.
Iqbal Mohamed
My hon. Friend is making a powerful speech. I have huge respect for her and I completely agree that nobody here or outside should be looking to disrespect or harm any individual, whatever their age. Would she agree that parents should also be given all the information available around this condition, its treatments and the paths that children follow? Over 93% of children who experience gender dysphoria grow out of it and then are happy in their natural body. Does she agree that that and other information should be made available to the parents?
I thank the hon. Member for his intervention and his kind words at the beginning; that is the right tone, which we need to set, and information is key. People need to be able to make informed decisions—whether it is the child or a parent—and there needs to be independent information so that people can make fully informed decisions.
Danny Beales (Uxbridge and South Ruislip) (Lab)
My hon. Friend is making a powerful and moving speech. Further to her point, does she not agree that the Opposition’s motion to prevent a clinical trial would not give people information, options and choices? It would cut down information, options and choices. She mentioned a constituent in her 80s who clearly did not grow out of her gender dysphoria, and this motion would close off lifesaving and life-changing treatment for the 7% of people who do not grow out of gender dysphoria.
I thank my hon. Friend for his powerful intervention; absolutely, information and scientific evidence are key, and this trial will be conducted by experts with patients’ best interests at heart. We have heard from the Opposition spokesperson, the hon. Member for Sleaford and North Hykeham (Dr Johnson), and I am sure that, as a doctor, she cares about her patients as much as all the doctors and clinical specialists that will be involved in these trials.
Last year, the Women and Equalities Committee held a one-off inquiry into the safety and effectiveness of puberty blockers. We stuck to the science. There were different views on our panel of witnesses, but I wanted to demonstrate something that has, sadly, not happened very often around this topic, which was that we could discuss it in a sensitive, respectful way, based on fact, not opinion—not for social media clips or for likes on a particular outlet’s sidebar of shame, but for the good of the people we represent.
We also examined the use of puberty blockers for other medical purposes—something that has not been discussed today when talking about the risks, or perceived risks, of puberty blockers. It is commonplace to use puberty blockers for certain cancers, for endometriosis and for children experiencing premature sexual maturity, also known as precocious puberty. When it comes to cancers such as prostate cancer, the professors on the panel described the need to essentially “turn off” testosterone. This is now a commonplace treatment for prostate cancer.
Another use of puberty blockers is for endometriosis. We already know the disgraceful delays in diagnosis and treatment for endometriosis and adenomyosis, with women waiting at least 10 to 13 years just for a diagnosis. They are living in pain for far too long, but experts are using puberty blockers, again, to essentially “turn off” menstruation and oestrogen for women with severe endometriosis.
I thank the hon. Lady for giving way; I am listening to her very intently. Does she know what a measure of success would be in this puberty blocker trial? If 80% of the children on it were happy with the outcome, would that be a success? What are the ultimate measurements of success?
Order. The hon. Member for Luton North (Sarah Owen) is making an important speech, but before she gets back to her feet, I must tell her that I need to get 12 more Members in to speak.
I know that further details will be coming from the Secretary of State as to what a marker of success is, but I think we have to ask ourselves what a marker of success is for the individuals and families. For some, staying in their sex from birth may look like success. For others, that will not be the case. This is very much on the individual.
I will not; I am going to make some progress, as I have been duly told to do.
The treatment of premature sexual maturity, or precocious puberty, in children—this is for children—uses puberty blockers now. The professors reported to our Committee that puberty blockers are
“recognised as a reversible treatment.”
Professor Butler added that we know
“from follow-up studies with children who have received it for precocious puberty that there are no ill health effects in the long term nor are there any negative effects on fertility recovery.”
Professor Grossman pointed to a “huge amount of evidence” from Harvard University highlighting successful treatment and outcomes for girls prescribed puberty blockers for premature sexual maturity
“in terms of fertility and their subsequent life.”
I am not going to take any more interventions, as I have been told that I need to crack on.
These puberty blockers are the same drugs, prescribed in the same way, but instead of treating gender distress, they are treating prostate cancer, endometriosis and premature sexual maturity in children. Yet we have heard no call from scientists, campaigners or the medical community to stop the use of puberty blockers for those treatments.
Some have been critical of the trial going ahead, but what happens to young people experiencing gender distress if it does not? Dr Hilary Cass believes that without a trial, young people will continue to get drugs from “unregulated and dangerous routes”, and my Select Committee heard evidence to support that. Unfortunately, young people are now self-treating because they see no other option. They are getting hold of medication from abroad, with no assessment, support or medical advice. Dr Hilary Cass was right to say that she is
“absolutely convinced that more children will be harmed if we don’t do the trial than if we do.”
For me, safety is paramount, but this is an issue of access to healthcare, and there should never be a block to healthcare for anyone. While the trial goes forward, many young people, younger and older, will be scared and frightened about what the future holds. I hope that the Secretary of State can address the hostile environment for young trans people, as well as what support outside of legislation and the medical world needs to be more widely available for people in gender distress and the entire LGBTQ+ community.
(6 months ago)
Commons Chamber
Dr Ahmed
I am grateful to the right hon. Member for his remarks. At the risk of turning this into some sort of medical journal club—I will move on quite swiftly, Madam Deputy Speaker—let me point out that the association is based on retrospective data, and we all know that we have to be a little bit cautious with retrospective data. As for the question of research, I can assure the right hon. Member that we are committed to spending more of the £2 billion NIHR budget on rare cancer research, some of which is ringfenced.
The hon. Member for Sleaford and North Hykeham asked about rural areas. In the workforce plan, we are committed to ensuring—
May I take up the point about funding? I apologise for not having been here at the beginning of the debate, but I want to pay tribute to my two incredible constituents Khuram and Yasmin. Their daughter Amani was diagnosed with glioblastoma, and tragically passed away in February 2022 at just 23 years old. Amani’s parents devoted themselves to taking care of her 24/7 as the cancer progressed, but they had to fundraise £100,000. Does the Minister not agree that parents and others should be spending their time with their loved ones, not spending their time fundraising for experimental drugs?
Dr Ahmed
I thank my hon. Friend for all her advocacy on behalf of all her constituents, but particularly Amani’s family. This is a story with which I am very familiar, and I can reassure my hon. Friend that I am committed to ensuring that medical research is properly funded so that, indeed, it is not the duty of bereaved parents or parents to raise the money.
(1 year ago)
Commons ChamberOne thing that I made clear to officials when I came into this post was that every penny that is allocated to NHS dentistry must be spent on NHS dentistry. We are in a crazy situation where demand for NHS dentistry is going through the roof, yet we have had underspends. That needs to stop. We will focus the spending on where it is most needed, including areas that are under-served, such as the hon. Gentleman’s constituency.
My constituents Marie Brewis and Denise Coates are bravely using their own experience of breast cancer treatment to campaign for a dedicated cancer support centre in Luton. Does the Minister agree that Luton could benefit from the wraparound care of a cancer support centre locally, and will she meet me to discuss this?
(1 year, 5 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
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It is a pleasure to see you in the Chair, Dr Huq. I thank my hon. Friend the incredible Member for Hastings and Rye (Helena Dollimore) for bring this important debate to Westminster Hall.
As Chair of the Women and Equalities Committee, I will focus on our two reports on women’s health because, as we have heard, we have some way to go to improve things. The first report followed our inquiry into the need for miscarriage bereavement leave. Campaigners from all parties have been calling for that for a number of years, and it is time the law caught up with public opinion. That is what our inquiry found and what our report clearly states.
We have tabled an amendment to the Employment Rights Bill that clearly lays out the need for time to grieve following miscarriage. It is not a sickness, so sick pay is not an adequate replacement for time to grieve when it comes to miscarriage and miscarriage bereavement leave. That is what we heard from the brave women and families who gave evidence to our Committee. When I experienced miscarriage, nobody gave me a squeeze and told me to get well; they gave me a squeeze and said, “I am sorry for your loss.” It is definitely time the Government caught up with public opinion on this issue.
There are good examples: the NHS offers bereavement leave for those who miscarry, as do Dentsu and the Co-op Group. They are not all doing it out of the kindness of their hearts. When questioned by two separate Select Committees as to how much it costs the largest public sector employer of women, which is the NHS, the response was that it is de minimis—it is negligible. It costs us nothing, and we gain everything. That is incredibly important.
The second report concerns medical misogyny, which we have already heard about. There is this constant feeling of not being listened to—being patted on the head, sent off and told to get a hot water bottle and some paracetamol and just crack on with it. Fortunately, that does not happen to men in the same way. When we were looking at a title for the report, it was said that medical misogyny seems quite hard, but it is really difficult to describe it as anything else: women are subjected to painful procedures, such as intrauterine device insertions or hysteroscopies, without any pain relief, and training is far too low in gynaecology. One of the report’s recommendations is that gynaecology becomes part of mandatory rotation. More than half the population are women, yet our medical practices do not reflect that.
Women and girls on low incomes really struggle with period poverty. For example, one in three women and girls struggle with heavy bleeding, and one in 10 women and girls experience adenomyosis or endometriosis. The average wait for a diagnosis for endometriosis and adenomyosis is eight years. That is far too long. Our recommendation is to make that two years. That is still two years too long, but it would be a vast improvement. We know it is a chunky report, but I really look forward to the NHS’s response to it.
Progress is not inevitable. This is not about making women wait any longer or about making progress at the expense of men’s health either. We all benefit when we see women’s health improve.
(1 year, 6 months ago)
Commons ChamberUrgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
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The Committee report on women’s reproductive health, started under our fantastic predecessors, laid out how medical misogyny has left far too many women suffering. Women have been left undiagnosed for debilitating conditions such as endometriosis for an average of eight years—not for treatment, for diagnosis. Black women are four to five times more likely to die during childbirth, and the rate of maternal death in the UK has risen by 15% in the last 10 years. The leading cause of that is suicide, accounting for 39% of deaths in the first year postpartum. Does the Minister therefore agree that women, and women of colour especially, have borne the brunt too often of 14 years of disastrous health policies? How can the Government reverse this trend?
I thank the Committee Chair for her question. I think she was congratulating the previous Committee and Chair rather than those who are now in opposition. I was very pleased to witness some of that work when we were in opposition, and she is absolutely right about it. The work of many women Members when in opposition, and, to be fair, of many women in the previous Government, have made sure that issues around endometriosis have risen up the agenda; indeed, we had a good debate in the Chamber recently. We are committed to taking forward the strategy. We think the health hubs, for example, are doing a good job, but there is a lot of learning to be done on them, and we will continue to do that.
(1 year, 11 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to see you in the Chair, Sir Christopher.
I congratulate my hon. Friend the Member for Norwich South (Clive Lewis) on securing this important debate. As we have heard from the contributions so far, the levels of disparity in healthcare in the east of England are significant; in my constituency of Luton North, they are very stark indeed. There are huge gaps in health and life expectancy across the town of Luton itself—I am not talking about the region, but just the town itself. Those gaps mean that someone in one area of Luton can expect to live up to 10 years longer than someone in another part of the town. I am sure that hon. Friends will agree that the fact the gaps in life expectancy within one town are so stark in 2024 is shocking.
We know that unfortunately there is a link between poverty and healthcare outcomes—and, indeed, healthy life expectancy. Those cannot be separated. Luton currently has the second lowest public spend figures in the NHS, local government, police and public health when compared to other towns in England with relative need, which comes after the 14 years of austerity that we in Luton have also suffered from.
Sadly, Luton has high levels of child poverty, with around 45% of children in the town living in poverty. There seems to be a misconception that when we talk about poverty and about child poverty in particular, we are talking about families where people are not in work. Actually, what I find when I see my constituents who are struggling and reliant on voluntary services, such as the food bank, the Curry Kitchen or the Breakfast Battery Boxes running out of Sundon Park, is that most of these people are in employment. They are working hard to try and support their families, but are unable to make ends meet.
There is one issue regarding child health that I will focus on, although I know that everyone who has spoken so far has already touched on it: access to dentistry. A report on children’s oral health published by Luton Borough Council in March 2023 found that Luton had some of the highest prevalence of tooth decay among five-year-olds in England.
I want to dive into some of the reality behind those stats. I have visited countless primary schools across Luton North and one of the key things that teachers always raise with me is oral hygiene. Sadly, I have seen children with brown nubs where white teeth should be. Many of those children have never owned a toothbrush or had access to one at home. Many schools in Luton North now provide children with toothbrushes to be kept at school, and take time out of lessons to ensure that children are brushing their teeth. Most of these children have never seen a dentist before, and many require painful tooth extractions, with tooth decay being the most common reason why children aged six to 10 are hospitalised. The situation has a knock-on effect on children’s vital early years of development: they are missing school and are unable to speak properly, learn phonics or eat a proper healthy and balanced diet.
There are organisations trying to fill the gap, such as the Dental Wellness Trust, which visited Waulud primary school in my constituency. It was lovely to see the trust working at the school to provide 250 children with free dental health screenings and fluoride varnishing. But despite these mechanisms to try to plug the gap and target the problem, it is clear we need a much more joined-up approach to dentistry in order to improve health and break the cycle of poverty, and to put children’s smiles back into our community. However, the issue does not affect just children—it is about adults as well. Every time I knock on someone’s door, I am asked where NHS dentists are available in Luton; shockingly, I have to point them outside of the constituency, into Harpenden.
That is why I am very proud of Labour’s dentistry rescue plan, which will fill the current gap with an extra 700,000 urgent dental appointments a year and reform the dental contract, which, as we have heard, is a problem, to rebuild NHS dentistry to ensure that everyone has access to dentistry appointments and to improve incentives for dentistry graduates to work in the areas most in need of NHS dentists, such as Luton.
It is key that we draw on the knowledge of local community leaders, stakeholders and organisations to inform our approach on improving health in our local areas. This is something I would say is uniquely well done in Luton, where Pastor Lloyd Denny, who has lived in our town and worked with the local communities through his faith for years, carried out an independent review of health inequalities. His review highlighted four key areas that needed urgent attention and improvement: communication, access, representation and cultural competency.
We had to lean on these four areas during the pandemic. We saw this with Imam Qazi Chishti, a friend of my hon. Friend the Member for Bedford (Mohammad Yasin) and myself, who was one of the first faith leaders to take the covid vaccination—that is representation, cultural competency, access and communication right there in action. We see this with Love Luton RunFest, where I am always pressured to try to do the half-marathon. Forget it, guys—that’s not happening. I will do 10k max.
We also see it with our primary care networks, such as the Equality PCN initiative that is working to target and work with our communities to ensure that people can live healthy lives. Dr Tahir Mehmood is doing fantastic work with our community. That is not to mention the fantastic representation in women’s sport that we have in Luton, with Hina Shafi, who is one of the most brilliant representatives for women and inclusion in sport, and Dionne Manning, who is another fantastic woman—a local hero—working in women’s football and to try to keep people like me in shape.
There is no doubt that brilliant work is being done at a local level, but there is undoubtedly still a devastating postcode lottery for people accessing cancer care, with major variation across England in terms of expectancies and outcomes. Something that is very close to my heart when it comes to cancer care is brain tumours. I have had a number of constituents impacted by this cruel disease, and I have been lucky enough to work closely with Khuram and Yasmin, the parents of Amani, who lost her battle with glioblastoma in April 2022, aged just 23.
Despite the significant leaps and bounds made in other forms of cancer treatment, which should be welcomed, outcomes for those diagnosed with brain tumours remain extremely poor, with no new treatments developed in the past 20 years. Patients with brain tumours today will receive exactly the same treatment as 20 years ago. Around 12,000 people are diagnosed with a brain tumour each year, and brain tumours remain the largest killer of those under 40. Fewer than 13% of those diagnosed with a brain tumour survive beyond five years, compared with an average of 54% across all cancers. I urge the Minister to continue working with MPs such as my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) and I, and campaigners on this issue.
Let me take a moment to touch on an area of medical injustice that is particularly painful for a constituent I met just last week. She is a Primodos baby, which means her mother was given an oral hormonal pregnancy test that around 1.5 million women took in the 1960s and ’70s. Although it was found to be harmful and was banned in other countries in 1970, the UK continued to circulate it until 1978. Tragically, the use of those pills resulted in many babies being born with disabilities such as missing limbs, heart defects and brain damage. Many babies did not survive beyond the womb.
Most patients were issued Primodos without prescription, which means there is no evidence that they ever took it. My constituent’s mother just had it handed to her from the GP’s desk drawer. For others, their medical records were destroyed or lost. We have heard similar stories in the infected blood inquiry of medical records suspiciously going missing. That is extremely harmful, physically and psychologically, for the patients involved.
My constituent has suffered from a rare brain tumour and continues to suffer from many other health issues, all due to Primodos. In spite of that, she is inspirational in her continuing campaign for recognition and a response from the Government for victims such as herself and others. Sadly, she and her peers are yet to receive any sort of compensation, despite being victims of a mass case of medical negligence that has resulted in the painful lives and premature deaths of so many. Will the Minister agree to meet me and my constituent to discuss a way forward for those affected by the Primodos scandal?
I have chosen some specific issues—health inequalities, life expectancy and how healthily we can live our lives—as well as some acute cases in dentistry and cancer. However, I know that our Labour Government are committed to shifting the focus of the health systems towards prevention, and that is where we need to see focus. I am hopeful that health schemes such as those we heard about during the election campaign can be rolled out across the east of England and the country, to improve issues such as cancer care and outcomes for all who are suffering from that cruel disease, and especially to close the deep-rooted health inequalities that we see across our town and our region.