Orkambi and Cystic Fibrosis

Alison McGovern Excerpts

Monday 19th March 2018 Westminster Hall

[Ian Austin]

That is a really important point and one that I hope the Minister will take into account. We should be looking not just at the cost of providing Orkambi, but at the savings that that would make in other areas. I want to develop that point in a few minutes.

What I did not understand before speaking to people with cystic fibrosis was the toll that not knowing whether they will be given these life-saving drugs takes on their mental health. I am talking about the worry that it causes them and their families and the stress and fear that it puts them through. Something else that I did not understand before meeting Carly was the impact that having a condition that reduces life expectancy has on the rest of someone’s life. Lynsey Beswick, who many hon. Members will recall was at the roundtable a few weeks ago, explained that very well. She is in her 30s and told me that, at a time when her friends are getting married, planning families, developing their careers and starting businesses—making long-term plans—people such as her are deterred from doing those things. They just cannot plan for their futures in the same way because, to put it bluntly, they do not know how long they have to live.

Since having Orkambi, Carly has been able to go on holiday abroad for the first time with her family. She has married. She has started a business. Let us think about that. She has started a business, so she is employing people and making a much bigger contribution to the economy. People talk in these debates about the cost of providing these drugs. Let us talk also about the contribution that people who are given Orkambi can make to society. Let us think not just about the cost, but about the contribution they make, the businesses they can start, the jobs they can create and the taxes that will be paid. Let us think about that as well. Let us think about the contribution that providing Orkambi can make to our economy.

What is worse, the longer people live without access to drugs such as Orkambi—I had not really appreciated this—the worse their lungs become. Every day that access to this drug is delayed is another day on which the lungs of people with cystic fibrosis are damaged. I want to repeat that point, because I really want people to think about this: every day that people who could be helped by Orkambi are denied it is another day on which their lungs suffer irreparable damage.

That damage will not be put right. It is not like some medical conditions whereby the patient is given a drug and they are cured, restored and put back to how they were originally. That is not the case here. That damage will not be put right when—or if—they eventually get this drug. The damage that has been done is permanent. Every day this treatment is delayed limits the lives of people it could help. I really want the Minister and others to understand that point, because I must confess that I had not fully understood it until I chaired that roundtable with the Cystic Fibrosis Trust and Vertex a few weeks ago.

[Alison McGovern (Wirral South) (Lab)]

My hon. Friend is making a brilliant and important speech. I am here because of my constituent Ava and her family. Ava loves horse riding and her family want her to have the opportunity to live her life as an ordinary, healthy seven-year-old. That is all they want. Orkambi could provide her with that opportunity. Is not it people such as Ava and the people my hon. Friend has mentioned whom we have to keep at the forefront of our minds?

[Ian Austin]

My hon. Friend is completely right. This is what politics is about. What are we here for? We are here to listen to people in our constituencies. It is our job to come here and speak up on their behalf, which is exactly what she has just done.

I want the Minister to look really carefully at the way in which NICE works. This is not a criticism of NICE, the Government or anyone else, but new drugs are being developed and technological changes are happening so rapidly that I want to ask whether the way in which drugs are assessed, licensed and approved still works. My central question is: how are Ministers going to ensure that these ground-breaking drugs and new developments are made available much quicker?

In 2016, NICE was not able to recommend the use of Orkambi due to uncertainty about its long-term value, impact and cost-effectiveness. Vertex submitted a fresh proposal last month. On Friday, NHS England said:

“Following advice from Nice, the NHS has asked this particular drug company to review its proposed pricing. Unless this happens, further progress at this time is frankly unlikely.”

What sort of hope does a blunt statement such as “frankly unlikely” give people with cystic fibrosis? How does it give us any confidence that new drugs such as Symdeko, which is due to have its marketing authorisation confirmed by the European Medicines Agency in the coming works, will be approved as well?

Mental Health Act: CQC Report

Alison McGovern Excerpts

Tuesday 27th February 2018 Commons Chamber

[Alison McGovern (Wirral South) (Lab)]

More than half of women with mental health problems have experienced violence or abuse, so may I ask the Minister what reforms will be made to the support available to women with mental health difficulties, particularly to reflect women’s experience of abuse in coercive or controlling relationships?

[Jackie Doyle-Price]

The hon. Lady raises an issue that is close to my heart. In my opening statement I highlighted the discrimination faced by black people in detention, but I could just as easily highlight the discrimination faced by women. As she says, if they become victims of domestic abuse or coercive relationships, they often face mental health challenges as a result, and they are more likely to be detained in those circumstances. I co-chair the women’s mental health taskforce with Katharine Sacks-Jones from Agenda, and towards the end of the year we are looking to bring forward concrete actions to tackle exactly this kind of discrimination and make mental health services more responsive for women.

NHS Pay

Alison McGovern Excerpts

Wednesday 13th September 2017 Commons Chamber

[Alison McGovern (Wirral South) (Lab)]

I thank my hon. Friend for giving way, but I thank him even more for coming to Eastham in my constituency, where our precious walk-in centre is closing owing to staff shortages at our A&E, which is in crisis. The Tories says that we are talking down the NHS and lowering morale, but does he agree that it is not words that matter but action, and that is why we need action on pay?

[Jonathan Ashworth]

My hon. Friend is right. A popular, successful walk-in centre in her constituency has had to close to shift the staff to fill vacancies at the local A&E at Arrowe Park hospital, because the pay cap and other Government decisions have led to a staffing crisis in the wider NHS.

--- Later in debate ---

[Mr Hunt]

What I will not apologise for is the dreadful short staffing on NHS hospital wards that we inherited in 2010, which led directly to the problems of Mid Staffs. Nor will I apologise for sorting that out and making sure that we have 12,000 more nurses on our hospital wards today than we had in 2010.

[Alison McGovern]

The Secretary of State is repeating words that the Tories have used to excuse their cuts for years but that have not dealt with the deficit, which is still with us. My constituents do not care about that; they care about Eastham walk-in centre, which is closed because of staff shortages. Will he answer this simple question? When will Eastham walk-in centre reopen?

[Mr Hunt]

What the hon. Lady’s constituents care about is that today we announced the lowest unemployment level since 1975, which is a massive benefit to her constituents. She says that we have been repeating our reasons for this terrible financial discipline, which has been so difficult. I am not someone who says that the entire responsibility for the recession in 2010 is the Labour party’s. I recognise that it was a global crash, but what Labour cannot deny is that the recession we faced here was far, far worse than in other countries. Why is that? What did the Governor of the Bank of England say at the time?

--- Later in debate ---

[Mr Hunt]

I am going to make some progress and then I will give way further. I want to talk about the recruitment issues raised by the hon. Member for Hornsey and Wood Green (Catherine West) and others, but I wish to conclude on the point about financial discipline, of which Opposition Members are so critical. The consequences for a Government of losing financial discipline are not just pay freezes and 1% caps, but 1 million people unemployed—as a result of that recession post-2008. Every Labour Government in modern times has left office with unemployment higher than when they arrived. That is why this afternoon’s motion is so bogus, because the difference between the Government and the Opposition is not about a desire to invest in public services; it is about the ability to deliver a strong economy so that we can make that investment.

[Alison McGovern]

rose—

Baby Loss

Alison McGovern Excerpts

Thursday 13th October 2016 Commons Chamber

[Antoinette Sandbach]

I think it is shocking. Miscarriage is one of the silent subjects. Other Members will probably speak about it, or will have had their own experiences.

The second key principle involves commissioning. We know that the knowledge and learning are out there. There are some inspirational NHS trusts, consultants, midwives and chaplains who have established best practice in hospitals. Greater Manchester, Lancashire and South Cumbria Strategic Clinical Networks has developed a stillbirth-specific integrated pathway. Doncaster and Bassetlaw Hospitals NHS Foundation Trust has introduced butterfly signs on maternity room doors to alert staff when parents have lost a baby, and has adapted its literature to ensure that they receive relevant information and advice. Abigail’s Footsteps offers equipment such as cold cots to hospitals.

The work that is being done by many charities and dedicated healthcare professionals needs to be shared within the NHS to address gaps in the service when parents are effectively left to fend for themselves. That means that there needs to be better and more effective training for healthcare professionals. It is really not acceptable that such limited pre-qualification bereavement training—sometimes as little as an hour—is given to midwives, given the current stillbirth rates. There needs to be better pre-qualification training for them and also for sonographers and GPs, given the statistics.

There are a number of inspirational examples of good practice in the country, and this weekend they are being celebrated at the Butterfly Awards ceremony in Worcester. If Members have examples of good practice in their constituencies, they should consider nominating them for next year’s Butterfly Awards, so that we can increase their prominence.

[Alison McGovern (Wirral South) (Lab)]

I thank the hon. Lady very much for initiating the debate. If there is one thing that we can do in the House, it is break taboos, and she, along with other Members, has done that very successfully. Does she think that it is partly because of that taboo that the quality of training is so poor, and does she agree that the more we talk about miscarriage and baby loss, the better it will be?

[Antoinette Sandbach]

I certainly do. Baby loss awareness week has been running for 13 years, but we in this place need to ensure that it affects policy and delivers better outcomes, and that when outcomes do not change, we hold the Secretary of State and the Minister to account. I know that they have recognised the problem, but we will need to see a change in the figures by 2020.

Oral Answers to Questions

Alison McGovern Excerpts

Tuesday 5th July 2016 Commons Chamber

[Alistair Burt]

How I miss the hon. Lady sitting on the Opposition Front Bench with her questions on mental health. I pay tribute to the exceptional work that she has done in this particular area. The £1.25 billion extra that is going into children and young persons’ mental health over the course of this Parliament—I along with other Members in the House have absolutely fought to make sure that it stays in the plans—will help. We have done more work than ever before in relation to combating stigma, but she is right to raise that, as it is essential that we do. It is also essential that the money that is provided centrally goes through clinical commissioning groups into mental health spending, and I am quite sure that she and I will make sure that happens.

[Alison McGovern (Wirral South) (Lab)]

The Secretary of State and others have sought to reassure us that nothing changes immediately with Brexit, but that is not right for the NHS. The impact on the economy is already clear, and that will have a knock-on effect on our health service. That is why I will meet local leaders in Wirral on Friday to try to formulate a Brexit plan for the NHS. Will the Secretary of State receive that plan and take all necessary steps to protect the health service in Wirral?

[Mr Jeremy Hunt]

Of course, and we will take every step necessary to protect the NHS throughout the country, because it remains our most important public service. I am sure that, economically, the period ahead will be difficult, but now that we have had the argument and the British people have made their decision, it is also important that we talk up the opportunities from the new relationships that we may have in the future, and the extra funding that those could generate for the NHS, and I certainly hope that that is what happens.

Junior Doctors Contracts

Alison McGovern Excerpts

Monday 25th April 2016 Commons Chamber

[Mr Hunt]

Interestingly, A&E departments will benefit from the new contract because there are special premiums to encourage more people to go into A&E as a specialty. However, on his broader point, I agree: when someone is paid a high salary, that comes with the responsibilities of a profession. That is why, however much people disagree with the new contract, and however much they may not agree with the Government’s plans for a seven-day NHS, it is totally inappropriate to withdraw emergency care in the way that will happen tomorrow and the next day. That is why doctors should be very careful about the impact this will have on their status in the country.

[Alison McGovern (Wirral South) (Lab)]

The Secretary of State said in his statement: “Taking strike action is a choice”. However, when someone’s back is against the wall, and the person in charge will not listen, it never feels like a choice. A month ago, the Secretary of State could not answer my question about how big the NHS provider deficit would be in the last financial year—it was about £3 billion—so will he answer my question now, because money is at the heart of this? What will the NHS provider deficit be in the next financial year?

[Mr Hunt]

We are taking serious action to bring that deficit down. In particular, one thing we need to do to do that is to reduce the use of agency staff. That will help with the provision of more full-time staff in the NHS, which will be good for the junior doctor workforce.

Oral Answers to Questions

Alison McGovern Excerpts

Tuesday 22nd March 2016 Commons Chamber

[The Parliamentary Under-Secretary of State for Life Sciences (George Freeman)]

I am delighted to join my hon. Friend in that congratulation and to confirm the announcement in the autumn statement that the Government are committed to putting £4.8 billion of capital into the NHS every year through to 2021. That will include funding for proton beam therapy and for major new hospitals at Brighton and at Sandwell, in addition to our billion pounds a year for NHS research and our £700 million a year for medical research through the Medical Research Council.

[Alison McGovern (Wirral South) (Lab)]

The financial year ends next week. What does the Secretary of State expect the NHS provider budget deficit to be by then?

[Mr Jeremy Hunt]

We know that the deficit will be bigger this year, and that there is extreme pressure. Part of the reason for that is that NHS trusts have rightly said that, in the wake of what happened at Mid Staffs, they want to ensure that their wards are properly staffed, but they have done that by using unsustainable agency staff. The most important thing that we need to do is to move to permanent full-time staff rather than agency staff who are too expensive and not good for care.

Junior Doctors Contract

Alison McGovern Excerpts

Monday 30th November 2015 Commons Chamber

[Mr Hunt]

I have always believed that a negotiated agreement will be better for doctors, patients and the NHS, because I am sure that the BMA has value that it can add in the negotiating process to make sure that we implement the spirit and not just the letter of what the Government want to do. I agree with my hon. Friend, and I hope that we can enter into constructive, serious negotiations.

[Alison McGovern (Wirral South) (Lab)]

I have watched my hon. Friend the Member for Lewisham East (Heidi Alexander) fight night and day, and for seven days a week, for services in her constituency, so I would counsel the Secretary of State against saying that she has not fought for seven-day-a-week services. May I help the Secretary of State? In order to restart the process with trust, will he confirm that he has heard from junior doctors—as I have heard from junior doctors who are constituents of mine—that their primary concern is for nothing but patient safety?

[Mr Hunt]

I do think that that is the primary concern of the vast majority of junior doctors, which is why I think it was wrong for the BMA to refuse even to sit down and discuss with the Government how we were going to implement a manifesto commitment. I now hope we can get past that, so I will not say any more other than that I think it is now possible to get a better agreement for the NHS, and I hope we will now be able to do that.

Oral Answers to Questions

Alison McGovern Excerpts

Tuesday 13th October 2015 Commons Chamber

[Mr Hunt]

Yes, I can. I should have said that seven-day hospital services will be available to a quarter of the country by March 2017. We are putting an extra £10 billion into the NHS in the course of this Parliament, which will help in the roll-out of seven-day services—I hope in Croydon, as well. I commend my hon. Friend for his efforts in that respect.

[Alison McGovern (Wirral South) (Lab)]

I met a large group of junior doctors in my constituency on Friday, and we talked a lot about seven-day working. They asked me to put two things straight with the Health Secretary: first, the vast majority of junior doctors are already working seven days a week; and, secondly, on their contract, it was not terms and conditions that they were worried about, as I thought they were, but safety. In respect of those new contracts for junior doctors, what assessment has the Secretary of State’s Government made about patient safety?

[Mr Hunt]

I am very happy to do that, and to correct some of the misleading impressions given by the BMA about what the changes are. The changes are about patient safety. They are about the fact that someone is 15% more likely to die if admitted on a Sunday than on a Wednesday because we do not have as many doctors in our hospitals at the weekends as we have mid-week. I want to give better support to the doctors who work weekends by making sure that they have more of their colleagues and more consultants there, as well as proper safeguards, which I do not believe we have at the moment. I will be getting that message out, and I hope that the hon. Lady will, too, when she next meets her junior doctors.

Health and Social Care

Alison McGovern Excerpts

Tuesday 2nd June 2015 Commons Chamber

[Jane Ellison]

I have already responded to that issue. One would think that Her Majesty’s Opposition would have learned by now that to constantly denigrate the things the NHS does so well in pursuit of making political points does them no service at all.

There is a great track record for the NHS in the face of growing demand and tight financial pressures, but the NHS cannot go on treating more people at this rate. We need to move up several gears in prevention. If we prevent avoidable ill health, as well as enhancing the lives of so many of our citizens, we will get more out of the precious resources available for the NHS. In that vein, we are transforming access to GP and out-of-hospital care. It is all about relieving the pressures that we know exist in the health system and building on our work to bring about full parity between physical and mental health. Those measures will help us to ensure that people get the right care at the right time in the right place, and bring prevention to the fore.

The right hon. Member for Leigh asked specifically about the Bill on professional regulation. I can confirm that the Government remain committed to taking forward recommendations for reformed legislation on regulation of the health and care professions. Work is being done on that important piece of business.

My hon. Friend the Member for Totnes (Dr Wollaston), the former Chair of the Health Committee, and others welcomed our announcement of a clampdown on agency pay. That goes to the heart of how we tackle financial pressures in the NHS. She also asked how agency rates will be set. It will be done on a local basis, agreed by providers and taking into account local circumstances and the regional labour market. Restrictions will not apply to internal “bank” staff—that was one of the specific questions she asked—which we see as a better and cheaper alternative to external agencies.

I said that it was important to get serious about prevention. As the Public Health Minister, I am delighted to see prevention right at the heart of the NHS’s own plan, the plan that we on the Conservative Benches are backing: the Five Year Forward View. We know that to ensure that our NHS is sustainable in the long term, we need to stop many people getting ill in the first place and ending up in hospital, so prevention is key. As the party of aspiration, we want everyone to achieve their potential and get on in life, for themselves and their family. Preventable ill-health and the burden of disease are a barrier to this and can hold people back. As we heard in many of the maiden speeches today, it is a burden that falls disproportionately on the most deprived communities. One of the frustrations that we on the Government Benches often feel is that it is not recognised by the Opposition that tackling health inequalities is something that we all feel passionately about. Improving the health of the most deprived communities in our country is a key part of tackling inequality in our society.

[Alison McGovern (Wirral South) (Lab)]

The Minister mentions deprivation and health inequality. I have listened to council leaders dealing with inequality and deprivation. They face extreme cuts under this Government which have caused massive problems for the NHS. What would she like me to say to them?

[Jane Ellison]

I do not remember in the last election campaign the former shadow Chancellor going around promising local government any more money. We cannot have big debates about the future of important and expensive services such as social care and healthcare if the Opposition are not prepared to say where they would make savings and how they would keep the economy growing. It is just not sustainable.