Oral Answers to Questions Debate
Full Debate: Read Full DebateDepartment: Department of Health and Social Care
Freddie van Mierlo
Main Page: Freddie van Mierlo (Liberal Democrat - Henley and Thame)Department Debates - View all Freddie van Mierlo's debates with the Department of Health and Social Care
(1 day, 20 hours ago)
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Freddie van Mierlo (Henley and Thame) (LD)
Oxford university hospitals trust is one of just three trusts that do not provide givinostat for Duchenne through the early access programme. Last week, I attended a roundtable at which one of my constituents, Alex, advocated on behalf of his son, Ben, who is not getting the treatment. We discussed lessons learned from the early access programme. Will the Secretary of State meet me, Duchenne UK and the all-party parliamentary group on access to medicines and medical devices so that we can share those lessons with him?
Wes Streeting
I have had the privilege of meeting some of the campaigners, and particularly the young people affected by that cruel condition, and I understand the hon. Gentleman’s frustrations. I know that the medication is being put through the National Institute for Health and Care Excellence process, and I hope that that will deliver a positive outcome. I would be delighted to keep him apprised of progress.