(1 month, 1 week ago)
Commons ChamberMy hon. Friend speaks about his constituents whose experience might be relevant to some of the findings around mortuary services and their failings. I would be happy to ensure a meeting with either me or a member of my ministerial team. As I said earlier, the details of what happened in mortuaries leave me struggling for words, because of how dehumanising, disrespectful and abhorrent that was. I would be happy to make sure that his constituents’ points are picked up as part of that.
On learning the lessons from the review in Nottingham and applying that to Leeds and Sussex, we are fortunate that Donna Ockenden will be leading those reviews, having just completed the review in Nottingham. She will be in a strong position to ensure that she goes into that with the learnings she has made from the current review. One of those learnings that I am conscious of is how unacceptable it is that senior leaders refused to take part, for which I can see no justification whatever. I am pleased that, through the duty of candour that have we spoken about today, that will no longer be possible.
Jonathan Davies (Mid Derbyshire) (Lab)
Nottingham University hospitals NHS trust is one of the trusts that serves my constituents. For those who have been patients there, or who have had babies who have come to harm—I have met some of them—Donna Ockenden’s report is difficult reading indeed. In respect of the staff at that trust, many of them, often junior and low-paid, are on the frontline providing kind, compassionate, person-centred care, and they will be feeling raw today. We value what they do.
We have heard a great deal about the appalling practices in the mortuary. They are subject to a criminal investigation, but I want to reflect on the experience of one of the several constituents I have met who have been affected by what we are discussing today. She came to see me as part of Donna Ockenden’s inquiry, and sadly she had engaged with the trust on a number of occasions because she felt that she was experiencing complications with her pregnancy. She was told to lie down and have a fizzy drink and then have an early night, and, despite repeated calls, she was repeatedly fobbed off. Sadly, her baby died.
Behind that is a culture of a failure to engage. There was a very poor culture at the trust—so poor that “FOH” was written in patients’ medical notes and on whiteboards, standing for “F*** Off Home”. How could leaders not be more curious about the practices that were taking place on their watch, and where were the regulators? It is absolutely staggering.
We are making some very positive changes in the NHS, but I want to push the Secretary of State briefly on changes we are making to the mechanisms that allow people to feed back on their care. We are winding down the National Guardian’s Office and Healthwatch; we are also removing NHS England, which has a regulatory function—and we know that regulators have failed in the case of this trust. What steps can my right hon. Friend take to ensure that those feedback mechanisms will enable people to be heard and action to be taken, so that we can prevent this kind of scandal from happening again?
I thank my hon. Friend for his comments, and for telling us what happened to his constituent. He asked about some of the wider changes that we are making in the NHS modernisation Bill. The aim is to bring the patient experience across the NHS into the heart of the new organisation that will arise from the merging of NHS England into the Department of Health and Social Care to ensure that the patient experience drives the decisions being taken about how NHS care is delivered, and is at the heart of what we do as a Department and a national health service.
However, as the report makes clear, the level of failure in maternity and neonatal services is truly devastating. It demands a specific response, which is why the work of the taskforce will begin and it will report by the end of the year. As my hon. Friend has said, this is not just a case of individual cases going wrong or individual members of staff making the wrong decision. It is endemic, and shows the incuriosity of leaders in maternity services about what is going on and what is going wrong in their services. It is a failure of regulators, it is systemic, and the response to it must step up accordingly.
(1 month, 1 week ago)
Commons ChamberThe hon. Lady is right to draw attention to some of the gateways that children and young people will have to go through before being accepted on to the trial. That will involve not just the child assenting and the parents giving consent, but the NHS care team and a national multidisciplinary team, which will take into consideration all the different aspects of a child’s life that I set out in my earlier remarks about their health, but also the wider context that the children are coming from. The importance here is to ensure that there is an exceptionally high bar for children and young people taking part in this trial, and that is the process that has now been established.
Jonathan Davies (Mid Derbyshire) (Lab)
I thank the Secretary of State for the considered way in which he has delivered his statement. In December 2025, The BMJ reported that
“the Pathways trial should wait for findings from former patients treated by GIDS between 2009 and 2020”
and that
“A data linkage study of 9000 patients, now adults, has full HRA approval, and NHS England has encouraged gender clinicians to cooperate, describing it as an opportunity to gather ‘high quality evidence.’”
But The BMJ reported that the clinicians
“refused to share their data”.
Hilary Cass said that was “extraordinary”. Can he tell us whether all the data that is out there is available and whether it is being shared appropriately?
My hon. Friend asks about the data linkage study, and I apologise to my hon. Friend the Member for North Northumberland (David Smith), who a few seconds ago also asked about that—I did not respond then but can now address both questions together.
It is important to understand that the information in the linkage study is much more limited than the detailed information that the research team will be able to collect about the relative benefits and risks of puberty blockers. NHS England is, however, committed to delivering the data linkage study. NHS England, since assuming responsibility for that study, has taken time to ensure that the data is shared by relevant organisations. Let me be absolutely clear, for the avoidance of all doubt, that the Government’s clear expectation is that all relevant organisations will provide the data required to complete the study.