Oral Answers to Questions

Josh Newbury Excerpts

Wednesday 10th September 2025 Commons Chamber

[The Prime Minister]

As I have made clear to the House, full due process was gone through when the appointment was made.

[Josh Newbury (Cannock Chase) (Lab)]

Q6. My constituent Connor Edwards lives with Ehlers-Danlos syndrome and craniocervical instability, which, in his words, means his head is slowly falling off his body. Having once enjoyed fishing and mountain biking, at the age of 30 Connor is now largely bed-bound and says his condition has destroyed his quality of life. He is having to crowdfund for treatment in Spain because the NHS cannot give him the help he needs. Will the Prime Minister ensure that I, Connor and EDS charities have a meeting with the Minister to discuss what more we can do to give thousands of people like Connor their freedom back?

[The Prime Minister]

I have read through the details of Connor’s case, which has just been summarised. It is heartbreaking. I thank my hon. Friend for consistently campaigning and championing all those affected. I will make sure that he gets the meetings he needs so that we can hear from Connor and others and learn from their experience.