Oral Answers to Questions

Kate Hollern Excerpts

Wednesday 16th September 2015 Commons Chamber

[The Prime Minister]

I will obviously take great care with my answer. I think it is excellent that we have got these devolution proposals, and it is very good that a number of different ideas have come forward from Yorkshire. The most important thing now is for people to try to come together and get behind a plan for Yorkshire. But be in no doubt: this devolution is coming, in terms of real powers and real ability to drive that economy as part of our northern powerhouse.

[Kate Hollern (Blackburn) (Lab)]

Q3. My constituent Enola Halleron-Clarke, who is 11 years old, suffers from Morquio syndrome. This distressing disease stunts her growth and leads to abnormal development of the bones, and at the moment there is no cure. Enola would like to be able to use the drug Vimizim to help alleviate her condition, but the National Institute for Health and Care Excellence has yet to decide whether the drug should be available on the NHS. Will the Prime Minister do all he can to encourage NICE to come to a speedy decision for Enola and people like her?

[The Prime Minister]

The hon. Lady is absolutely right to raise the case about this illness and this drug; other Members have raised it as well. She is right to say that NICE is still looking at the matter. I will continue to do all I can to ensure that it reaches a speedy decision. We also need to have a dialogue with the drug companies, because of the vast prices that are being charged for some of these drugs. There are resource implications, and we need to bring down those costs to make the drugs more available, more quickly.