Baby Loss
Debate between Kevan Jones and Patricia Gibson(7 years, 6 months ago)
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Patricia Gibson (North Ayrshire and Arran) (SNP)
I am deeply honoured to participate in this debate on an issue that could not be closer to my heart, and I am grateful to the cross-party group on baby loss for bringing this forward.
As we have heard, the loss of a baby is what every parent dreads. Those to whom it occurs are irrevocably changed for ever—their lives scarred by unspeakable tragedy. A year before I was elected, I had no notion that I would ever have the honour of being elected to represent the good people of North Ayrshire and Arran, but here I am, and because of my own horrific experience of stillbirth I feel profoundly that I should use that experience to help shine a light on this issue, which truly is the last taboo.
For too long, too many of those to whom this has happened understandably did not feel equal to the task of speaking out about this issue, and in turn those who have no direct experience of this issue simply do not know how to broach it and are often surprised to find out how prevalent stillbirth is across the UK. Around 3,500 babies each year across the UK are stillborn and another 3,000 die shortly after birth. To put this into context, that is around one baby every hour and a half, the equivalent of 16 jumbo jets crashing every year. It is inconceivable that this should continue. But it will, unless we remove the taboo and shine a light on this awful, awful phenomenon and do all we can for all the mums and dads of the future and all the babies yet to be born. It is sobering to think that in the course of this debate, somewhere in the UK two more little babies will have died, and two families will have been destroyed. It does not bear thinking about, but think about it we must. Yes, it is extremely difficult to talk about this, but we have a duty to all the babies who have been lost and a duty to all the bereaved parents who are struggling to put the pieces of their lives back together.
The fact is that, in Scotland, 34% of stillbirths are babies at the full term of pregnancy, and in England the figure is 33%. This is shocking, since medics at all levels will say that, barring some terrible freak accident, no baby who has survived a full pregnancy need die—not if proper monitoring and procedures are in place—yet such babies do die. In Scotland, some progress has been made in recent years to reduce the incidence of stillbirth, but we still do not compare favourably with our European neighbours. Across the UK, we still have a long way to go.
I know, as many others do, the horror of losing a baby. My baby, Kenneth, would have been seven years old this Saturday, the very day when we reach the culmination of Baby Loss Awareness Week—international pregnancy and infant loss awareness day—when we will see a wave of light for all our babies.
When children lose their parents, they are called orphans. When a husband loses his wife, he is called a widower. When a wife loses her husband, she is called a widow. When parents lose their child, there is no name for that. The reason that there is no name for it is that there are no words. It goes against nature. And in other loss of loved ones, all those who knew and loved them can share memories such as the last holiday, the last Christmas or the last important family milestone, but it is not like that with a stillbirth, so people understandably do not know what to say. How on earth could they? Sometimes, people are so keen to avoid saying the wrong thing that they say nothing at all. I have heard reports of women after a stillbirth seeing their neighbours cross the road to avoid speaking to them, such is the discomfort and anxiety about saying the wrong thing, because there is no right thing to say. There simply are no words; just a deafening silence and a terrible sense of being utterly isolated in consuming grief.
Like so many parents who have lost their babies, my husband and I are haunted by the loss of how we expected our lives to be after five years of fertility treatment. We are haunted by the potential wiped away so cruelly, so suddenly and so unexpectedly; haunted by the fact that it was completely avoidable; haunted by the fact that all this grief and sense of waste was because the Southern general hospital in Glasgow, now called the Queen Elizabeth university hospital, made a series of basic errors; haunted by the fact that that same hospital pulled the shutters down and for six and a half years refused to recognise that any mistakes were made at all and to this day has still not done so; and haunted by the fact that that same hospital, despite independent experts flatly contradicting it, insists that it did nothing wrong.
And this matters. It matters because this is an all too common story and demonstrates an unwillingness openly to engage in a learning process when mistakes are made. That shows the real culture—a fear even—of improvement if people cannot accept it when mistakes are made. How many parents must go through this horrific ordeal only to feel swept aside, ignored, dismissed and told, “It’s just one of those things,” as they try somehow to cope with the crushing weight of grief?
As we have heard already, bereavement care for parents is simply not good enough. Sands has done very important work in this field, and I want today to pay tribute to it. It understands the importance of listening to mothers’ concerns. It found that 45% of the mothers it surveyed who had undergone a stillbirth felt something was wrong before any problems were diagnosed, yet too many of those women were told that their concerns were unfounded and sent home, only for their babies to die shortly afterwards. Antenatal care must be a collaborative process. Mothers’ concerns must be paid attention to. Women know their own bodies.
We must have better monitoring of pregnancies, particularly those of women at risk of experiencing a stillbirth or neonatal death. The truth is that we are failing to identify many babies at risk. In addition, we must have more knowledge, data and research to help us to tackle this issue. The more we know about why our babies are dying, the more measures we can take to militate against it happening. It is very important that if mistakes are made—and remember that one in three stillbirths are at full-term babies—health boards and trusts should not investigate themselves. For investigations to be credible, they must be independent and carried out by people outside the situation. That is the right and proper thing to do to challenge the culture of secrecy.
Where it is believed to be merited, we should allow coroners in England to investigate stillbirths, so that errors in care can be addressed, where they have occurred. In Scotland, the equivalent would be a fatal accident inquiry. These are not straightforward or easy asks, but such an investment now will increasingly mean that, as expertise grows and intelligence is gathered, the need for such measures will necessarily decrease over time.
Mr Kevan Jones (North Durham) (Lab)
Does the hon. Lady agree that local authorities need to take into account the registration of deaths? I have heard of cases where people have had to register deaths at the same place where people were registering births. That is most upsetting for those parents.
Patricia Gibson
Indeed. I take on board what the hon. Gentleman says. It is an extremely traumatic experience to register the death at the same place where people are registering births. That simply makes the experience much more traumatic.
In my own case, my notes recorded that I was asked if I wanted a post mortem performed on my son. My notes did not record who asked me this question, what information I was given, or when I was asked it. I was so drowsy on morphine in intensive care, since my liver had ruptured after my body tried for 48 hours to deliver my baby naturally and the hospital repeatedly refused to perform a caesarean section, that I have no idea if I was actually asked this question. Why was the conversation not properly recorded in my notes? It is all pretty suspicious and only feeds into the sense of cover up and evasion by hospitals in such circumstances.
I am delighted that we are finally putting this very important issue firmly on the political agenda, and that is where it must stay. For those of us inside the Chamber and those of us outside—all the grieving parents watching today—it is too late to save our little boys and girls. But there are other boys and girls—other people out there, thinking of starting their own families, for whom it is not too late. It is our duty to do all we can to ensure that those little boys and girls enter the world as safely as possible. It is our duty to commit ourselves to this cause for their sakes and for the sake of all the babies who have been lost but will never be forgotten.
Draft Nuclear Industries Security (Amendment) Regulations 2016
Debate between Kevan Jones and Patricia Gibson(7 years, 10 months ago)
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Patricia Gibson (North Ayrshire and Arran) (SNP)
The public are deeply concerned about the transportation of nuclear material through residential streets by vehicles. We hear that and we understand it. How do we imagine the public would react to nuclear materials criss-crossing the skies over their towns and cities? I think we can all imagine that the public reaction would be one of great fear and alarm, quite understandably and justifiably.
The hon. Member for Brent North made an excellent point earlier. There is a question about the wording of the document. Perhaps it is just semantics and the way the document has been written, but there is a concern about whether this has already happened. If it has, why are we hearing about it now? Is there some national security reason why we cannot hear about it? I doubt that very much.
Mr Jones
That is the point I was making, in terms of where the regulations meet, for example, the Ministry of Defence’s responsibilities. I do not think it is a great secret that the Ministry of Defence already transports nuclear material. The interface between the two will be important in knowing what the crossover is, and what the new future is. Who actually has supremacy regarding the regulations that govern that, whether it is civilian nuclear material or military nuclear material?
Patricia Gibson
If this stuff is going to be transported by air—I will say more about that in a minute—I think the public really have a right to know. They will be quite justifiably angry and will feel let down if this has been going on and they were not party to that information. We are talking about potentially extremely serious consequences if things go wrong. Sod’s law is that eventually, no matter what regulations are put in place, things can go wrong, and quite often, they are not the things that are expected to go wrong.
I want to draw attention to a point my hon. Friend the Member for Midlothian made earlier. The Scottish Government’s policy on the transportation of nuclear waste is that it should be near surface and near site, storage and/or disposal facilities, where the waste can be monitored and retrieved if required, and the need for transportation over long distances can be minimised.
I would imagine, although I do not know for sure, that if nuclear materials are transported by air, it will, by definition, be a long distance, otherwise they would not be transported that way. I am concerned about the length of these distances and why we are moving from the current system to try and include air travel, which is fraught with danger.
I also ask the Minister to what extent, if at all, the Scottish Government have been consulted on these points. Have they simply been notified or have they not been notified? What input have we had from SEPA? I would like answers to these questions, because we are talking about public safety, which is really important. The transportation of nuclear materials is already a cause of alarm among the public. This will do nothing to allay those fears; in fact, it can only increase them.
Police Funding Formula
Debate between Kevan Jones and Patricia Gibson(8 years, 2 months ago)
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Patricia Gibson (North Ayrshire and Arran) (SNP)
We know that the UK Government have consulted on the funding formula for police forces in England and Wales, as they seek to simplify funding arrangements for the service. We also know that any changes in the funding arrangements have been delayed until 2016-17. Indeed, that was set out very eloquently by the right hon. Member for Leicester East (Keith Vaz). Because of Barnett consequentials, which are so important for funding services across the UK, I want to say a few words about policing in Scotland.
As many in the House will be aware, the SNP Scottish Government have carried out a reorganisation of policing in Scotland, with eight area forces merged into a unitary force in 2013. The Scottish Government now fund policing directly through the Scottish Police Authority. It is worth pointing out that that had cross-party support, although—perhaps this is in their nature—the Lib Dems subsequently withdrew their support. I would point out, if I may, that in Scotland, despite the major reform implemented by the Scottish Government, which has delivered significant savings, the Scottish Government have continued to protect their commitment to 1,000 additional police officers, all in the teeth of harsh Westminster cuts.
There is no doubt that we are having to make some very hard decisions in Scotland about the police budget, but, under the recent budget, the police revenue budget will be protected in real terms in every year of the next Parliament, with a boost of £100 million between 2016 and 2021. However, it must be said that some of the hard decisions the Scottish Government have to make are a direct consequence of the UK Government’s refusal to give Police Scotland the same VAT status as every other police authority in the United Kingdom. The same applies to the Scottish Fire and Rescue Service.
Patricia Gibson
I can hear somebody chuntering from a sedentary position. If the hon. Gentleman wants to intervene, I would be delighted to hear what he has to say.
Patricia Gibson
For the avoidance of any doubt, I want to point out that although the Scottish Government were aware of that, it does not make it right.
Patricia Gibson
No. Perhaps the Minister will let me finish my point before he starts chuntering. The Scottish Government agreed to that because they had no choice. They are working within the constraints imposed on them by Westminster. I should say—I am moving forward now—that like so many other deals in Scotland, it was imposed by a UK Government who are detached from Scotland and neither understand nor care about Scotland’s public services. I shall leave the matter there.
Patricia Gibson
If you do not like giving fair funding formulae to Scotland, you had your chance last September, when you kicked and screamed to hold on to us. In the light of that decision last September, all we ask for is fairness. We are of course a valued and equal partner—well, let us be so.
Mr Deputy Speaker (Mr Lindsay Hoyle)
Order. If the hon. Lady wishes to give way, she will give way. If she does not want to give way, we all have to respect that.
Patricia Gibson
I would simply add that holding an axe over someone’s head because they do not—
Patricia Gibson
No, thank you. I want to progress beyond this point.
Uniquely and therefore unfairly, the Scottish Police Authority is the only police authority in the United Kingdom that cannot recover VAT. It is therefore liable for an annual cost of £25 million, which is equivalent to almost the entire forecast savings gap. Importantly, it seems that the Treasury based its decision on the fact that single services will be funded by central Government. However, the Treasury introduced a new section in the Value Added Tax Act 1994 to ensure that central Government-funded academy schools in England could recover VAT. Why is there not the same provision for the Scottish police and Scottish fire and rescue services?
Patricia Gibson
Well, I’m asking for it now. Why do I mention all this, apart from the fact that it is about fairness?
Scotland Bill
Debate between Kevan Jones and Patricia Gibson(8 years, 10 months ago)
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Mr Jones
The hon. Gentleman raises an interesting point, which illustrates why the later amendment seeking to quantify the cost is needed. If we are going to take these decisions in the long-term interests of the Scottish economy and its people, they need to know that. I am a former trade union official and I never went into negotiations without knowing what the costs of the outcome would be. The problem with the Scottish nationalists’ proposals is that they do not know what the ultimate costs will be.
Amendment 58 in the name of the hon. Member for Moray (Angus Robertson) proposes that the phrase that the Scottish Parliament is recognised as
“a permanent part of the United Kingdom’s constitution”
replace the current wording in clause 1, which states:
“A Scottish Parliament is recognised as a permanent part of the United Kingdom’s constitutional arrangements.”
We have a problem with that, as I tried to tease out in my interventions on the hon. Gentleman: what is the definition of the United Kingdom’s constitution, because we do not have anything called that? If that amendment passes, there would be a feast day for lawyers in trying to identify what the constitution is. If we had a written constitution, the Scottish Parliament could be a permanent part of it, but we do not have a written constitution and I am at a loss to know how this would be interpreted as things currently stand. The amendment has been tabled so it is in order, but I am not sure of its practicality and uses, and I am not sure that the hon. Gentleman understands how this would be interpreted and whether it will be left to a court to decide how the UK constitution is to be defined.
Patricia Gibson
Does the hon. Gentleman agree that the best time to raise any concerns and questions about costs and the definition of the word “constitution” would have been when Gordon Brown was going around Scotland making a vow about creating a powerhouse Parliament?
Mr Jones
I am not sure what the point of that intervention was. I am talking about an amendment proposed by the hon. Lady’s party, and I think it is deficient. The onus is on the hon. Gentleman who moved it to explain to the Committee what its reference to the United Kingdom’s constitution actually means. He clearly does not have a clue what that means, and the danger is that there could be a challenge and that would lead to lots of work for lawyers—and as Members know from me of old in this place, I am not one for feeding lawyers.
This Bill is a major move forward.