Invisible Disabilities and Accessibility Challenges

Mary Robinson Excerpts

Wednesday 5th June 2019 Commons Chamber

[Mary Robinson (Cheadle) (Con)]

It is a pleasure to follow the hon. Member for Ellesmere Port and Neston (Justin Madders). I thank the hon. Member for East Lothian (Martin Whitfield) for securing this really important debate and for giving us the opportunity to discuss the issues that are faced by and raised by our constituents, who have disabilities both visible and invisible, which can be a barrier to their independence.

One barrier to independence should not be travel. The disability charity, Scope, in its report, “Independent. Confident. Connected.” found that 40% of disabled people often experience issues or difficulties when travelling by train in the UK, but there has been progress in transport accessibility in recent years, driven in no small part by the Equality Act 2010. However, I would like to touch on a number of issues that disabled or impaired residents of Cheadle still face. These issues remain a real concern and I would like to see them addressed.

We are all keen to encourage people out of cars and on to public transport. It is really important that public transport recognises invisible and visible disabilities and makes the accommodations that need to be made for people to travel. Cheadle Hulme in my constituency is an important station on the rail corridor from Stoke-on-Trent and Crewe to Manchester Piccadilly, and it is well used by commuters travelling to and from my constituency for work or leisure. The construction and completion of lifts and a footbridge with funding from the Access for All programme is very much welcome, but several wheelchair users have encountered issues with the station’s disabled access and particularly the lift, which is active only until quarter to 9 in the evening, even though trains continue beyond that time. That is an important issue for people who have disabilities. Because of it, one constituent had to get off at Stockport station and get a taxi to Cheadle Hulme, which is a journey of four miles. Another—this was a really terrible experience for him—had to carry his disabled daughter and luggage down the station stairs because the lift cannot be in use 24 hours a day, as it relies on the station being manned.

I recognise that all transport companies, such as Northern, seek to address these issues and provide help for those who need assistance, but that help is often not well known about by passengers or the service is not consistent enough to adapt to the needs of disabled people. I am pleased, however, that Northern is actively looking at how to address this issue and is undertaking a pilot at another station using technology so that lifts can be monitored remotely. It is important to know that there are ways to address all these issues. Whether a person has a visible or invisible impairment or need, these issues can be addressed.

[Ian Mearns (Gateshead) (Lab)]

The hon. Lady’s point is entirely valid, because Northern has proposed to remove guards from trains. That makes the accessibility problem even more difficult, particularly given the number of unstaffed stations on the Northern network.

[Mary Robinson]

I thank the hon. Gentleman for that intervention. I agree that we need to make sure that we have the right safety measures in place on all our trains, but my point is about the accessibility when people arrive at stations and the issues that they may have if a lift is not working. Clearly, we would not want a person to have to carry their disabled child up and down stairs.

Seven thousand people in the UK rely on an assistance dog to help with practical tasks and to go about their daily lives. For many people, the first and only visible sign of their invisible illness is their dog. I recently discussed this issue with Lynne from my constituency and I was distressed to hear the effect it has had on her. She was refused access to a taxi because the driver did not want the dog in her car. She suffers from regular epileptic seizures. She looks no different from any other person, but she is accompanied by her assistance dog, who can detect when she is about to have a seizure. I was amazed to hear that humans emit a specific odour that some dogs can recognise, which means they can warn their owner of an oncoming seizure, sometimes a significant period in advance, to allow them to find a safe place and get the assistance they need. My constituent was left waiting in the pouring rain for 30 minutes for another taxi after being refused passage. The taxi would not accept her assistance dog as a passenger. She reports that sometimes taxis arrive, see her dog and move on or refuse to pick her up.

Businesses such as private hire taxi firms are a vital transport service for people suffering with physical or mental conditions—they enable them to get about—and they need to be made aware of the legislation protecting people with assistance dogs. It is a concern that not enough licensing authorities require drivers to complete disability awareness and equality training, and this should include people who have disabilities that are visible and those that are not.

I am encouraged that in response to the task and finish group report, which investigated the issue, Ministers have stated that they intend to include new guidance for licensing authorities. Under the Equality Act 2010, taxi and minicab drivers cannot refuse a booking on the grounds that someone has an assistance dog accompanying them. I appreciate that in some circumstances they may not be able to have dogs as passengers in their cars—for example, if they are allergic—but that is why the legislation allows for drivers to carry certificates of exemption.

Customers must be aware of this, however, when booking a taxi so that they are not left literally out in the cold. I would like all taxi drivers to complete disability awareness and equality training so that they know they should report discrimination. We also need to take action against drivers who discriminate against disabled passengers so that experiences such as those of my constituent do not continue. This is not about forcing new regulations on business; it is about reinforcing current legislation to protect disabled people.

Like epilepsy, bowel disease is also an invisible illness. While someone may appear to look okay on the outside, they might suffer from an invisible illness such as Crohn’s or colitis and might urgently need to use a toilet when out and about.

[Hannah Bardell (Livingston) (SNP)]

I know I have just arrived in the debate, but I would like to pick up the hon. Lady’s point about Crohn’s and colitis. A close member of my family was diagnosed a few years ago with colitis, and their struggle to find public toilets and amenities and have it recognised has been a huge challenge. Does she agree that we need to raise awareness of those invisible diseases?

[Mary Robinson]

The hon. Lady knows from her own family experience how important this is and how seriously we need to address it. People who suffer from illnesses such as Crohn’s and colitis might urgently need to use the toilet when out and about, and we need to ensure they can and that they are accessible. It is a major anxiety for people that stops them or prevents them from going out and about. Sometimes people have to think long and hard about their journey because of the impact it might have if they need to use a toilet urgently. That is why the roll-out of accessibility signage is so important. It needs to be addressed and people need to be made aware of it. I would like this to be a bigger issue that is taken on board by more and more shops, retailers and restaurants.

A “Can’t Wait!” card is available to people with hidden illnesses—bowel disease, and so on—that they can show to staff at restaurants and shops without having to give a long explanation about their condition. In many cases, people find this embarrassing to talk about to strangers. That is the whole point of doing something about it. Some retailers are part of the “Can’t Wait!” card scheme and recognise it, but a lot of independent businesses do not, and the wider knowledge and encouragement of such schemes is needed, alongside the roll-out of more accessible signage. I would be grateful if the Minister informed the House in his closing remarks what more the Department can do to encourage businesses to recognise these schemes. Whether or not someone is disabled, their ability to go about their daily life without hindrance is a right, and one that we must ensure is respected.