Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the availability of diagnostic and treatment pathways for Tourette syndrome across Integrated Care Boards; and for what reason Tourette syndrome has not been included in the scope of the Independent Review into mental health conditions
Integrated care boards (ICBs) are responsible for assessing local population need and commissioning appropriate diagnostic and treatment pathways for neurological conditions, including Tourette syndrome. While the Department has not undertaken a national assessment of provision across ICBs, we recognise the concerns raised about variation in diagnosis and support. To help address this, NHS England’s Getting It Right First Time (GIRFT) programme is working with ICBs to develop clear, consistent diagnostic and treatment pathways. The programme has appointed a clinical lead for children and young people's neurodevelopmental services, focusing on improving the assessment and management of Tourette syndrome.
The Independent Review into mental health conditions focuses on mental health conditions, ADHD and autism. Tourette’s is a neurological disorder and, therefore, it will be at the chair's discretion as to how far the review considers Tourette syndrome.