Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the support (a) his Department and (b) the NHS provides to people diagnosed with Motor Neurone Disease and their families.

No assessment has been made. Individuals with Motor Neurone Disease (MND) will receive access to a range of NHS services. NHS England commissions the specialised care and treatment that patients with MND may receive from the 24 specialised neurology centres across England. NHS England has published a service specification setting out national standards for organisations that provide specialised neurological care. This sets out that the service should improve quality of life and experience of services for patients and their carers.

NHS England has also established a Neurosciences Service Transformation Programme, a multi-year, clinically-led programme to develop a new model of integrated care for neurology services, including MND.