Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to (a) early diagnosis and (b) treatment for people living with pulmonary fibrosis.

Patients with pulmonary fibrosis are cared for by National Health Service regional specialist Interstitial Lung Disease (ILD) services, who are commissioned by NHS England. To be referred to a specialist service patients need to be identified in primary and secondary care. Early and accurate diagnosis is a priority for NHS England, and the work to improve this area of clinical care is underway, which should have an impact on reducing delayed diagnosis of pulmonary fibrosis.

NHS England is responsible for the commissioning of services for ILD and funds the cost of anti-fibrotic treatments to treat this disease. Access to these treatments has recently been expanded to patients with non-idiopathic pulmonary fibrosis following the publication of the National Institute for Health and Care Excellence’s technology appraisal ‘Nintedanib for treating progressive fibrosing interstitial lung diseases’ in November 2021.

The Department has no plans for an awareness campaign.