Rare Diseases: Drugs
(asked on 25th March 2024) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many appraisals for medicines to treat very rare diseases were started through the National Institute for Health and Care Excellence highly specialised technology programme in each financial year since 2018-19.
The following table from the National Institute for Health and Care Excellence (NICE) shows the number of highly specialised technology evaluations that started in each year since 2018/2019:
Year | Invitations To Participate |
2018/19 | 4 |
2019/20 | 2 |
2020/21 | 3 |
2021/22 | 7 |
2022/23 | 8 |
2023/24 | 4 |
Total | 28 |
Note: The term started has been defined as when the NICE sent the invitation to participate.