Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department takes to involve people with learning disabilities in the development and implementation of measures to reduce their health inequalities.

We recognise the importance of involving people with a learning disability in policy development and implementation to support in reducing the health inequalities they experience. We aim to do this in a range of ways within the Department, some of which are set out below.

Experts by experience are members of governance structures, such as the Oliver McGowan Code of Practice Board. This Board has supported the development of the Oliver McGowan Code of Practice. The Code will guide registered health and care providers to meet their statutory requirement to ensure their staff receive learning disability and autism training appropriate to their role. The Code sets an expectation that training is co-produced and co-delivered by people with a learning disability and autistic people. The draft Code was publicly consulted on, including an easy read version to ensure accessibility.

In developing the Building the Right Support (BtRS) Action Plan, published in July 2022, we sought expertise, advice and challenge from experts by experience. The Plan brings together actions across government and public services to strengthen community support and reduce overall reliance on specialist mental health inpatient care for people with a learning disability and autistic people.

The BtRS Advisory Group was established to improve direct engagement with experts by experience. The Group developed an independent, co-produced report on ‘What Good Looks Like’ in terms of community services. The final report has a specific focus on actions that integrated care systems should take to ensure the best possible community support for people with a learning disability and autistic people.

Additionally, the Department jointly manages the Health and Wellbeing Alliance which is a partnership between representatives in the health and care system and sector. This enables the sector, including people with a learning disability, to share their expertise at a national level with the aim of improving services and policy development.

Integrated care boards are now expected to have an Executive Lead on learning disability and autism. As part of their role, the Executive Lead will support the Board in championing co-production of policies and service delivery and recognising the value of people’s lived experiences. NHS England has published guidance on this role, which is available at the following link:

https://www.england.nhs.uk/long-read/executive-lead-roles-within-integrated-care-boards/