Rare Diseases: Surveys

(asked on 26th October 2026) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will assess the potential merits of commissioning a national Rare Disease Patient Experience Survey, modelled on the Cancer Patient Experience Survey, to identify regional variation and track patient outcomes for those with rare diseases.


Answered by
James Frith Portrait
James Frith
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 2nd November 2026

In line with the identical questions received on 26 October from the Hon. Member for Strangford, I refer the Hon. Member to the answer provided on 22 September in response to Question 26638.

Reticulating Splines