Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of publishing quarterly reports on progress made against the commitments set out in her Department's England Rare Diseases Action Plan 2023, last updated on 10 July 2023.

While there are no plans to publish quarterly reports on progress made against the commitments of England’s second Rare Diseases Action Plan 2023. We have committed to publishing action plans annually and England’s third Rare Diseases Action Plan will detail progress made in the past year. In addition, minutes of the eight weekly England Rare Diseases Framework Delivery Group meetings, where progress is monitored, are published to the UK Rare Disease Forum on-line platform and the UK Rare Diseases Forum receives updates on progress across the four nations at its quarterly meetings.