Rare Diseases

(asked on 30th May 2025) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential impact of the abolition of NHS England on people with rare conditions.


Answered by
Ashley Dalton Portrait
Ashley Dalton
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 19th June 2025

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases.

We are currently in the initial phases of scoping and designing a new integrated Department that aims to enhance the efficiency and effectiveness of our healthcare system. Ministers and senior Department officials will work with the new executive team at the top of NHS England, led by Sir Jim Mackey, to lead the formation of a new joint centre. As we work to bring the two organisations together, we will ensure that we continue to evaluate impacts of all kinds.

Reticulating Splines