Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will ask NICE to develop specific national guidelines on Huntington’s disease to help ensure patients with that disease have a coordinated care pathway.

There are no current plans for the National Institute for Health and Care Excellence to develop a guideline on Huntington’s disease. NHS England is developing a neuropsychiatry service specification which when finalised, will outline the multi-disciplinary approach to caring for patients with complex neurological conditions, including Huntington’s disease, who require specialised assessment and mental health support.