Tourette's Syndrome: Children and Young People

(asked on 19th February 2024) - View Source

Question to the Department for Education:

To ask His Majesty's Government what assessment they have made of the effectiveness of support for children and young people with Tourette’s Syndrome as outlined in the Special Educational Needs and Disability (SEND) and Alternative Provision Green Paper published in 2022, and how is that measured.


Answered by
Baroness Barran Portrait
Baroness Barran
Parliamentary Under-Secretary (Department for Education)
This question was answered on 29th February 2024

Through delivery of the Special Educational Needs and Disabilities (SEND) and Alternative Provision Improvement Plan, which was published in March 2023, the department is establishing a single national system that delivers for every child and young person with SEND, so that they enjoy their childhood, achieve good outcomes, and are well prepared for adulthood and employment.

Pupils at school with medical conditions should be properly supported so that they have full access to education. In 2014, the government introduced a new duty on schools to support pupils with all medical conditions and has published statutory guidance intended to help governing bodies meet their legal responsibilities. This guidance sets out the arrangements they will be expected to make based on good practice. Schools should ensure they are aware of any pupils with medical conditions and should have policies and processes in place to ensure these can be well managed.

Tourette's is a complex neurological condition and children and young people with it may also have other learning difficulties. As a result, schools must use their best endeavours to make sure a child or young person gets the special educational provision they need, which includes monitoring the progress of pupils regularly and putting support in place where needed, such as arranging diagnostic tests where appropriate.

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