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Written Question
Chronic Fatigue Syndrome: Health Services
Friday 26th April 2024

Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to section 1.17 of the National Institute for Health and Care Excellence (NICE) guidelines entitled Myalgic encephalomyelitis (or encephalopathy) chronic fatigue syndrome: diagnosis and management, published on 29 October 2021, what steps her Department is taking to help ensure that hospital staff are aware of NICE guidelines for caring patients with very severe myalgic encephalomyelitis.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.

It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.

The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.

We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.


Written Question
Chronic Fatigue Syndrome: Health Services
Friday 26th April 2024

Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether her Department is taking steps to increase inpatient provision for patients with myalgic encephalomyelitis.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.

It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.

The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.

We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.


Written Question
Palliative Care: Integrated Care Boards
Friday 26th April 2024

Asked by: Rachael Maskell (Labour (Co-op) - York Central)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that integrated care boards have clear accountability over their funding decisions for (a) hospices and (b) palliative and end of life care services.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.

The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.

In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.

The Department and NHS England, alongside key partners, will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England, including its National Clinical Director, about the oversight and accountability of National Health Service palliative and end of life care commissioning.

From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population.

NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities. Additionally, the National Institute for Health and Care Research has established a new Policy Research Unit to build an evidence base on palliative and end of life care, with a specific focus on inequalities.


Written Question
Medicine: Higher Education
Friday 26th April 2024

Asked by: Greg Knight (Conservative - East Yorkshire)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what progress she has made on increasing the number of medical student places; and whether she expects to meet the commitment to double the number of medical school places by 2031.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.


Written Question
Brain: Tumours
Friday 26th April 2024

Asked by: Alistair Strathern (Labour - Mid Bedfordshire)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase the availability of treatment for glioma on the NHS.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.


Written Question
Brain: Tumours
Friday 26th April 2024

Asked by: Alistair Strathern (Labour - Mid Bedfordshire)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether NHS England plans to provide dendric cell therapy for glioma.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.


Written Question
Pharmacy: Rural Areas
Friday 26th April 2024

Asked by: Lord Bishop of St Albans (Bishops - Bishops)

Question to the Department of Health and Social Care:

To ask His Majesty's Government whether they have made an assessment of the impact of rural pharmacy closures on access to primary care.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

It is the statutory duty of every local authority in England to undertake pharmaceutical needs assessments for their areas including those that are rural in nature, every three years, to ensure provision continues to meet their population’s needs. Integrated care boards have regard to those assessments when commissioning services and where a pharmacy closure impacts on the access to services, a new contractor can apply to open a pharmacy in the area.

Patients who struggle to access pharmacy premises can access pharmacy services remotely through any of the over 400 online pharmacies that are contractually required to deliver medicines free of charge. Alternatively, in some rural areas, doctors are permitted to dispense medication to patients.

The Pharmacy Access scheme provides additional funding to pharmacies in the areas where there are fewer pharmacies.


Written Question
Hospital Wards: Gender
Friday 26th April 2024

Asked by: Baroness Nicholson of Winterbourne (Conservative - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government whether they plan to direct NHS England to withdraw Annex B of its guidance Delivering same-sex accommodation, published in September 2019.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

NHS England is updating their Delivering Same-Sex Accommodation guidance, and a revised version will be published in due course. It is imperative that National Health Service trusts respect the privacy and dignity of patients. The Government has been clear that patients should not have to share sleeping accommodation with others of the opposite sex, and should have access to segregated bathroom and toilet facilities.

As previously announced, proposals to protect the privacy, dignity, and safety of patients will be brought forward soon as part of the review of the NHS Constitution and its handbook. Any measures consulted on will be in line with the Equality Act 2010, respecting the rights of all patients in hospital settings.


Written Question
General Practitioners
Thursday 25th April 2024

Asked by: Lord Birt (Crossbench - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government what plans they have to review the convenience and efficacy of the systems used by NHS GP practices for patients to make an appointment to see a doctor.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

We published our Delivery plan for recovering access to primary care in May 2023, which sets out how we are moving toward a ‘Modern General Practice’ model. This plan is backed by £240 million of retargeted funding going to provide digital services with the goal of increasing access. A copy of the plan is attached.

The sole method for general practices (GPs) to procure these digital services is via NHS England procurement frameworks, which list pre-approved suppliers for digital and IT services. This is to ensure consistency in service provisions, as each supplier must meet a set of requirements to be entered into a framework.

Each practice will run a procurement for these services and will select a supplier based on their differing specifications for how the IT systems will best meet their patients’ needs. Each supplier will offer varied services with varied benefits, including capabilities which allow patients and service users to request and receive support relating to healthcare concerns, at a time and place convenient for them.

As of March 2024, 93% of general practices now have digital telephony systems, this has enabled GP teams to manage multiple calls and helping to end the ‘8am rush’ for appointments. Trials show that this has increased patients’ ability to get through to their practice by almost a third.


Written Question
Suicide: Coastal Areas
Thursday 25th April 2024

Asked by: Lord Hunt of Kings Heath (Labour - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government, with reference to research by Christine Camacho and Luke Munford at the University of Manchester showing that deaths from drugs, alcohol and suicide are higher in northern and coastal local authorities, what steps they are taking to address that regional inequality.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

The Levelling Up the United Kingdom white paper sets out the Government’s ambition to improve living standards and wellbeing across the UK, invest in communities, and improve public services. It sets mutually reinforcing levelling up missions to focus Government action, including a health mission to narrow the gap in healthy life expectancy by 2030, and increase healthy life expectancy by five years by 2035.

The Government has published a 10-year drug strategy and is investing an extra £532 million between 2022/23 to 2024/25 to improve drug and alcohol treatment and recovery services. This funding is being used by local authorities to create places for an additional 54,500 people in drug and alcohol treatment services and bolster the workforce, seeking to prevent nearly 1,000 deaths. This funding is being targeted to areas of highest need first.

The Department is increasingly focusing on supporting local areas, including better meeting the needs of vulnerable groups. Current work includes: providing targeted support to local areas; enhancing data tools to better inform local needs assessments; supporting workforce development; implementation of the commissioning quality standard; and sharing good practice. Implementation support will adapt over the course of the 10-year strategy in response to need, to ensure we reach the drug strategy goals.

We also published our new Suicide Prevention Strategy for England in September 2023, setting out the actions we will take to save lives and reduce suicides within the next few years, and have set out our intention in the strategy to write guidance for local areas to support them in aligning their own strategies with the national strategy. We have also established a £10 million Suicide Prevention Grant Fund to run from 2023 to March 2025, and on 4 March 2024 we announced the 79 organisations across the country that have been allocated funding. We have also launched a new nationwide, near real-time suspected suicide surveillance system, that will improve the early detection of, and timely action to, address changes in suicide rates or trends.