Asked by: Baroness Hayter of Kentish Town (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether it is their policy for the NHS to refer to "people who have ovaries" rather than "women" and whether this phraseology has been market tested with women, including those for whom English is a second language, to ensure that it is fully understood.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
It is not Government policy for the National Health Service to refer to ‘people who have ovaries’ and this phraseology has not been market tested. We have been clear that biological sex matters and it is important to use language that recognises the separate health and biological needs of men and women.
For all sex-specific conditions, we expect the language used to put biological sex, for example “women”, front and centre, with biologically-relevant information relating to specific organs or hormones secondary.
Asked by: Lord Swire (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what discussions they have had with local authorities about the financing of those in social care.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
Ministers and officials in the Department have regular conversations with representatives of local government, including the Local Government Association and the Association for Directors of Adult Social Services, regarding the costs of meeting the needs of adults who draw on care and support. The Department regularly engages with local authorities, who are responsible for assessing eligibility for financial assistance as set out in the Care Act, to understand the impact charging policy has on individuals who draw on care. The Department also regularly engages with individual local authorities to better understand their financial plans for commissioning and delivering adult social care.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she is taking steps to increase health literacy for services to support people at the end of life.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The National Health Service website and the NHS App are our main digital tools available to citizens, to support them in accessing services and making decisions about their health. Clinicians across the NHS also support patients’ health literacy by providing clear information, increasing patients’ knowledge, and sharing decision-making on their care.
Additionally, through the Voluntary Community Social Enterprise (VCSE) Health and Wellbeing Programme, the Department, NHS England, and the UK Health Security Agency work together with VCSE organisations to drive transformation of health and care systems, promote equality, address health inequalities, and help people, families, and communities to achieve and maintain wellbeing. The current projects include increasing health literacy through intersectional considerations at the end of life, digital inclusion, and barriers for those likely to be in the last year of life without a life-limiting diagnosis.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will take steps to ensure that best practice in palliative and end of life care is shared across the NHS.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Government recognises that access to high-quality palliative and end of life care can make all the difference to individuals and their loved ones. NHS England meets regularly with regional and system leaders, providing a forum for the sharing of best practice. In addition, there is a palliative and end of life care workspace available on the FutureNHS Collaborative Platform, which includes a range of resources, case studies, and discussion fora, with access to the platform available for anyone with a NHS.net email account.
NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling integrated care boards (ICBs) to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly, based on prevalence.
As of April 2024, NHS England is including palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. These meetings will provide an additional mechanism for supporting ICBs to continue improving palliative and end of life care for their local population.
The Ambitions Framework, refreshed by the National Palliative and End of Life Care Partnership, which is made up of NHS England and 34 partner organisations with experience of, and responsibility for, end of life care, sets out the vision to improve end of life care through partnership and collaborative action between organisations at local level throughout England, by setting out six key ambitions.
Furthermore, the National Institute for Health and Care Excellence (NICE) has published guidance and quality standards on end of life care for adults, and children and young people. These are based on best practice in developing and delivering care and, while not statutory, there is an expectation that commissioners and service providers take the guidelines into account when making decisions about how to best meet the needs of their local communities.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that integrated care boards have clear accountability over their funding decisions for (a) hospices and (b) palliative and end of life care services.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.
The Department and NHS England, alongside key partners, will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England, including its National Clinical Director, about the oversight and accountability of National Health Service palliative and end of life care commissioning.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population.
NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities. Additionally, the National Institute for Health and Care Research has established a new Policy Research Unit to build an evidence base on palliative and end of life care, with a specific focus on inequalities.
Asked by: Greg Knight (Conservative - East Yorkshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what progress she has made on increasing the number of medical student places; and whether she expects to meet the commitment to double the number of medical school places by 2031.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.
Asked by: Alistair Strathern (Labour - Mid Bedfordshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase the availability of treatment for glioma on the NHS.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.
Asked by: Alistair Strathern (Labour - Mid Bedfordshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether NHS England plans to provide dendric cell therapy for glioma.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.
Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, with reference to section 1.17 of the National Institute for Health and Care Excellence (NICE) guidelines entitled Myalgic encephalomyelitis (or encephalopathy) chronic fatigue syndrome: diagnosis and management, published on 29 October 2021, what steps her Department is taking to help ensure that hospital staff are aware of NICE guidelines for caring patients with very severe myalgic encephalomyelitis.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.
We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.
Asked by: Seema Malhotra (Labour (Co-op) - Feltham and Heston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 March 2024 to Question 16630 on Chronic Fatigue Syndrome, when she plans to publish the final myalgic encephalomyelitis delivery plan.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guideline, Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, published in October 2021, outlines the expectations for inpatient care for patients with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The guidance states that where possible, patients with ME should be provided with a single room, and that factors such as the level of lighting and sound should be taken into consideration, and necessary adjustments made.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services that meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
The Department is working with NHS England to develop an e-learning course on ME for healthcare professionals, with the aim of supporting staff in providing better care and improving patient outcomes. The Medical Schools Council will promote the NHS England e-learning package on ME to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME.
We have finished consulting on My Full Reality, the cross-Government interim delivery plan on ME, which seeks to improve the experiences and outcomes of people living with this condition. We are in the process of analysing the results of the consultation. The views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan being published later this year, in due course.