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Written Question
Chronic Fatigue Syndrome: Diagnosis
Friday 8th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps she has taken to ensure that the SNOMED CT classification system used by GPs in primary care is (a) adequate and (b) used consistently for diagnosing myalgic encephalomyelitis.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Systematized Nomenclature of Medicine - Clinical Terms (SNOMED CT) is the structured clinical vocabulary for use in an electronic health record. It is a contractual requirement for all National Health Service healthcare providers in England to use SNOMED CT for capturing clinical terms, including diagnoses, within electronic patient record systems.

Within SNOMED CT, all content for myalgic encephalomyelitis and chronic fatigue syndrome is contained within a single overarching code, with linked codes for mild, moderate, and severe forms. These can be used by all NHS healthcare providers, including general practitioners.

Updates to the United Kingdom’s edition of SNOMED CT are made by NHS England, with any user being able to submit requests for new or changed concepts and codes, via a central portal.


Written Question
Chronic Fatigue Syndrome: Long Covid
Friday 8th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what research the National Institute for Health and Care Research is undertaking on the potential link between Myalgic Encephalomyelitis and long covid.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Government has invested more than £50 million into 22 research projects for long COVID, through the National Institute for Health and Care Research (NIHR) and UK Research and Innovation.

In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on myalgic encephalomyelitis (ME) and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study called DecodeME, which is the world’s largest genetic study of the disease.

The Department commissions research through the NIHR. It is not currently specifically funding research on potential links between ME and long COVID, but it welcomes funding applications for research into any aspect of human health.


Written Question
Chronic Fatigue Syndrome: Research
Friday 8th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to fund research to (a) tackle the causes of and (b) treat Myalgic Encephalomyelitis.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including on the causes and treatment of myalgic encephalomyelitis (ME).

In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on ME and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study called DecodeME, which is the world’s largest genetic study of the disease.


Scottish Government Publication (Impact assessment)
Mental Health Directorate

Mar. 06 2024

Source Page: Scotland's Mental Health and Wellbeing Delivery Plan: Equality Impact Assessment
Document: Scotland’s Mental Health and Wellbeing Delivery Plan Equality Impact Assessment (PDF)

Found: childhood experiences, such as experiences of domestic abuse and sexual assault, homelessness or having a chronic


Departmental Publication (News and Communications)
Department of Health and Social Care

Feb. 14 2024

Source Page: Funding for game-changing tech which could destroy cancers and predict disease
Document: Funding for game-changing tech which could destroy cancers and predict disease (webpage)

Found: Lenus Health Ltd. is using artificial intelligence to predict patients at risk of hospitalisation for Chronic


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Feb. 14 2024

Source Page: Funding for game-changing tech which could destroy cancers and predict disease
Document: Funding for game-changing tech which could destroy cancers and predict disease (webpage)

Found: Lenus Health Ltd. is using artificial intelligence to predict patients at risk of hospitalisation for Chronic


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Feb. 09 2024

Source Page: MHRA approvals for Comirnaty (Pfizer/BioNTech) and Nuvaxovid (Novavax) COVID-19 vaccines
Document: product information. (PDF)

Found: quantitation; LS=least square; NT50 =50% neutralizing titre; SARS-CoV -2 = severe acute respiratory syndrome


Scottish Government Publication (FOI/EIR release)
Digital Directorate

Feb. 09 2024

Source Page: Data protection in the Scottish Government: FOI release
Document: FOI 202300362265 - information released - Annex C (PDF)

Found: Pattern • Carers Network • LGBTI Allies Network • LGBTI Network • Disabled Staff Network • ME - Chronic


Non-Departmental Publication (News and Communications)
Ofsted

Feb. 08 2024

Source Page: New visits to understand how well children with SEND are prepared for adulthood
Document: ‘SEND code of practice’ (PDF)

Found: and review for chil dren and young people with long- term co nditions and disabilities , for example chronic


Scottish Government Publication (FOI/EIR release)

Jan. 31 2024

Source Page: Progressive Stroke Pathway remit and purpose: FOI release
Document: FOI - 202200325717 - information released (PDF)

Found: Fatigue Fatigue is commonly reported following stroke and can impact on longer term recovery and well