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Written Question
Chronic Fatigue Syndrome
Monday 11th September 2017

Asked by: Daniel Kawczynski (Conservative - Shrewsbury and Atcham)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, how many patients received NHS treatment for myalgic encephalomyelitis in the last 12 months.

Answered by Steve Brine

Information on the exact number of patients receiving treatment for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is not collected. The National Institute for Health and Care Excellence (NICE) clinical guideline, ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children estimates that the annual prevalence is approximately 4,000 cases per million of the population.

The NICE clinical guideline set outs best practice for clinicians on the diagnosis, treatment, care and support of people with the condition and supports commissioners to to plan services for local populations. NICE routinely reviews its guidance to ensure it reflects the latest available evidence, including international evidence. In spring 2017, NICE reviewed the CFS/ME guideline to assess whether new research on CCFS/ME would impact on the current guideline recommendations. This included looking at new evidence concerning diagnostic criteria. Having assessed the evidence, NICE published its provisional recommendation not to update the NICE guideline for consultation on 10 July for a period of two weeks. NICE’s final recommendation is expected in October 2017.

In terms of training, the General Medical Council sets out the knowledge, skills and behaviours that new United Kingdom medical graduates must be able to demonstrate and Royal Medical Colleges, such as the Royal College of General Practitioners (RCGP) set the standards for postgraduate medical education in general practice. General practice is where most patients with CFS/ME are likely to be managed, and the condition is identified as a key area of clinical knowledge in the RCGP Applied Knowledge Test (AKT) content guide. The AKT is a summative assessment of the knowledge base that underpins general practice in the UK within the context of the National Health Service and is a key part of general practitioner’s (GPs) qualifying exams.

Once fully qualified, clinicians are responsible for ensuring their own clinical knowledge remains up-to-date and for identifying learning needs as part of their continuing professional development. This activity should include taking account of new research and developments in guidance, such as that produced by NICE.

The Department has made no assessment has been made of guidelines on CFS/ME published by health authorities in Canada and other countries.


Written Question
Chronic Fatigue Syndrome
Monday 11th September 2017

Asked by: Daniel Kawczynski (Conservative - Shrewsbury and Atcham)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what training is provided for doctors to help them treat patients with myalgic encephalomyelitis.

Answered by Steve Brine

Information on the exact number of patients receiving treatment for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is not collected. The National Institute for Health and Care Excellence (NICE) clinical guideline, ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children estimates that the annual prevalence is approximately 4,000 cases per million of the population.

The NICE clinical guideline set outs best practice for clinicians on the diagnosis, treatment, care and support of people with the condition and supports commissioners to to plan services for local populations. NICE routinely reviews its guidance to ensure it reflects the latest available evidence, including international evidence. In spring 2017, NICE reviewed the CFS/ME guideline to assess whether new research on CCFS/ME would impact on the current guideline recommendations. This included looking at new evidence concerning diagnostic criteria. Having assessed the evidence, NICE published its provisional recommendation not to update the NICE guideline for consultation on 10 July for a period of two weeks. NICE’s final recommendation is expected in October 2017.

In terms of training, the General Medical Council sets out the knowledge, skills and behaviours that new United Kingdom medical graduates must be able to demonstrate and Royal Medical Colleges, such as the Royal College of General Practitioners (RCGP) set the standards for postgraduate medical education in general practice. General practice is where most patients with CFS/ME are likely to be managed, and the condition is identified as a key area of clinical knowledge in the RCGP Applied Knowledge Test (AKT) content guide. The AKT is a summative assessment of the knowledge base that underpins general practice in the UK within the context of the National Health Service and is a key part of general practitioner’s (GPs) qualifying exams.

Once fully qualified, clinicians are responsible for ensuring their own clinical knowledge remains up-to-date and for identifying learning needs as part of their continuing professional development. This activity should include taking account of new research and developments in guidance, such as that produced by NICE.

The Department has made no assessment has been made of guidelines on CFS/ME published by health authorities in Canada and other countries.


Written Question
Chronic Fatigue Syndrome
Monday 11th September 2017

Asked by: Daniel Kawczynski (Conservative - Shrewsbury and Atcham)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what steps are being taken to improve definitions of myalgic encephalomyelitis for diagnosis.

Answered by Steve Brine

Information on the exact number of patients receiving treatment for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is not collected. The National Institute for Health and Care Excellence (NICE) clinical guideline, ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children estimates that the annual prevalence is approximately 4,000 cases per million of the population.

The NICE clinical guideline set outs best practice for clinicians on the diagnosis, treatment, care and support of people with the condition and supports commissioners to to plan services for local populations. NICE routinely reviews its guidance to ensure it reflects the latest available evidence, including international evidence. In spring 2017, NICE reviewed the CFS/ME guideline to assess whether new research on CCFS/ME would impact on the current guideline recommendations. This included looking at new evidence concerning diagnostic criteria. Having assessed the evidence, NICE published its provisional recommendation not to update the NICE guideline for consultation on 10 July for a period of two weeks. NICE’s final recommendation is expected in October 2017.

In terms of training, the General Medical Council sets out the knowledge, skills and behaviours that new United Kingdom medical graduates must be able to demonstrate and Royal Medical Colleges, such as the Royal College of General Practitioners (RCGP) set the standards for postgraduate medical education in general practice. General practice is where most patients with CFS/ME are likely to be managed, and the condition is identified as a key area of clinical knowledge in the RCGP Applied Knowledge Test (AKT) content guide. The AKT is a summative assessment of the knowledge base that underpins general practice in the UK within the context of the National Health Service and is a key part of general practitioner’s (GPs) qualifying exams.

Once fully qualified, clinicians are responsible for ensuring their own clinical knowledge remains up-to-date and for identifying learning needs as part of their continuing professional development. This activity should include taking account of new research and developments in guidance, such as that produced by NICE.

The Department has made no assessment has been made of guidelines on CFS/ME published by health authorities in Canada and other countries.


Written Question
Chronic Fatigue Syndrome
Thursday 5th February 2015

Asked by: Charlotte Leslie (Conservative - Bristol North West)

Question to the Department for Work and Pensions:

To ask the Secretary of State for Work and Pensions, what assessment he has made of the efficacy of ATOS's use of cognitive behavioural therapy for people suffering from Myalgic Encephalopathy and Chronic Fatigue Syndrome.

Answered by Mark Harper - Secretary of State for Transport

Atos have contracts with the Department to conduct assessments pertaining to different welfare benefits. Within these contracts, Atos do not use or conduct any form of therapy with any claimant and they do not refer claimants for any therapy.

DWP’s internal occupational Employee Assistance Programme provides the opportunity for face to face counselling with staff where it is appropriate. Some counselling practitioners may use CBT techniques in their sessions depending on the counsellor’s training and preferred therapy techniques. Employee occupational and health records are confidential and DWP has not carried out any analysis of the efficacy of the use of CBT for its employees. Our understanding is that the use of CBT is minimal and therefore any analysis would not be statistically significant.


Written Question

Question Link

Wednesday 14th May 2014

Asked by: Annette Brooke (Liberal Democrat - Mid Dorset and North Poole)

Question to the Department for Work and Pensions:

To ask the Secretary of State for Work and Pensions, what steps his Department is taking to ensure that specialist training on (a) ME or chronic fatigue syndrome and (b) other fluctuating conditions is given to healthcare professionals assessing claimants for the personal independence payment.

Answered by Mike Penning

The Department requires the health professionals carrying out Personal Independence Payment assessments to have a broad and thorough training in disability analysis, as well as training in specific conditions, including fluctuating conditions.Both organisations providing the assessment have to conform to a rigorous set of quality and recruitment standards which are closely monitored by the Department for Work and Pensions.


Written Question

Question Link

Monday 12th May 2014

Asked by: Annette Brooke (Liberal Democrat - Mid Dorset and North Poole)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, if he will bring forward proposals for regulations to ensure that ME and chronic fatigue syndrome are included in all pre- and post-registration training of (a) GPs and (b) other healthcare professionals.

Answered by Norman Lamb

In 2007, the National Institute for Health and Care Excellence (NICE) produced the clinical guidance, Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children. This guidance set out best practice on the diagnosis, treatment care and support of children and adults with CFS/ME. Information on CFS/ME diagnosis and treatment can also be accessed via the NHS Evidence and NICE Clinical Knowledge summaries websites.

The content and standard of healthcare professional training is the responsibility of regulators, such as the General Medical Council, which are independent statutory bodies. They have the general function of promoting high standards of education, working with the Royal Colleges, and co-ordinating all stages of education to ensure that students and newly qualified professionals are equipped with the knowledge, skills and attitudes essential for professional practice.

The Government has mandated Health Education England (HEE) to provide national leadership on education, training and workforce development in the National Health Service. HEE is responsible for ensuring that the future workforce has the right numbers, skills, values and behaviours to meet patients' needs today and tomorrow, and will work with stakeholders to influence training curricula as appropriate.


Written Question

Question Link

Monday 12th May 2014

Asked by: Annette Brooke (Liberal Democrat - Mid Dorset and North Poole)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what steps his Department plans to take to improve information and support for GPs regarding ME or chronic fatigue syndrome; and if he will take steps to improve access to specialist services for people with those conditions.

Answered by Norman Lamb

In 2007, the National Institute for Health and Care Excellence (NICE) produced the clinical guidance, Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children. This guidance set out best practice on the diagnosis, treatment care and support of children and adults with CFS/ME. Information on CFS/ME diagnosis and treatment can also be accessed via the NHS Evidence and NICE Clinical Knowledge summaries websites.

The content and standard of healthcare professional training is the responsibility of regulators, such as the General Medical Council, which are independent statutory bodies. They have the general function of promoting high standards of education, working with the Royal Colleges, and co-ordinating all stages of education to ensure that students and newly qualified professionals are equipped with the knowledge, skills and attitudes essential for professional practice.

The Government has mandated Health Education England (HEE) to provide national leadership on education, training and workforce development in the National Health Service. HEE is responsible for ensuring that the future workforce has the right numbers, skills, values and behaviours to meet patients' needs today and tomorrow, and will work with stakeholders to influence training curricula as appropriate.