Raises awareness of all types of muscular dystrophy and neuromuscular conditions and promotes links between parliament, individuals and families affected by these muscle-wasting conditions, charities, scientists, health professionals and decision-makers.
Muscular dystrophy and driving - GOV.UK
2. New partnership with Muscular Dystrophy UK to improve journeys for disabled road users
29/11/2018 - Department for Transport
- View source
New partnership with Muscular Dystrophy UK to improve journeys for disabled road
Found: Written evidence - Muscular Dystrophy UK Written evidence from Muscular Dystrophy UK (PEA0285) About
4. Early access to medicines scheme (EAMS) scientific opinion: Raxone to treat the decline of respiratory function in patients with Duchenne Muscular Dystrophy
24/06/2019 - Medicines and Healthcare products Regulatory Agency
- View source
Found: respiratory function in patients with Duchenne Muscular Dystrophy - GOV.UK
5. Issue Blue Badges, for degenerative disease, with open end date
01/07/2021 - Petitions
Found: Sclerosis, Parkinson’s, Motor Neurone Disease, Muscular Dystrophy to name just a few, to have no end date.
1. Disabled Facilities Grants (Review)
14/07/2020 - Commons Chamber
1: in the all-party parliamentary group for muscular dystrophy, which looks at the difficulties faced by - Speech Link
2. Pompe Disease
31/10/2017 - Commons Chamber
1: suffer from the disease receive support from Muscular Dystrophy UK—I put on the record my thanks to it for - Speech Link
2: disease. Like others, I have been contacted by Muscular Dystrophy UK, and rare diseases come up here often - Speech Link
3: is absolutely right to praise the work of Muscular Dystrophy UK. When I was a Back-Bench MP, I was a member - Speech Link
3. Rare Diseases Strategy
28/03/2017 - Westminster Hall
1: consideration. There are some 60 different types of muscular dystrophy, and 1,000 children and adults for every - Speech Link
2: range of different things—including that of Muscular Dystrophy UK. I hope hon. Members find that report - Speech Link
3: implementation. Muscular Dystrophy UK has said that it would have a major impact on drugs for muscular dystrophy - Speech Link
4. Spinal Muscular Atrophy
25/07/2019 - Commons Chamber
1: thought I had better stick to a script.Spinal muscular atrophy is a genetically inherited neuromuscular - Speech Link
2: families of SMA patients, Muscular Dystrophy UK, TreatSMA, Spinal Muscular Atrophy UK and many clinicians - Speech Link
3: outlined very movingly the symptoms of spinal muscular atrophy, which has been raised before in this - Speech Link
5. NICE Appraisals: Rare Diseases Treatments
21/03/2019 - Commons Chamber
1: needs of people with rare diseases such as muscular dystrophy, phenylketonuria and cystic fibrosis; and - Speech Link
2: the same problems. The all-party groups for muscular dystrophy and for cystic fibrosis are two that come - Speech Link
3: suffering from cystic fibrosis, but those with spinal muscular atrophy, Batten disease and PKU, to name but a - Speech Link
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Mary Glindon MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 3000.
Public Enquiry Point:
Michaela Regan, Muscular Dystrophy UK, 61A Great Suffolk Street, London SE1 0BU
Muscular Dystrophy UK acts as the group's secretariat. http://www.musculardystrophyuk.org/
No direct financial benefits are on record for the Muscular Dystrophy APPG