Mentions:
1: Baroness Thomas of Winchester (LDEM - Life peer) My Lords, I begin by declaring that I receive DLA and that I have Pompe disease, a very rare form of muscular - Speech Link
Mentions:
1: Paula Sherriff (LAB - Dewsbury) Kerry from Milton Keynes has a form of muscular dystrophy and her husband is her full-time carer. - Speech Link
Mentions:
1: Dan Carden (LAB - Liverpool, Walton) A report released this month by Muscular Dystrophy UK found that two in five respondents had been sent - Speech Link
Mentions:
1: Mary Glindon (LAB - North Tyneside) There is a risk that new treatments for life-limiting conditions, such as Duchenne muscular dystrophy - Speech Link
2: Steve Brine (CON - Winchester) NICE has recommended the drug Translarna for use in the treatment of Duchenne muscular dystrophy; it - Speech Link
Mentions:
1: Bob Blackman (CON - Harrow East) to see their work which, in essence, is with children suffering from life-limiting illnesses such as muscular - Speech Link
Mentions:
1: Baroness Thomas of Winchester (LDEM - Life peer) One of Muscular Dystrophy UK’s trailblazers said:“When I need someone at the last minute as an emergency - Speech Link
2: Baroness Brinton (LDEM - Life peer) We heard about trailblazers, and the fact that young people with muscular dystrophy are flying in help - Speech Link
Mentions:
1: Liz Twist (LAB - Blaydon) Friend agree that for those with long-term conditions, such as muscular dystrophy, the right level of - Speech Link
Mentions:
1: Baroness Wheeler (LAB - Life peer) impact that the winter crisis has on people with acute, long-term conditions and disabilities, such as muscular - Speech Link
Mentions:
1: David Linden (SNP - Glasgow East) As a result, they are put at risk of being sanctioned.Yesterday, Muscular Dystrophy UK shared with me - Speech Link
2: Marsha De Cordova (LAB - Battersea) A lady with muscular dystrophy was deemed ineligible for ESA after a WCA. - Speech Link
Mentions:
1: Lord Haworth (LAB - Life peer) In our extended family, my wife’s late brother-in-law endured myotonic dystrophy, a progressively wasting - Speech Link
2: Baroness Masham of Ilton (CB - Life peer) Also, many young people suffer long-term conditions such as cerebral palsy, muscular dystrophy and other - Speech Link