People with Disabilities: Access to Services

Baroness Browning Excerpts

Thursday 16th May 2024 Lords Chamber

[Baroness Browning (Con)]

My Lords, I congratulate the noble Baroness, Lady Hughes of Stretford, on bringing this important debate to the Floor of the House today. I declare my interests, both in the register and as having close relatives who are in receipt of disability benefits and for whom I have some responsibility.

Today, I will focus on disability benefits. I am of course aware of the current consultation on PIP, which I will respond to in writing, in respect of those on the autism spectrum with learning disabilities and with mental health issues. However, I want to put on the record my ongoing concerns about the process of claiming disability benefits, the ethos surrounding the system, and the impact this can have on people, many of them already vulnerable.

These are some of the problems they face. There are lengthy forms, exceeding 20 or 30 pages, which put many people off applying in the first place. Many need help to fill them in, and there are often time limits, so finding that help becomes a pressure. Then there is the ability of the DWP to have applications assessed by qualified people with a working knowledge of the medical conditions they are assessing. It is dire. Do not take my word for it: as we have heard, the appeal rate for PIP is 70%—that is 70% granted on appeal. Only last year, a form that I assisted with was rejected. We asked for reconsideration, and when it came back, having been reconsidered, it had been awarded at an enhanced rate. What the person who looked at it in the first place was thinking about, I really do not know.

The questions are geared mainly to narrowly defined physical conditions, with each question scoring points, leaving out the complexities of autism, mental health and learning disabilities and giving few opportunities for people to explain in any detail how their lives are affected. They lose on points. This arbitrary points system is not flexible to take account of fluctuating conditions, good days and bad days, or degeneration. Complex conditions involving more than one disability do not stand a chance.

Despite paper forms, there is a presumption that applicants will then communicate via the internet or phone. Some will, but not everybody. I know several people on the autism spectrum for whom making a phone call to a stranger, or receiving one, is quite traumatic. There are long waiting periods, often without any money at all, and there is a problem with answering letters, even signed-for ones. We have heard that even children and young people starting cancer treatment can wait in excess of 20 weeks without any money at all.

All this builds anxiety and stress. It should be remembered that this is disability, not capability for work. PIP, for example, is a benefit that applies to people who are in work as well as those who are not. We are talking about disability, but somehow the debate seems to have moved to whether people are capable for work. I do not know quite where that has come from.

It is a given that many unemployed disabled people would like to work, and I support any initiative that supports that, but disability brings with it myriad extra costs, even for people who are working, and this whole process brings such a level of anxiety and distress. It is time the whole process was reformed. In doing so, the DWP should be as concerned about safeguarding the health—particularly the mental health—of claimants as it is about assessing them. I say that because even the very process of engaging in the benefits system can result in extreme outcomes.

I pay tribute to a former colleague of ours in this House, Lord Newton, Tony Newton, who was also a colleague in mine in another place. He got up out of his hospital bed to come here and speak on this subject. I also pay tribute to the much-missed late Lord Field, Frank Field, whom again I served with in both Houses. He was a champion in this area. On 25 September 2019, he tabled this Written Question in the House of Commons:

“To ask the Secretary of State for Work and Pensions, how many inquests relating to benefits claimants who have ended their life by suicide her Department has submitted evidence to since 2013; and in how many inquests it was ruled that the policies of her Department were partly responsible for the deceased person’s state of mind”.


Noble Lords will be familiar with the reply from the Department for Work and Pensions:

“Unfortunately, the information requested is not held centrally and is therefore unavailable without incurring a disproportionate cost”.


Frank—being Frank—then approached the National Audit Office and asked it to investigate what was going on with the suicide rate among benefit claimants.

As a result of a report by the Comptroller and Auditor-General, some progress was made at the DWP. I reassure my noble friend that I am aware that it has made progress, but the point is this: in what other area of disability would anybody or any department—least of all a government department—have to collate information about suicide rates that resulted from their own activities? That surely is unacceptable and I say to my noble friend: I know that the Government want to modernise the benefits system for disability, but it requires absolute root and branch reform.

Health and Disability Reform

Baroness Browning Excerpts

Wednesday 1st May 2024 Lords Chamber

[Baroness Browning (Con)]

My Lords, I declare an interest as I have for decades been the person who has supported two near relatives in receipt of PIP. In fact, I spent two hours on Sunday night helping to fill in a PIP review form—26 pages—for a PIP application that was refused in the first place and given at an enhanced rate on appeal. My noble friend will recognise from this that there is a lot already wrong with PIP and the way questions are asked and formulated.

I am particularly concerned about autism-related anxiety. It is not the same as people who just have the slings and arrows of outrageous fortune to cope with, which we all do. The brains of people with autism are wired differently. The things that make them anxious can very easily lead to a downward spiral that can result in suicide. I say to my noble friend—I know we are limited on time—that when it comes to the worried well, I put my hand up, because every day of my life now I wonder who on earth is going to help with those forms and applications when I am no longer here. It is a nightmare.

Employment and Support Allowance

Baroness Browning Excerpts

Wednesday 18th October 2023 Lords Chamber

[Viscount Younger of Leckie (Con)]

I should remind the noble Baroness that we uprated by 10.1% in 2023, and I take her point. I can reassure her that the process leading up to April 2024 is beginning; I have no doubt that the Secretary of State will be looking very carefully at all the evidence, and announcements will be made at the appropriate time.

[Baroness Browning (Con)]

My Lords, I declare a long-standing family interest in ESA, particularly in the support group. I venture to offer my noble friend some advice, as I could write not just a book, but a series of books on applications to ESA. The Government need to make sure that they employ people who fully understand the medical conditions they are dealing with. To give a quick example, it is no good having so-called doctors asking people who suffer from epilepsy and epileptic seizures whether they can get in and out of a bath. When the reply comes, “As someone with epilepsy, I am advised not to get into a bath of water”—for obvious reasons—the reply comes back, “Just pretend you don’t have epilepsy. Could you get in and out of a bath or not?” It is not just a joke—it is tragic, because it causes the most appalling problems for many disabled people.

[Noble Lords]

Hear, hear.

Universal Credit

Baroness Browning Excerpts

Tuesday 18th April 2023 Lords Chamber

[Viscount Younger of Leckie (Con)]

The very fact that we have been rolling out a universal credit system over the last few years since 2013 comes to the essence of what we have been trying to do, which is to simplify the system. The noble Baroness makes a very good point about putting children first, as I said previously. One example of that is what we have done with free school meals.

[Baroness Browning (Con)]

My Lords, I declare a family interest in this Question. Over the next two years, people with long-term disabilities who currently receive employment and support allowance will be moved to universal credit, and there is already an acknowledgement that there will be some differences in the amount of money they will receive. What analysis has my noble friend the Minister and his department done to check whether that particular group—people with long-term, life-long disabilities—will not become part of the group we are discussing today, who cannot afford essentials?

[Viscount Younger of Leckie (Con)]

My noble friend makes an excellent point, because, apart from the fact that we spent around £67.9 billion last year on benefits to support disabled people and people with health conditions, we are doing more, as the Spring Budget said, to help those who are disabled, and particularly those who wish to go into work.

Universal Credit (Transitional Provisions) (Claimants previously entitled to a severe disability premium) Amendment Regulations 2021

Baroness Browning Excerpts

Thursday 11th February 2021 Lords Chamber

[Baroness Browning (Con) [V]]

My Lords, it is a great pleasure to follow the noble Baroness and to hear from her first-hand experience.

The severe disability benefit, as we have heard, awarded to people with existing disability benefits such as ESA and PIP, is by definition for the most complex disabilities, including physical and learning disabilities, autism, mental health challenges and, as we have heard, for people who are terminally ill. The excellent Motion of the noble Baroness, Lady Sherlock, states that when moving to universal credit claimants should be,

“advised before moving from legacy benefits … that they could suffer financially”.

This is perhaps, in many cases, one of the groups who find it most difficult to obtain advice. For many, access to, or even ability to use, IT will be a challenge in itself when the benefit system is becoming almost exclusively an IT facility.

The Secondary Legislation Scrutiny Committee of this House examined the Explanatory Memorandum and discovered that it did not make clear that transitional payments would erode over time. The Government responded to that point and revised it to include further information at the request of the committee. However, if it takes a scrutiny committee of the House of Lords to identify that people are going to be worse off under a system, what hope is there for many people outside this House who do not have that expertise, knowledge or understanding? There is a responsibility on the Government to be absolutely transparent and make sure that before people make the move to universal credit, which, as has been said, is a one-way system—there is no going back, once people are in it—they do not erroneously put themselves at a financial disadvantage.

I know that my noble friend the Minister understands these things. She, of all people, with her experience of work before she came into the Lords, understands only too well how disadvantaged people live. I have a high regard and respect for that knowledge and I am glad that she is there to bring it to her department.

I mention one thing in passing and I hope that noble Lords will not think that it is too sexist. This debate has predominantly been contributed to by women. I sometimes wonder whether that is because it is women who take the responsibility in the family for the benefits of relatives and dependants. Maybe that is why women have a more instinctive understanding—I have no doubt that people will complain about this—of the real impact of these issues on day-to-day lives.

A lot of the disability groups have made their case about the financial impact this will have, including Disability Rights UK, among others. Disability Rights UK has made very strong statements, which I am sure the Government are aware of. But on the question of managed migration, my experience is that this group, who are the most severely disadvantaged because of the level of their disability, have been subject to all sorts of changes and disadvantages. But we have not had this spelt out in debate in either House.

My noble friend will know that last year, after 30 years of experience in Parliament of personally dealing with casework—I cannot imagine how many I have dealt with—I actually struggled to engage with the Government’s website to apply for ESA for a young woman in a very difficult situation with an advancing degenerative disease. In order to apply for ESA, the computer made me keep going to universal credit. This woman was married to a man in receipt of the support level of ESA, and the only way the computer would allow me to apply for even universal credit for her was if that man agreed to forfeit the right to his ESA. I know my noble friend has taken this up, and I hope she has made some progress with it. But this is what people are facing. They deserve a lot better than this.