Welfare Reform Bill

Debate between Countess of Mar and Lord Addington

Monday 14th November 2011 Grand Committee

[The Countess of Mar]

My Lords, I, too, support these amendments. I think particularly of people with fluctuating conditions which eventually become so bad that they are housebound, bedridden and almost unable to get out, and of the 25 per cent of people suffering from ME who are in this state. I should say that I am the chairman of Forward-ME. Every day I get letters from people who are terrified of what is going to happen when the PIP is brought in. However, I am grateful to the Minister and to the Deputy Chief Medical Officer at the Department for Work and Pensions for specifically asking for people with ME to be part of the pilot programme for the PIP. But the feedback I am getting is that the people who are examining them have no understanding at all of their illness. We are talking about a personal independence payment, which is the idea the examiners have in their mind, against a disability payment. However, these are severely disabled people—we have heard some very moving speeches from my noble friends and from the noble Baroness, Lady Wilkins—who cannot even get out of their houses. They must have help with their laundry, cleaning and shopping—with everything. To call it a personal independence payment does not help them, I fear, so I strongly support this amendment.

[Lord Addington]

My Lords, I apologise that this is the first time I have spoken on the Bill. Something is occurring here which I have been aware of ever since the Government, of which I am a supporter, came to power. It is a fact that people are worried about what is going on when reading some of the language being used. Much of this anxiety is caused by things like getting rid of regulations, although I suspect that many of them were useless. The disability movement has in effect had a defence in depth of regulation. We have stuck extra regulations on which have given us a sense of security. I must remind the Committee that I am a dyslexic and therefore a disabled person, but not one who I think would be covered under the regulations here. That provides another example of how complicated the world is that we are stepping into. No two people who have spoken in the debate have the same problems.

In effect, the challenge the Minister faces today is to start to calm down these fears. If PIP is going to come in, what is required is a huge campaign to explain what it actually means. On reading the Bill, I do not think we have much to worry about, but the fear that there might be something there that does huge damage. Underclaiming is historically the biggest problem in this area. It means that we end up with on-costs in health, for instance, because people do not claim the right benefits. It is something that has had to be dealt with for a long time. If the Minister can start the process of dialogue, he will be doing himself a favour.

Would changing the words do anything? I suspect not, even if it made us feel better. I suspect that many of the problems we have in this area exist because we have done one or two too many things in Parliament, and, as I have said on other occasions, I take my share of the blame for that. But giving clarification of what is actually going on will help, and this would be a good place to start that process.