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Speech in Commons Chamber - Thu 24 Jan 2019
Appropriate ME Treatment

"I thank all Members who have stayed behind once again on a Thursday afternoon, particularly the Members who sponsored the debate, and especially the right hon. Member for Loughborough (Nicky Morgan) and the hon. Member for Ceredigion (Ben Lake). I also thank the ME community for their lobbying and presence …..."
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Speech in Commons Chamber - Mon 25 Jun 2018
Childhood Obesity Strategy: Chapter 2

"This is a ticking time bomb that needs to be dealt with properly. We know that children from deprived backgrounds are twice as likely to suffer from obesity, so I first want to ask the Minister how this ties in with his plans to tackle poverty. The Scottish Government’s ambition …..."
Carol Monaghan - View Speech

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I beg to move,

That this House has considered myalgic encephalomyelitis treatment and research.

It is a pleasure to serve under your chairmanship, Mr Rosindell. I thank the Backbench Business Committee for giving Members the opportunity to hold this debate.

It is estimated that around a quarter of a million …..."

Carol Monaghan - View Speech

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I agree entirely with the hon. Gentleman. It is a tragic situation when children are not able to attend school and social services become involved because they consider there to be a problem with those children’s care...."
Carol Monaghan - View Speech

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I will come on to interactions with the Department for Work and Pensions. ME patients report that energy levels vary. Sometimes, going to such an appointment can wipe out someone for many weeks afterwards. If that person were to attend the appointment the following day, their condition would be very …..."
Carol Monaghan - View Speech

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"ME receives practically no biomedical research funding, which I will come back to. Because of the misunderstanding of the condition, the treatments available are often more damaging to the person than no treatment at all.

Merryn Crofts was just 15 when she experienced hives and swelling in her joints after …..."

Carol Monaghan - View Speech

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I will come on to the NICE guidelines. They are under review, and all politicians can help with that. I have already written to NICE about the issue and I will ask the Minister about that later.

We now know that 13% of the participants in the PACE trial qualified …..."

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"Indeed. Many people have written to me about their experience of GET, but some of the most upsetting examples are of children who were forced through a programme of GET and ended up with life-changing disabilities as a result...."
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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I thank the hon. Lady for her intervention. Merryn’s is not an isolated case, and neither are those of my constituents—I am sure that Members present have all heard constituents describe the same situation.

The PACE trial, which recommended CBT and GET, influences how health insurers and the DWP make …..."

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Speech in Westminster Hall - Thu 21 Jun 2018
ME: Treatment and Research

"I thank the hon. Gentleman for his intervention. Worryingly, the WHO is looking at reclassifying ME, too—we should all be aware of that—and its current classification of ME as a neurological condition has been ignored in terms of the treatment we have offered to patients here in the UK.

The …..."

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