Asked by: John McNally (Scottish National Party - Falkirk)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, what assessment he has made of the adequacy of the provision of specialist respiratory care for people with muscle-wasting conditions; and if he will make a statement.
Answered by Jane Ellison
With regards to the National Health Service in Scotland, as healthcare is a devolved issue, the Department cannot comment.
NHS England commissions specialised neurological services at a national level, including those with muscle-wasting conditions. The neurosciences service specification sets out what designated specialised providers must have in place to offer evidence-based, safe and effective care. Patients should have access to a multidisciplinary team (MDT) to assess, diagnose and provide support. The MDT will include neuromuscular consultants, neuromuscular physiotherapists, psychologists, specialist nurses, occupational therapists, speech and language therapists and other health professionals.
The specification further sets out that neuromuscular clinics need to identify those at risk of respiratory problems and refer for specialist respiratory assessment and monitoring.
The specification can be found at the following link:
www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf
A separate specification covers services for children.
www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf