Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he plans to review the medical model of autism support in favour of strength-based, neuro-affirmative approaches.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Government is committed to creating a more inclusive society where autistic people are supported to thrive. We value the unique strengths and skills that autistic people can bring to education, employment, and communities, and there is relevant work on inclusion ongoing in multiple Government departments.
For the National Health Service, our focus is to make sure the NHS is providing the right support to the right people at the right time. For people with suspected or diagnosed autism, the optimal approach is often to identify and meet needs early in life, and support and empower individuals, which need not always be reliant on a clinical diagnosis. The 10-Year Health Plan sets out the core principle of early intervention and support, without the need for diagnosis, including for children and young people.
It is the responsibility of integrated care boards to make available appropriate provision to meet the health and care needs of their local population, including autism assessments and support, in line with relevant National Institute for Health and Care Excellence (NICE) guidelines. The NICE guidelines on autism cover the different ways that health and care professionals can provide support for autistic people and aim to improve access and engagement with interventions and services.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure adult (a) diagnostic and (b) post-diagnostic pathways for autism are (i) available and (ii) accessible in Manchester.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Government has recognised that, nationally, demand for assessments for autism has grown significantly in recent years, and that people are experiencing severe delays for accessing such assessments. The Government’s 10-Year Health Plan will make the National Health Service fit for the future, including early intervention and support without the need for diagnosis.
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including provision of autism services, in line with relevant National Institute for Health and Care Excellence guidelines.
On 5 April 2023, NHS England published a national framework and operational guidance to help ICBs and the National Health Service to deliver improved outcomes for people referred to an autism assessment service. The guidance also sets out what support should be available before an assessment and following a recent diagnosis of autism. Since publication, NHS England has been supporting systems and services to identify where there are challenges for implementation and how they might overcome these.
The Government is also supporting inclusive environments and earlier intervention for children through the Early Language Support for Every Child and the Partnerships for Inclusion of Neurodiversity in Schools programmes.
The NHS Greater Manchester ICB, shaped by engagement with over 15,000 people, has developed a new model of care to improve the outcomes of children and young people with neurodiverse needs. The model supports:
- local neurodevelopmental hubs to provide a single point of access for help, each with specialist teams to provide tailored support for individuals and families;
- triage and prioritisation, where children who are most vulnerable and in need of support are seen first; and
- standardising core services across Greater Manchester to reduce regional inequalities.
The NHS Greater Manchester ICB has also prioritised alignment with the adoption of the GM Children and Young People and Adult Autism Standards for all commissioned services, with further information available at the following link:
https://autismgm.org.uk/resources/gm-autism-post-diagnosis-standards/
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to reduce waiting times for autism (a) diagnosis and (b) support for (i) adults and (ii) children in Manchester Rusholme constituency.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Government has recognised that, nationally, demand for assessments for autism has grown significantly in recent years, and that people are experiencing severe delays for accessing such assessments. The Government’s 10-Year Health Plan will make the National Health Service fit for the future, including early intervention and support without the need for diagnosis.
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including provision of autism services, in line with relevant National Institute for Health and Care Excellence guidelines.
On 5 April 2023, NHS England published a national framework and operational guidance to help ICBs and the National Health Service to deliver improved outcomes for people referred to an autism assessment service. The guidance also sets out what support should be available before an assessment and following a recent diagnosis of autism. Since publication, NHS England has been supporting systems and services to identify where there are challenges for implementation and how they might overcome these.
The Government is also supporting inclusive environments and earlier intervention for children through the Early Language Support for Every Child and the Partnerships for Inclusion of Neurodiversity in Schools programmes.
The NHS Greater Manchester ICB, shaped by engagement with over 15,000 people, has developed a new model of care to improve the outcomes of children and young people with neurodiverse needs. The model supports:
- local neurodevelopmental hubs to provide a single point of access for help, each with specialist teams to provide tailored support for individuals and families;
- triage and prioritisation, where children who are most vulnerable and in need of support are seen first; and
- standardising core services across Greater Manchester to reduce regional inequalities.
The NHS Greater Manchester ICB has also prioritised alignment with the adoption of the GM Children and Young People and Adult Autism Standards for all commissioned services, with further information available at the following link:
https://autismgm.org.uk/resources/gm-autism-post-diagnosis-standards/
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure access to new medicines for patients with chronic obstructive pulmonary disease in England.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effective use of resources. NICE aims, wherever possible, to issue recommendations on new medicines close to the time of licensing. The NHS in England is legally required to fund medicines recommended by NICE, normally within three months of the publication of final guidance.
NICE is currently evaluating dupilumab for treating moderate to severe chronic obstructive pulmonary disease and itepekimab as an add-on maintenance treatment for moderate to severe chronic obstructive pulmonary disease.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of family hubs playing on (a) neighbourhood health and (b) the delivery of integrated community-based health services.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The 10-Year Health Plan outlined proposals for a new Neighbourhood Health Service, which embodies our preventative principle, that care should happen as locally as it can. Neighbourhood health services will build on, and will coordinate with Best Start Family Hubs and Start for Life services to continue to integrate children’s services, National Health Services, and public health.
The Neighbourhood Health Service will mean that millions of patients are treated and cared for closer to their home by new teams of health professionals, providing easier, more convenient access to a full range of healthcare services on people’s doorsteps.
The impact of Family Hubs and Start for Life services will take time to be realised. The current Family Hubs and Start for Life programme is subject to two national, independent evaluations to understand its implementation and impact.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to identify (a) undiagnosed patients with chronic obstructive pulmonary disease (COPD), and (b) COPD patients who are managed in primary care that should have their management escalated to specialist care in Greater Manchester ICB.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Respiratory disease, including chronic obstructive pulmonary disease (COPD) is a clinical priority and the National Health Service is investing in the provision of more and better rehabilitation services for respiratory patients. This has the objective of improving outcomes for people with COPD through early diagnosis including via spirometry tests, and through increased access to treatments.
The NHS RightCare COPD pathway has been rolled out nationally and defines the optimal service for people with COPD. Furthermore, the National Respiratory Audit Programme aims to improve quality of care, services, and clinical outcomes for patients with asthma and COPD, by collecting and providing data on a range of indicators and pulmonary rehabilitation activity.
A national programme of work is underway to support systems with improving access to Pulmonary Rehabilitation for the eligible population; increase capacity of provision to reduce waiting lists; and improve the quality and consistency of rehabilitation programmes through accreditation. Pulmonary rehabilitation is effective for people with COPD, improving exercise capacity or increased quality of life in 90% of patients who complete a programme.
Within NHS Greater Manchester, action being taken to address COPD includes:
- improving equity of access to diagnostic spirometry and fractional exhaled nitric oxide, particularly for disadvantaged population groups;
- increasing capacity and reducing waiting times for pulmonary rehabilitation services;
- increasing vaccination uptake and focusing on secondary prevention of pneumonia;
- running smoking cessation services; and
- introducing a respiratory standard to improve quality in general practice in managing COPD.
This standard utilises a tool to identify patients with COPD who are at the highest risk and asks practices to do an enhanced review and management of these patients to help manage their COPD better.
Data on the average time to diagnosis of COPD following patient contact with their general practitioner (GP) is not available. COPD diagnosis typically involves a spirometry test, and data related to such tests may be available at the level of individual GP practices and secondary care providers but is not yet routinely collected in national datasets or in Greater Manchester Integrated Care Board. Furthermore, the test is also used in the diagnosis of other respiratory conditions, not just COPD.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what the average time is for a patient to receive a diagnosis of chronic obstructive pulmonary disease (COPD) following initial contact with their GP for respiratory illness symptoms in (a) Greater Manchester ICB and (b) England in weeks.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Respiratory disease, including chronic obstructive pulmonary disease (COPD) is a clinical priority and the National Health Service is investing in the provision of more and better rehabilitation services for respiratory patients. This has the objective of improving outcomes for people with COPD through early diagnosis including via spirometry tests, and through increased access to treatments.
The NHS RightCare COPD pathway has been rolled out nationally and defines the optimal service for people with COPD. Furthermore, the National Respiratory Audit Programme aims to improve quality of care, services, and clinical outcomes for patients with asthma and COPD, by collecting and providing data on a range of indicators and pulmonary rehabilitation activity.
A national programme of work is underway to support systems with improving access to Pulmonary Rehabilitation for the eligible population; increase capacity of provision to reduce waiting lists; and improve the quality and consistency of rehabilitation programmes through accreditation. Pulmonary rehabilitation is effective for people with COPD, improving exercise capacity or increased quality of life in 90% of patients who complete a programme.
Within NHS Greater Manchester, action being taken to address COPD includes:
- improving equity of access to diagnostic spirometry and fractional exhaled nitric oxide, particularly for disadvantaged population groups;
- increasing capacity and reducing waiting times for pulmonary rehabilitation services;
- increasing vaccination uptake and focusing on secondary prevention of pneumonia;
- running smoking cessation services; and
- introducing a respiratory standard to improve quality in general practice in managing COPD.
This standard utilises a tool to identify patients with COPD who are at the highest risk and asks practices to do an enhanced review and management of these patients to help manage their COPD better.
Data on the average time to diagnosis of COPD following patient contact with their general practitioner (GP) is not available. COPD diagnosis typically involves a spirometry test, and data related to such tests may be available at the level of individual GP practices and secondary care providers but is not yet routinely collected in national datasets or in Greater Manchester Integrated Care Board. Furthermore, the test is also used in the diagnosis of other respiratory conditions, not just COPD.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential implications for his policies of the report entitled The ADHD crisis in the UK – A Call to Action by ADHD360, published in January 2025.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Department is aware of the report, and officials will consider its findings, alongside wider evidence, in future policy development.
NHS England has established an attention deficit hyperactivity disorder (ADHD) taskforce which is working to bring together those with lived experience with experts from the National Health Service, education, charity and justice sectors to get a better understanding of the challenges affecting those with ADHD, including timely and equitable access to services and support, with the report expected in the summer.
For the first time, NHS England will publish management information on ADHD prevalence and waits at a national level on 29 May 2025 as part of its ADHD data improvement plan; it will soon release technical guidance to integrated care boards (ICBs) to improve recording of ADHD data, with a view to improving the quality of ADHD waits data. NHS England has also captured examples from ICBs who are trialling innovative ways of delivering ADHD services and is using this information to support systems to tackle ADHD waiting lists and provide support to address people’s needs.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he plans to take to reduce waiting times for ADHD diagnoses.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
It is the responsibility of the integrated care boards (ICBs) in England to make appropriate provision to meet the health and care needs of their local population, including attention deficit hyperactivity disorder (ADHD) assessments, in line with relevant National Institute for Health and Care Excellence guidelines.
NHS England has established an ADHD taskforce which is working to bring together those with lived experience with experts from the National Health Service, education, charity, and justice sectors to get a better understanding of the challenges affecting those with ADHD, including timely and equitable access to services and support, with the report expected in the summer.
For the first time, NHS England will publish management information on ADHD prevalence and waits at a national level on 29 May 2025, as part of its ADHD data improvement plan, and will soon release technical guidance to ICBs to improve the recording of ADHD data, with a view to improving the quality of ADHD waits data. NHS England has also captured examples from ICBs who are trialling innovative ways of delivering ADHD services, and is using this information to support systems to tackle ADHD waiting lists and to provide support to address people’s needs.
Asked by: Afzal Khan (Labour - Manchester Rusholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential merits of increasing funding for ADHD services.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The ongoing Spending Review, which will be announced at my Rt. Hon. Friend, the Chancellor of the Exchequer’s Budget on 11 June, will set budgets for all areas of health.