Orkambi and Cystic Fibrosis

Alan Mak Excerpts

Monday 19th March 2018 Westminster Hall

[Alan Mak (Havant) (Con)]

My constituency, and that of my right hon. Friend the Member for Portsmouth North (Penny Mordaunt), were among the top three constituencies for people signing the petition. Will my hon. Friend join me in calling on the Minister to get Vertex, the NHS and NICE to continue their negotiations, because time is of the essence?

[Paul Scully]

My hon. Friend is absolutely right. It is important, because every day counts for people who have the condition. I said that cystic fibrosis cannot be caught, but neither can it be cured. The people who have cystic fibrosis now will be the same people who have it for the rest of their lives, which basically means that the supply of Orkambi would have a fixed price. We know pretty well, within a margin, how much we would spend on this lifelong treatment.

The current evaluation process turns on an incremental cost-efficiency ratio, which is the total additional lifetime cost of a treatment divided by the additional quality-adjusted life years resulting from that treatment. For acute conditions, the additional quality-adjusted life years resulting from the shorter-term treatments moderate the efficiency ratio, even if the drug is expensive. However, because drugs for chronic and lifelong conditions have to be taken every day for life, the cost of the treatment prevents that downward moderation. Basically, it is easier, under the NICE appraisal system, for medicines for acute conditions to attain a more favourable cost-effectiveness outcome than for innovative medications for chronic conditions, like Orkambi. It is basically a one-size system.

We then have to take into account section 13G of the National Health Service Act 2006, as amended by the Health and Social Care Act 2012, which requires NHS England to have regard to the need to reduce inequalities in health outcomes. Those two imbalances in the system need to be looked at if we are to have a system that is far fairer for people with illnesses such as cystic fibrosis.

Oral Answers to Questions

Alan Mak Excerpts

Tuesday 20th December 2016 Commons Chamber

[Mr Speaker]

We now feel considerably better informed.

[Mr Alan Mak (Havant) (Con)]

Advertising agencies and industry bodies can play a key role in ensuring that adverts are appropriate. Will the Minister continue working with the industry to tackle child obesity?

[Nicola Blackwood]

Yes.

CQC: NHS Deaths Review

Alan Mak Excerpts

Tuesday 13th December 2016 Commons Chamber

[Mr Hunt]

NICE has published its staffing levels for wards. I recognise the problem, and it is exactly what we were dealing with in the Francis report. We now have 10,000 more full-time nurses on our hospital wards than we had three years ago. We are making significant progress, but there is still huge pressure on hospital wards. We have developed a new methodology that more accurately makes sure that patients get the care that they need, whether it is from a nurse, a healthcare assistant or whoever else in the hospital. I am happy to write to the hon. Lady and tell her what that guidance is.

[Mr Alan Mak (Havant) (Con)]

I thank the Secretary of State for his statement. The families of those who died in the care of Southern Health in Hampshire have played a vital role in campaigning for transparency and improvements, and they include the family of David Hinks from Havant. Will the Secretary of State join me in commending the families for their work in the most distressing of circumstances?

[Mr Hunt]

I absolutely do so. I know that the family of David Hinks have campaigned very strongly on this matter. The key point about families is that they are often the people who know best what happened to individuals when something went wrong, because they saw the care at every single stage. Whether the care took place in a care home, hospital or a GP surgery, families are likely to have seen the whole thing, and can really help us to understand what might have gone wrong. They are therefore a positive force in this process.

Southern Health NHS Foundation Trust

Alan Mak Excerpts

Wednesday 8th June 2016 Westminster Hall

[Mr Alan Mak (Havant) (Con)]

It is a pleasure to serve under your chairmanship, Mr Hanson. I congratulate my hon. Friend the Member for Fareham (Suella Fernandes) on securing this important debate, and I join her in paying tribute to the families, friends and campaigners who have followed this cause since the very beginning of the tragic chronology that she outlined. My right hon. Friend the Member for New Forest East (Dr Lewis) has just given a very eloquent speech. I propose to take the House through a short episode involving a constituent of mine, David Hinks.

However, I should start by noting that the issue is of cross-party interest—the right hon. Member for Oxford East (Mr Smith) is here—and that it crosses the geographic boundaries of Hampshire and Oxfordshire, and other areas covered by Southern Health’s geographic remit. I pay tribute to the Minister for taking the issue so seriously and look forward to welcoming him to Havant tomorrow to talk about mental health issues. I know that he takes the issue seriously, and I look forward to his response.

David Hinks was 30 years old, and he lived in Bedhampton in Havant. He worked as a ticket inspector for South West Trains, and he had a history of mental illness, which included no fewer than five suicide attempts. However, despite that mental health history, he was never admitted to a psychiatric ward. He was offered only antidepressants and group therapy sessions, which fell well short of the treatment and support that he needed. In 2015, he was arrested by the police on suspicion of assaulting his wife. However, despite that quite drastic step, Southern Health again took no immediate action, and sent someone round to his house to check on him in December 2015 a few days after he had committed suicide.

That is just one of the many tragic cases presided over by Southern Health in recent years. My hon. Friend the Member for Fareham has recounted many others. There has been great public interest in the issue in the Havant constituency, particularly around the time of the Mazars report and the recommendations for action by the CQC. I call on the Minister to do all he can to ask NHS Improvement to recommend improvements in the procedures of Southern Health—particularly in relation to risk reporting procedures, staff training and safeguarding procedures. All MPs have among their constituents some of the most vulnerable members of society, and we rely on institutions such as Southern Health to take good care of them in their time of need. I hope that David Hinks’s death will not have been in vain. Improvements must come and lessons must be learned. I know that the Minister will take Mr Hinks’s case as seriously as the others that he has heard about.

I join others in welcoming Tim Smart as the new interim chair of Southern Health, and I thank him for his engagement, as I do Katrina Percy, who is based in my constituency. The issue is one of substantial public concern throughout the area covered by Southern Health. I hope that the debate will be a catalyst for those who are working hard to change the culture and improve the service, and I look forward to further reports to the House.

Oral Answers to Questions

Alan Mak Excerpts

Tuesday 10th May 2016 Commons Chamber

[The Minister for Community and Social Care (Alistair Burt)]

I thank the hon. Lady for her question and for her support for me in the recent London marathon. With reference to her question, it is precisely for the reasons she gives that it is so important for us to make sure that CCGs do transfer the extra money that is available for mental health into mental health services. That is why there will be more transparency and a scorecard for CCGs. She is absolutely correct—it is essential that that money flows through and we are determined to ensure that. Yesterday’s report only shows how right our current actions are to make sure that that happens.

[Mr Alan Mak (Havant) (Con)]

T3. The Havant Men’s Shed movement has created community workspaces across my constituency, helping to boost mental health and wellbeing, especially for older residents. Will the Minister join me in congratulating the movement on its work and come to Havant to open its new building?

[Alistair Burt]

Yes. My family know I am a keen supporter of the shed movement, just as I am a keen supporter of the 5 Live Saturday afternoon movement and the beer in the shed movement. I can assure my hon. Friend that an opportunity to visit the Havant Men’s Shed movement will be an important part of the ministerial diary in the very near future.