Children’s Hospices: Funding

Alison Bennett Excerpts

Wednesday 30th October 2024 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairmanship, Mr Twigg.

I begin by thanking the hon. Member for Liverpool West Derby (Ian Byrne) for securing this really important and timely debate. I also pay credit to his efforts and the efforts of the good people of Liverpool for all the work they have done to save—hopefully—Zoe’s Place. However, the fact that all those efforts, including the trombone-playing, have been required means that today we are not where we should be. Based on the contributions across the Chamber this morning, there is widespread agreement among Members that this total dependence of children’s hospices on fundraising—putting out the begging bowl to keep them going—is unacceptable and something that we would like to see change.

In Mid Sussex, where I live, I know somebody called Carey who I first met in 2019. I went to his house for a cup of tea and he pointed to a photograph on the wall and said, “Just so you know, this is my son Fred, and Fred died when he was a teenager.” Roll on to 2024, and Carey and I are no longer fellow constituents—he now lives just outside Mid Sussex—but we are both served by the wonderful Chestnut Tree House Children’s Hospice in Arundel, which serves families right across west Sussex.

Chestnut Tree House did an incredible job for Carey, Fred and the whole of their family as Fred approached the end of his life. Carey said he is certain of the fact that

“without the support of Chestnut Tree House for our lovely Fred, and for us as we helped him, on his journey from lively teenager to death, we would all have been broken beyond endurance”.

What Chestnut Tree House did for Carey was to make his and his family’s most difficult years as bearable and as happy as they could be. Every child whose years are shortened and every family involved deserves such support. I fear that unless the Government take decisive action, such vital support services will continue to wither, and children like Fred and family members like Carey will be left to fend for themselves in truly dark times.

This is not an issue to be addressed at a later date, but one that has consequences for children and families throughout the country today. The challenges faced by children’s hospices are daunting. Each year hospices across the UK provide vital services to around 300,000 people, including approximately 7,500 children with life-limiting or life-threatening conditions. That is why we Liberal Democrats firmly believe in the necessity of a fair funding deal for hospices. It is time to address the inconsistencies that Members have spoken about in children’s palliative care funding, and ensure that all hospices are properly resourced to meet even the most basic NHS standards.

Charities such as Together for Short Lives have identified systemic problems that stop children getting the care they need. With the large majority of funding being private or charitable, the sector is precariously poised. Although the increase in the children and young people’s hospice grant to £25 million is a positive step, I am sad to say that it falls woefully short of the £295 million gap in NHS spending on children’s palliative care identified by charities such as Together for Short Lives.

A staggering two thirds of local areas in England fail to meet the required standard for 24/7 end of life care for children at home. Alarmingly, only 14% of integrated care boards—just six in total—currently fund services that provide round-the-clock access to children’s nursing care and specialist paediatric palliative care consultations.

The postcode lottery is very real. In 2022, NHS funding for children’s hospices varied dramatically. Areas such as Norfolk and Waveney allocated £511 per patient; others, such as South Yorkshire, provided a mere £28. This disparity is totally unfair. It leads to unequal access to essential services, including therapies like physiotherapy, which can make a genuinely life-changing difference for so many children. These are not just statistics: they translate into real-life consequences for families who need and deserve every bit of support they can get.

Meanwhile, rising costs have not been matched by appropriate funding increases, and the lack of transparency in funding and services is concerning. Freedom of information requests revealed that only 31% of integrated care boards could confirm how many children with life-limiting conditions accessed hospice care in their area, while 14% could not even report on their spending in this critical area. This is unacceptable. We must have a clear understanding of the needs in our communities to ensure that no child is left behind. We cannot allow our most vulnerable children and their families to be at the mercy of a fragmented and inadequate system.

We have a moral obligation to act. Together we can create a future in which every child, regardless of their circumstances, or where they live, receives the best possible palliative care. That can happen when, first, the Government fix the postcode lottery; secondly, they review the declining charitable incomes of hospices and the links to deteriorating services; thirdly, they review commissioning for palliative care, which too frequently leaves hospices out of pocket for providing basic services and which leads to significant disparities within and between communities; and finally, they introduce a specific national hospice workforce plan to cut vacancy rates with the utmost urgency.

It is vital that the Government commit to action to ensure that every child whose years are shortened, and every family involved, can make the most of every moment they have left together, just as Fred, Carey and the rest of the family were able to do.

Oral Answers to Questions

Alison Bennett Excerpts

Tuesday 15th October 2024 Commons Chamber

[Karin Smyth]

My hon. Friend has highlighted an issue that is often overlooked. Homelessness has risen to shocking levels in the last 14 years. When it was addressed under the last Labour Government, people were moved off the streets, and there was decent care at the front end of the hospital system and support in the community. My hon. Friend is right: there are good examples across the country, and we would like to see them embedded as part of our overall goal, across Government, of reducing the scourge of homelessness in society and once again supporting the front end of the health service.

[Alison Bennett (Mid Sussex) (LD)]

I recently met representatives of the Royal College of Emergency Medicine, who told me that the inadequate state of social care was resulting in the deterioration of people’s physical health, leading to more presentations at emergency departments. Does the Minister agree that if social care were properly funded, pressure on our hospitals would be reduced?

[Karin Smyth]

What we see at the front end of the system is a result of the deterioration throughout the system, and the flow of patients from the community, through discharge and, indeed, through social care. Our ambitious 10-year plan will involve examining the entire patient pathway to ensure that care is provided in the community, closer to home. Prevention is a key part of that, as is the look that we are taking at social care.

Sepsis Awareness

Alison Bennett Excerpts

Wednesday 9th October 2024 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairmanship, Sir Christopher, and I congratulate the hon. Member for Ashfield (Lee Anderson) on bringing this important debate forward today. I also want to take a moment to recognise Abbi, who is in the Public Gallery, for her bravery in all she has done and for coming here today and the work she is doing just by being here and raising the profile of sepsis.

While initiatives such as sepsis six have helped to improve outcomes for people who have sepsis in recent years, urgent challenges remain, in terms of both the awareness and the treatment protocols we have, and the resources we put into treating the condition. In preparing for the debate, I was able to grab five minutes with a constituent and a dear friend. She has looked after her mother, who was hospitalised and very ill for a long time, after being bitten by the family dog and developing sepsis. Eventually, over a number of years, she has been able to come home.

As well as caring for her mother, my friend is a consultant geriatrician locally to me in Mid Sussex and has a great deal of experience of what it is like treating sepsis in hospital. She wanted to emphasise that awareness of sepsis has grown among healthcare professionals and is much better understood than it once was. The UK Sepsis Trust, through its action and activism, has seen a real increase in public awareness of sepsis. In 2012, only 27% of people understood the severity of the condition, but that figure had soared by 2019 to 76%. Awareness is going in the right direction, although more certainly needs to be done.

While raising awareness is a part of this, public awareness alone is not enough. We must improve things such as diagnostic testing for sepsis through investment in hospital equipment and increased laboratory capacity. We cannot expect healthcare professionals to act swiftly if they are not given the tools they need to do their job to the best of their skilled ability.

I was grateful to the hon. Member for South Basildon and East Thurrock (James McMurdock) for raising the issue of maternal sepsis. In September, the Care Quality Commission reported that 48% of trusts were rated “Inadequate” or “Requires improvement” for maternity services. Sadly, that includes my own trust, the University hospitals Sussex NHS foundation trust. Sepsis is just one risk factor in having poor maternity provision. All maternity units must meet high standards of care. That includes having adequate facilities and equipment and access to best practice care around the clock, especially for those experiencing miscarriage.

Moving on to emergencies, we know that demand for ambulances is intense, not just because of the winter pressures that come around every year but because of longer-term pressures. In my seat of Mid Sussex, the South East Coast Ambulance Service is predicting a 15% increase in demand for ambulances over the next five years. Response times for urgent conditions such as sepsis need to be improved. Across England last year, the NHS failed to meet response targets in every region for category 2 emergencies, which includes sepsis. We need to increase the number of staffed hospital beds and improve social care to cut delays in ambulance handovers, and it is imperative that the Government publish localised reports on ambulance response times. We must create an emergency fund to reverse the closure of community ambulance stations.

In conclusion, while we have made significant progress in raising awareness of sepsis, the fight is far from over. We must continue to push for better diagnostics, increased funding and improved care standards, ensuring that everyone, regardless of their background, has access to the best possible treatment.

NHS: Independent Investigation

Alison Bennett Excerpts

Thursday 12th September 2024 Commons Chamber

[Wes Streeting]

I am delighted to see my hon. Friend here. His constituents can already see that he is not backwards in coming forwards. He will stand up and champion their interests in this House as a great constituency MP. When it comes to the Conservative party, sorry seems to be the hardest word.

[Alison Bennett (Mid Sussex) (LD)]

I welcome the announcement of the Secretary of State about the shift from hospital to community care. My fellow Liberal Democrats and I fully believe that fixing social care is part of the solution in getting the NHS back on its feet, so I also welcome the announcement of a national care service. Part of care in the community is of course the hospice sector. I recently met the chief executive of St Catherine’s hospice, which is in the constituency of the hon. Member for East Grinstead and Uckfield (Mims Davies). He highlighted to me that, although the hospice has 24 beds, it is currently using only 12 of them. What assurance can the Secretary of State give me, and people right across the country, that fixing the hospice sector will be part of the solution as we take the NHS forward?

[Wes Streeting]

I am so grateful for that question, not least because it gives me the chance as a constituency MP to say a huge thank you to St Francis hospice and Haven House children’s hospice for the care they provide to constituents, like so many other hospices around the country. I know that the sector is under real pressure. We look forward to working with the sector throughout the period of the spending review and the 10-year plan, not only to support our hospices but to improve end-of-life care, which is pertinent to debates that I know this House and the other place will have about how we ensure a good death for everyone, in every part of the country.

Pharmacy Provision: Hampton

Alison Bennett Excerpts

Friday 26th July 2024 Commons Chamber

[Andrew Gwynne]

I completely understand the case the hon. Lady is making. I ask her please to understand that she is pushing on a bit of an open door. It is a completely different subject, but I have had exactly the same arguments about bank closures in my constituency. I am told that as long as the nearest bank branch is half an hour away by public transport, that is acceptable. Unfortunately, computer says no when it is two buses that do not meet up in between. I agree with her that there are complexities around drawing up arbitrary limits, but generally access to pharmacies is good. We need to maximise the use of the pharmacy network so that we get more pharmacists coming in.

[Alison Bennett (Mid Sussex) (LD)]

I welcome the Government’s support for strengthening the pharmacy sector. The Minister talks about the workforce. Residents in my constituency have raised concerns about the pressure on pharmacists to take on more and more services that might traditionally have been provided by primary care. What assurances can he give me that he will make sure that the workforce plan for pharmacists is robust enough to cope with the extra demand?