Postural Tachycardia Syndrome
Debate between Ashley Dalton and Rachael Maskell(2 days, 14 hours ago)
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Ashley Dalton
I thank my hon. Friend for her intervention. As we know, guidelines are only as strong as the evidence and research that they are based on. We need systematic, robust data to determine which treatments and interventions are most effective.
While we are backing our life sciences sector to come up with tomorrow’s treatments for long-term conditions, we are also directly funding research through the National Institute for Health and Care Research. The NIHR is currently backing a study, known as the LOCOMOTION study, with more than £3 million to examine the connection between long covid and autonomic nervous system disorders, especially PoTS. The NIHR funds research proposals through open competition, based on their scientific quality, value for money and impact on patients. The NIHR welcomes research proposals, and I appeal to any researchers to apply with proposals for PoTS-related research that this Government could fund. We want to see proposals and fund those that can be brought forward. Those researchers’ work could be life-changing for thousands of people across our country.
Locally developed care pathways are clearly important for supporting people with PoTS, because they help to address the condition’s unique challenges.
Rachael Maskell
There are very few PoTS specialists across the country. Will the Minister meet those specialists to hear why they are facing barriers, and work with them to ensure that they can practise the medicine they know works?
Ashley Dalton
The hon. Member pre-empts the end of my speech, where I was going to say that I would be more than happy to meet specialists in this area to discuss how we can move forward. It is important that today’s debate is the beginning of our conversation, not the end of it.
The Government are focused on standardising and co-ordinating care across different settings so that local pathways can address systemic challenges, especially the inconsistent referrals that many people with PoTS face, as has been raised today.