Carers

Barbara Keeley Excerpts

Thursday 9th June 2016 Commons Chamber

[Huw Merriman (Bexhill and Battle) (Con)]

Thank you, Mr Deputy Speaker, for calling me to speak in this important debate. I thank my hon. Friend the Member for Eastleigh (Mims Davies) not only for securing the debate, but for bringing to the Chamber her powerful experiences and sharing them with us. I also want to thank the Minister for all that he does to ensure that carers are given the support they need and deserve.

I want to sign up to the suggestion made by my hon. Friend the Member for Chippenham (Michelle Donelan) that we should extend the pupil premium to all young carers. There are 160,000 young carers whose life chances are disadvantaged by the amazing duty that they perform. Extending the pupil premium to all those young people seems to me to be a very fair exchange for all that they do.

Looking at the other end of the age spectrum, 28% of my constituents in Bexhill and Battle are over 65. By comparison, the national average is 17%. Accordingly, I have a very high number of older carers in my constituency. That is what I want to focus my contribution on today. The 2011 census revealed that there are over 1.8 million carers aged 60 and over in England—almost 16% of the population in that age range. The number of carers aged 85 and over grew by 128% in the past decade, according to a report published last year by Carers UK and Age UK, and it is expected to double over the next 20 years, according to a Government report from 2014.

East Sussex has the highest proportion of over-85s in the UK. Again, that group will be highly pertinent to my constituency. Supporting this army of carers is absolutely essential if we are to ensure that our NHS continues to function. Given the Government’s welcome desire to support keeping people at home in their advancing years, rather than placing them in hospital, that support is even more important. I welcome the passing, by this Government when in coalition, of the Care Act 2014. The Act granted significant new rights to carers in England and placed duties on local authorities to ensure that support is delivered, advice is given and information is provided. It also placed a duty on NHS bodies to co-operate with local authorities in delivering Care Act functions, which, if the clinical commissioning groups in East Sussex can work as a whole, will lead to a “Better Together” integrated health system in East Sussex.

I am conscious that the delivery of those rights is contingent on local authorities having the necessary financial resources in place. I welcome the devolution of business rates to my county, but the yield in East Sussex is low and the demands from a population with above-average ageing is high. Our county will need more time to deliver and more investment in infrastructure to attract new businesses to the coast if this is going to provide for carers and other groups who need local authority finance and support.

I welcome the new 2% levy that local authorities can apply to council tax, provided that it is spent on adult social care. While I champion the rights of carers within the home, many carers are caring for loved ones who reside in care homes due to complex or advanced needs. It is absolutely essential that those carers have the comfort of knowing that their loved ones will be well cared for when they are not in the home to deliver it. I have championed the care home industry, which features heavily in my constituency. Funding them properly via the new 2% levy will, I hope, result in better Care Quality Commission ratings than those that have been awarded following recent investigations.

Across East Sussex, 60% of our care homes were found to be inadequate or needing improvement. It concerns me greatly that, because of these poor ratings, many of our carers may choose to soldier on at home when a care home would be the better choice for their loved ones. All the care homes that I have visited in my constituency have been fantastic. It is important that those that need to improve do so with the extra funding that the Government have procured.

In a rural constituency such as mine, social isolation can be a particular concern. This is exacerbated for older carers looking after loved ones. According to a report published in 2011, more than two thirds of older carers reported not getting breaks away from caring at all, with a further third getting a break only once every two or three months, or less. Let me therefore take this opportunity to thank all those constituents who do so much to give carers a break. While I am at it, let me name-check my mother and my two sisters, who regularly host teas at home attended by carers who do not get the chance to get out of the house and get looked after by someone else for a change. While it is right to look to the Government to be the ultimate support, very often it is the community and their acts of kindness, via visits, conversations, moral support and basic errands, who improve the welfare and wellbeing of our elderly carers. I salute all those who do it.

I am keen for the Government to look at the following suggestions that were made to me by the fantastic Care for the Carers team in East Sussex. First, we should help national partners reach more carers. Would it be possible to make it a duty for the NHS to identify carers, in the same way that the Care Act does for local authorities? Secondly, we should ensure that carers have good support. Would it be possible to ensure that local authorities do not charge carers for the support that they are entitled to? East Sussex is currently not charging carers, which I recognise and celebrate.

[Barbara Keeley (Worsley and Eccles South) (Lab)]

I thank the hon. Gentleman for his point about the NHS having a duty to identify carers. I have tried three times to introduce that in a private Member’s Bill, so I am really pleased to find support for it among Conservative Members.

[Huw Merriman]

I am pleased, as a novice in the House, that there is agreement across the House on that cause.

Thirdly, there should be help for carers in complex situations—those caring for people with dementia or mental health problems. It seems to me to be an obvious ask to promote good practice recommendations to commissioners and health professionals and to promote it in national policy making.

Finally, I thank and express huge admiration for all those who care for others in my constituency and beyond. I know that they seek little praise, but it is right that we should praise them this afternoon.

--- Later in debate ---

[Barbara Keeley (Worsley and Eccles South) (Lab)]

It is a pleasure to speak in this important debate on carers. I thank the Backbench Business Committee for allocating time for the debate and the hon. Member for Eastleigh (Mims Davies) for the thoughtful way in which she opened it.

There have been some interesting and thoughtful contributions from hon. Members. We heard from my hon. Friend the Member for Workington (Sue Hayman), the hon. Members for Chippenham (Michelle Donelan), for Ayr, Carrick and Cumnock (Corri Wilson), for Paisley and Renfrewshire North (Gavin Newlands), for Bexhill and Battle (Huw Merriman), for South Antrim (Danny Kinahan) and for Strangford (Jim Shannon), and the SNP spokesperson, the hon. Member for Central Ayrshire (Dr Whitford). We also heard briefly from the hon. Member for Dudley South (Mike Wood) and my hon. Friends the Members for Sheffield, Heeley (Louise Haigh) and for Foyle (Mark Durkan).

There are more than 6.5 million carers in the UK. We have all used different figures in the debate, but I tend to use that one. In my constituency, there are nearly 11,000 carers. I have known ever since I became a Member of Parliament that many of them have a heavy workload due to the ill health in my constituency.

In many areas of the country, people are living longer. As the population ages, we are living with increasingly complex care needs. Three in five of us will become carers—the hon. Member for Eastleigh touched on that. There are also more older carers. In England and Wales, almost 1.3 million people aged over 65 give unpaid care to a family member or friend. The hon. Member for Bexhill and Battle (Huw Merriman) spoke about the fact that, between 2001 and 2011, the number of carers who are over 85 increased from 38,000 to more than 87,000. More than half of carers aged over 85 give 50 hours or more of care every week. That is certainly something to think about.

We are failing to address key issues for carers. Inadequate support for carers and the people they care for damages carers’ quality of life. I will argue that Ministers must do more to recognise the importance of carers and to put in place policies to address their needs.

First, many carers continue to suffer financial hardship because of their caring responsibilities. As we have heard, a recent report by the New Policy Institute found that 1.2 million carers are in poverty. It is shocking to think that so many carers are struggling to make ends meet. In the Carers UK report, “State of Caring 2016”, half the carers surveyed reported cutting back on essentials such as food and heating. Others are having to borrow money, and more than a third use their own savings. The hon. Member for Strangford raised those issues. I feel very strongly that no carer should be pushed into poverty because of their caring responsibilities. I thank my hon. Friend the Member for Workington for talking about financial hardship among carers. It is an increasing problem.

Secondly, too many carers are left to cope on their own with little or no support. As we have heard, one in five of the carers who give 50 hours or more of care each week receive no practical support with their caring role. More needs to be done to protect carers’ health and wellbeing. We must ensure that carers are identified at the earliest possible stage so that they can find the help and support they need. As I said earlier, in the past I have introduced private Members’ Bills to place a duty on GPs and NHS bodies to identify carers and ensure that they are referred for support. The last time I introduced such a Bill, the coalition Government did not support it. However, that duty on the NHS to identify carers was included as a pledge in Labour’s manifesto in 2015.

The Government have promised a new carers strategy to give carers

“the support they need to live well while caring for a family member or friend.”

However, to achieve that aim, any new strategy must include a duty on GPs and NHS bodies to identify carers. After all, the NHS is nearly always the first point of contact for carers as they begin caring, and so is best placed to identify them. I welcome the support of the hon. Member for Bexhill and Battle for a vital change that we can make for carers.

Thirdly, I want to talk about the chronic underfunding of social care and the impact on carers. I have raised that many times with the care Minister and most recently with the Chancellor. In the previous Parliament, there were five years of funding reductions for adult social care, totalling £4.6 billion. Local authority spending on social care for older people fell in real terms by 17%, even as the number of people aged 85 and over rose by 9%. Three hundred thousand fewer older people receive publicly funded adult social care now compared with 2009. In the Carers UK survey, 60% of carers who had seen a change in the amount of support they received said that that support had been reduced due to cost or availability.

I hope that the care Minister will not repeat the Chancellor's mantra about the 2% social care precept and the increases in the better care fund arriving by 2019-20. The 2% social care precept is inadequate to meet even the Government’s minimum wage policy. In my local area of Salford, the cost of paying increases in the national minimum wage in the care sector will be £2.7 million, but the 2% social care precept will raise only £1.6 million. In effect, the council tax payers of my local area are paying for that Government policy of increasing the national minimum wage. The Minister knows that there is no increase in the better care fund this year and only £105 million extra next year. It is hard to understand why Ministers have refused the reasonable request from the Local Government Association to bring forward £700 million of better care funding to address the financial pressures that it faces this year and next year.

We know that there are real concerns about the financial viability of many of our social care providers. In evidence this week to the Public Accounts Committee inquiry on discharging older people from acute hospitals, the president of the Association of Directors of Adult Social Care, Harold Bodmer, said that the sustainability of the residential care and domiciliary care sectors was the main concern for social services directors. He also pointed to significant regional differences. He said:

“I wouldn't underestimate the impact of the differential effect on the social care market in different parts of the country, because there isn’t a domiciliary care problem in the north-east, but there is in parts of Hertfordshire, Oxfordshire and Norfolk. It is really difficult to get domiciliary care in north Norfolk."

I thank the hon. Member for Central Ayrshire for talking about home care not being valued. It may be that people in parts of the country where they cannot get domiciliary care are voting with their feet. People do not want to work in a sector that does not value or pay them properly. Home care should be a much more valued role.

I have real concerns that this fragility in care provision could leave more people without adequate care and put more pressure on unpaid family carers. This is worrying because more people are already providing care for more hours than ever before: 1.4 million people now give more than 50 hours of unpaid care a week, and that number is rising faster than the increase in the general population of carers. There has been an increase of 25% in people caring more than 50 hours a week in the past 10 years compared with an increase of just 11% in the total number of carers.

The Care Act 2014 entitles all carers to a timely assessment of their needs. However, one in three carers who have had an assessment in the past year had to wait six months or longer for it. Worryingly, nearly 40% of carers caring for someone at the end of life also had to wait six months or more for an assessment. That is unacceptable. Carers for people at the end of life should be prioritised. We have talked about that in different meetings here.

Timely assessments are surely one of the starting points in providing support to carers, but even when carer assessments take place it seems that they do not properly address carers’ needs. Almost 70% of carers in the Carers UK survey felt that their need to have regular breaks from caring was not considered in their assessment. Members have rightly repeatedly referred to the importance of breaks for carers. Seventy-four per cent. of working age carers did not feel that the support they needed to juggle care with work was sufficiently considered. We need those important assessments to be more than box-ticking exercises, but that can happen only if the Government invest in support for carers and give local authorities the resources that they need to provide care and support. I hope that hon. Members have been able to meet and listen to a number of carers this week—indeed, I understand from the debate that that is already happening.

At the carers week parliamentary event I met Katy Styles, who cares for her husband Mark, and she told me about a number of issues that she has encountered as a carer for a person with motor neurone disease. What I felt most in talking to Katy was that she wanted to be recognised and listened to as a carer, but she also raised issues of financial hardship. Katy and Mark Styles told their story to the all-party group on motor neurone disease, and Katy said:

“We told them about how we were once two professionals and how our lives had been devastated by Mark’s condition. I explained that as a teacher I had earned £150 a day and now I receive £62.10 a week in carer’s allowance for providing never-ending care and support for my husband. Mark explained how he was forced to retire at 46, that our income had fallen off a cliff, but our bills continued to increase. He told the group about how we travel miles and miles to receive care, and how we had to make adaptions to our home which were paid for with savings that we will never be able to replace.”

The MND Association found in its survey that more than half of carers for people with MND care for more than 100 hours per week, yet only a third have had a carer’s assessment, and four out of 10 people were unaware of their right to one. Caring for more hours each week can mean carers having to give up work and facing financial hardship, and we have touched on that in this debate. Some 2.3 million adults in the UK have given up work to care, and almost 3 million have reduced their working hours.

I do not want to leave the issue of financial hardship without mentioning women born in the 1950s who are carers, but who are now not getting their state pension until later in their 60s. I have spoken about carers such as Marian, who has given up work at the age of 62 to look after her mother and her brother, both of whom have dementia. Her only source of income is a small private pension of £2,500, and her husband will have to support her until she gets her state pension at 65. The Minister has probably not been involved in many of the debates on the state pension age, but many women born in the 1950s are in such a situation and now face financial hardship.

We have mentioned those who give up work to care or who struggle to manage their working hours, and about combining care with work, and the feeling in the debate has been that more needs to be done to ensure that employers provide carers with enough support. Some companies are leaders in providing support for their staff who are carers. For example, Centrica offers flexible working, access to counsellors, and an employee-led carers network that is supported by the company’s senior leadership. Its carer’s leave policy offers up to one month matched paid leave per year to help with caring responsibilities, and it also takes into account that caring responsibilities may fall to people who are not immediate family members.

I have concerns that members of this House are not able to provide those levels of support. IPSA contracts for Members’ staff offer only five days’ leave for caring reasons, and even that is stated as being for emergencies and dependants only. That minimal policy does not reflect good practice—the Minister will know what that is—and we could do better for our staff. I invite the Minister, the hon. Member for Eastleigh and others who have raised that issue, to join me in talking to IPSA to request a change in that policy. It is not good enough not to have better practice when supporting our staff who are carers.

As has been said, carers week is an important annual event because it provides us with an opportunity to recognise the contribution that carers make to society, and to highlight the challenges they face. I thank all organisations that support carers and provide hon. Members with so much information about caring issues: Carers UK, Age UK, Carers Trust, Independent Age, Macmillan Cancer Support, the MND Association, and the Multiple Sclerosis Society. My constituency contains the excellent Salford Carers Centre, and an amazing group of young carers are supported by the young carers project. I look forward to meeting them tomorrow. I also thank Marie Curie, which launched a report on end-of-life care for LGBT people in the House yesterday, as well as Together for Short Lives and the Rainbow Trust Charity for their support for children with life-limiting conditions and their families. Finally, I thank the UK’s 6.5 million carers, and especially the 11,000 carers in my constituency, for the essential role that they play in supporting our health and care system. Carers need and deserve so much more respect and support than they are currently given.

[The Minister for Community and Social Care (Alistair Burt)]

I congratulate my hon. Friend the Member for Eastleigh (Mims Davies) on securing this debate and on the way she opened it, and I thank the Backbench Business Committee for allocating time for this important debate during carers week. I will start where the hon. Member for Worsley and Eccles South (Barbara Keeley) ended, and thank all those who are involved in caring in our society. As we have heard from every speaker, carers make an invaluable contribution to the UK that we could not do without, and perhaps I can illustrate that by citing some of the remarks made by colleagues during the debate.

I will touch on some of the points raised by my hon. Friend the Member for Eastleigh in the remarks I have prepared for this debate, and I will also comment on her other points. She started with a graphic description of what might happen if carers were not around and if they decided not to do what they do every day, which brought the point home to us. She spoke about how people become a carer, and said that it could happen to any of us at any time. At last year’s national care awards I remember watching a video in which the point was made vividly that any of us in that hotel room could become a carer within 24 hours, and we can all understand that. As others pointed out, carers are no longer a minority group but people we all know—many of us are closely connected to carers, if not carers ourselves—and we are all only going to become more closely involved in the future. She, like others, made that point very well.

My hon. Friend also spoke, as did others, about the need to identify people not solely as carers but as husbands, wives, partners, employees—everything else they still are—and about the great danger of someone being pigeonholed because they have become a carer. It is important to remember that someone does not lose their identity when they become a carer. Hon. Members also highlighted the importance of carers week. I am proud to be the president of Carers in Bedfordshire—I have been for some years—and I thank it for its work. All hon. Members have thanked their local groups.

My hon. Friend was not the only colleague to speak of her personal experiences of caring. As I have mentioned from the Dispatch Box before, the range of Members’ experiences goes far beyond what the media are keen to portray and touches on virtually all aspects of life outside. When I hear the cares and experiences that colleagues bring to this place, I always hope that people outside read our debates and understand a bit more about us, why we want to be representatives in Parliament and the personal experiences we bring.

The hon. Member for Workington (Sue Hayman) and others spoke about finances, on which subject I could spend the whole 15 or 20 minutes. I know that this subject is particularly important to the hon. Member for Worsley and Eccles South, the spokesperson for the Opposition. On carers allowance, which the hon. Member for Workington focused on, the Government keep the earnings limit under review and keep under consideration whether an increase is warranted and affordable. The increase of 8% in 2015 far outstripped the increase in wages. The earnings limit is currently £110 a week, but that is a net figure, and if allowable expenses, such as childcare and pension contributions, are deducted, a claimant might earn significantly more. The limit enables a carer to maintain some contact with the employment market and achieve greater financial independence, but I recognise and would not minimise the constant financial pressures and difficulties facing families. The limit is kept under review. Also, as I said, there is a wider review of the carers strategy, which has allowed a lot of people to make contributions on finance, not just the amount but the important interlinking of benefits. That point will not be missed, and I thank her for raising the matter.

[Barbara Keeley]

Carers charities often raise with us the link with things such as the national minimum wage. The Minister talked about the figure last year, but the national minimum wage changed in April, and many of the carers trying to keep a part-time job going will be at that level, so it seems sensible to link the threshold with the national minimum wage so that when the national minimum wage increases, so does the threshold.

[Alistair Burt]

I cannot make that specific commitment, but I understand fully the hon. Lady’s point. As I said before, the earnings limit and all the factors affecting it are kept constantly under review, but I am sure that Treasury colleagues will not have missed the remarks made today.

My hon. Friend the Member for Chippenham (Michelle Donelan) also made the point about carers not being a small minority. She commended Carers in Wiltshire, and I commend her for being a volunteer—another example of the experience we all bring to this debate—and she raised the important issue of entitlement to benefits and signposting. In our call for evidence as part of the review of the carers strategy, respondents raised the importance of people being directed towards the things they need as soon as possible. The moment someone becomes a carer, their world changes, and they need as much information as possible at that time. She was right to mention the importance of signposting in particular. She spoke with great passion on the subject.

The hon. Member for Ayr, Carrick and Cumnock (Corri Wilson), who also spoke from personal experience, made a point about access to work. I shall talk about employment later, but she made her point strongly, and again she was not the only person to recognise that, although we all wish for a world in which burdens are shared equally, in truth they are not. Women carry the biggest burden when it comes to caring, and will probably continue to do so for some time. Recognising the extra pressures on women is particularly important. The hon. Lady made that point very well.

The hon. Member for Paisley and Renfrewshire North (Gavin Newlands) was particularly helpful in saying that although it is carers week for us, it is just another week for carers. I also liked it when he said that it was a week to talk “with”, not “to” carers. That was a particularly well made point. He spoke forcefully about the reality of life—the sleepless nights and other issues that carers experience.

My hon. Friend the Member for Bexhill and Battle (Huw Merriman) brought up the issue of care homes. I am not going to linger on that subject, but, as some colleagues know, I am particularly exercised about safety in care homes. It is my belief that someone in the care of the state, whether it be the NHS, local authorities or anyone else, needs to be as safe in a care home, a mental health institution or in learning disability facilities as they would be in an intensive care unit. As I expressed in yesterday’s debate about Southern Health, that is simply not the case.

I am very conscious of issues surrounding care homes. I have a round-table meeting on Monday with those responsible for the monitoring and regulation of care homes, and I pay tribute to the Care Quality Commission and others who are trying to do a good job of regulation, but this also involves some of the groups that are critical of regulation, want to see more done and want to ensure that there is safety in care homes. Some of the stories of abuse that we read about in the papers need to become fewer and fewer until they are extinct.

I want to praise the National Care Association because there are many good care homes, as my hon. Friend the Member for Bexhill and Battle said. It is important to keep the right balance in recognising the quality of good homes without minimising the pressures on them. When things that should not be happening are going on, it is quite difficult to maintain that balance. I appreciate the fact that my hon. Friend mentioned this important issue. I commend, too, the ideas coming forward from the carers team in East Sussex, and I urge members to ensure that the ideas put to my hon. Friend will be put into our national call for evidence. They have until the end of this month to do so. I do not envisage a statutory instrument to extend that still further, should there be a rush of evidence at the end of the month, but we never know in the present circumstances. Getting that information in would be very helpful.

The hon. Member for South Antrim (Danny Kinahan) was not the only one to refer to the pressures on our own caseworkers, who do so much work to look after people in the House. I appreciated his mention of that point. He hoped that the carers strategy would be a long-term strategy. I hope it will, too. The strategy should be reviewed from time to time—this is the first review for two or three years—and that is certainly the aim. That is why I would like the strategy to look slightly beyond the immediate and consider how to build for the future rather than simply having a snapshot now.

My hon. Friend the Member for Strangford (Jim Shannon)—I call him my hon. Friend—is exceptionally generous and courteous to all Front-Bench Members when he speaks. I would like to tell him how much that is appreciated—it really is—when he is so genuine in expressing his views. He spoke of his personal experiences, pressures in Northern Ireland and the Crossroads young carers in Newtownards who particularly stressed the difficulties faced by young carers and the things that they often miss out on. My hon. Friend spoke about a singing group. A few weeks ago, I went to Biggleswade at the request of the Alzheimer’s Society to join a singing group, and I sang some songs with the people there. It was certainly an uplifting experience that morning. I commend those groups and the carers who work with them.

The hon. Member for Central Ayrshire (Dr Whitford) made a considered and thoughtful contribution, as usual. She spoke about all the financial pressures. Particularly telling was her comment that although there are a relatively fixed number of carers and although it is steadily growing to 6.5 million, it is a replaceable 6.5 million and about a third leave for all sorts of reasons.

On bereaved carers, I was contacted through Twitter by someone in that position who asked whether the strategy and review would cover them, and I answered “Yes, it will and it should”. The moment that caring for someone stops because of bereavement, the carer’s life has changed—perhaps in an anticipated way, but it is has still changed. Caring for people in those circumstances is really important. We must not forget this group, so I greatly appreciated what the hon. Lady said. She also spoke of the need to ensure that social care is seen as a profession as much as nursing and domiciliary care are throughout the NHS and elsewhere, and I thoroughly agree with her.

The hon. Member for Worsley and Eccles South (Barbara Keeley), whose background in caring requires her to be listened to seriously every time she speaks about this issue, made a number of comments. I shall deal with the subject of finance a little later. Let me say first that I will ensure that the review that we are conducting will cover early identification in the NHS. We are trying to ensure that it takes place earlier and earlier. The issue of GP identification is very important, and I am pleased that the hon. Lady raised it again.

[Barbara Keeley]

I should be happy to send the Minister a copy of my Bill and the explanatory notes if that would help to elucidate the points that we have made.

[Alistair Burt]

I have no doubt that those are already deep within the recesses of the Department of Health, but if it would speed things up and provide encouragement, I should be grateful if the hon. Lady did indeed do that.

The hon. Lady also made an important point about our staff in the House. She said that we should look after them. I appreciate the point that she made about the staff of the Independent Parliamentary Standards Authority, and I will look into how we can best ensure that we recognise properly—in line with best employment practice elsewhere—that those who work for us bear considerable burdens of caring from time to time.

I am grateful for the opportunity to come to the House and share the important work that is under way to develop a new cross-Government strategy for carers. I continue to be humbled by the many powerful, honest and informed contributions that we have heard throughout the afternoon from Members who have described the carers whom they know and represent, as well as their personal experiences. Those views, and the many others that we have received so far, will be fully taken into account as the Department works with Government colleagues, stakeholders and, crucially, carers themselves to develop the new strategy.

Today we have been reminded that behind the statistics stand spouses, partners, parents—in fact, all manner of relatives, friends and neighbours—who are providing care right now in our communities. Their commitment can scarcely be quantified or questioned, and we must ensure that our own commitment to support people is demonstrated clearly as well.

I pay tribute to the national care awards, which are sponsored by LloydsPharmacy, Carers UK and The Sun. I was at the awards ceremony a couple of weeks ago, and we met the winners at lunchtime. The Prime Minister was kind enough to offer No. 10 Downing Street for a lunchtime reception, and we took people round. We are always struck when people like that say that it is a privilege to be there. We say to them, “No, it is our privilege that you are here with us. It is the other way round.” Those people were a great group—great winners. We went to a dinner that night. Radio 2 was very good: there is always a table of wonderful people to support the awards. When we hear the personal stories—which have been reflected in some of what we have heard in the House today—we are all immensely impressed. Let me again pay tribute to those awards: they do one of the jobs that we have all been speaking about this afternoon—valuing and recognising carers for what they do in so many different circumstances.

Before we go any further, may I offer a small philosophical comment? I picked this up from a piece in The Guardian by a writer called Madeleine Bunting. I do not read The Guardian all the time, contrary to the belief of many of my colleagues, but every now and again I am struck by something that is really good, and what Madeleine Bunting wrote is important. She was writing about what care is. We talk about it—we talk about the facts and figures and the finance here in the House—but what is it precisely, and where is it going? Madeleine Bunting wrote:

“We recognise instantly when we experience it: an interaction that acknowledges a moment of human connection. It may be brief, but it expresses and confirms a common humanity, a recognition of the individual—and always involves a particular quality of attention.

But the characteristics needed to provide this kind of care are losing cultural traction. Attentiveness requires two crucial ingredients: patience and the willingness to put one’s own preoccupations aside and to be available to another. Yet in a myriad of ways we are all being groomed by consumerism and digital media—to be the opposite: impatient and self-preoccupied. That impatience makes us easily distractable, addicted to the next stimulus.”

I think that Madeleine Bunting was making a really important point. The people about whom we have been talking have avoided that: they have patience, and a commitment to others that is beyond many of us. However, there is concern about society—concern about where it is going and the pressures that it is under. Demographics suggest that we will need more care, and yet certain pressures are making it more difficult for that to be realised. What will carers be like in the future if they have become too distracted and too self-occupied? That is not the case with carers now, but it is a valid point to raise with regard to the future.

We owe a duty of care to this vast army of people, who show their patience and their compassion for others. I am talking about not just providing them with the support, tools and information that they need to care well, but ensuring that their own health, wellbeing and life goals are not compromised. Our respect is unreserved, but respect is not enough. We must never lose sight of that fact if a new carer strategy is to succeed.

I should say at this point that I do not wish to paint a negative picture of caring. Although personal sacrifices are made each and every day, many carers have told us that it remains a privilege to care, and that they have a strong desire to repay the kindness of others. Indeed, carers derive immense satisfaction and peace of mind from being the primary source of comfort and reassurance for friends and loved ones. However, that satisfaction must not be at the expense of carers’ own mental and physical health.

We have also heard this afternoon about the great diversity in types of caring. There is no such thing as a typical carer—carers are people of all ages and from all walks of life, and those for whom they care have different needs. In particular, we neglect at our peril the needs of children and young people with caring obligations. They are most at risk of having not just their health and wellbeing compromised, but their education and career ambitions too.

There is no “one size fits all”. We must be alert to that as we attempt to craft new and improved support for all those providing care in our communities. It is no surprise that one in six of us is currently caring. As lifespans extend and our population grows, caring for others has already become part of the fabric of our lives. All those who have spoken today have made it clear that they are not affected by the lazy mindset that tells us that carers are other people; carers are all of us. As a constituency MP, I have had the privilege of visiting carers and carers’ groups in Bedfordshire. As a Minister, I have spoken to carers’ groups in relation to pulling together the new carers strategy. I strongly commend those who work in my own county.

Almost 20 years after the Carers Act 1995 first gave official acknowledgement to those providing “regular and substantial” care, the Care Act 2014 now gives carers new rights, including parity of assessment, advice and support with those for whom they care. Those new rights are a historic step forward. We have provided local authorities with £433 million in 2016-17 for new burdens arising from the Act.

We know that the Care Act is taking time to bed in. The hon. Member for Worsley and Eccles South referred to the matters that affect assessment, and I understand them very well. Care varies from place to place. A group from the Association of Directors of Adult Social Services working with the Department is looking at those variations in care, so that in places where assessments are much slower than in others, we are looking at what can be done and how things can be improved. That is very much on our mind.

[Barbara Keeley]

Having been present during discussions about certain groups of carers, perhaps the Minister will tell us whether he believes that carers of people who are at end of life should be prioritised for assessment. It is pointless to have people waiting six months when the person for whom they care may have only a few weeks or a few months to live.

[Alistair Burt]

I will ensure that that is considered as an important point of the assessment. I will write to the hon. Lady in relation to that.

Let me turn to finance now. There is always concern about the amount of finance that is available. It is almost impossible to get the right amount. By spending around £2.5 billion a year on benefits in Great Britain, benefiting more than three-quarters of a million carers, we are trying to respond to the needs that are there. That money provides a measure of financial support and recognition for people who give up the opportunity of full-time employment in order to provide care. As I said earlier, those allowances remain constantly under review. As this debate has made clear, it is not just about finance, but about all the other things, including supporting young carers and making sure that they are not forgotten and remembering that employers play an important part. I commend NHS England for the important work that it has done in relation to carers and for its commitment to carers.

I also want to mention the results that our call for evidence has produced, just to give people some assurance that these things are on our minds. We have received 3,800 responses so far, 85% of which are from carers themselves. A great number of the responses have been candid and honest, and it will frighten my officials if I read them out. They describe financial hardship; a lack of recognition and involvement; the impact on carers’ health and wellbeing; the difficulty of maintaining life outside caring; and frustration with access to assessments and services. All these issues are on our minds.

The need to ensure that carers get the recognition they deserve has been well illustrated in the compassionate speeches that we have heard today. Carers are vital, and not just in carers week. There is also a young carers awareness day—it was on 27 January this year—sponsored by the Carers Trust. I also commend my hon. Friend the Member for Truro and Falmouth (Sarah Newton) for holding a round-table about carers recently. This matter is on the minds of everyone in the House and I appreciate the courtesy of hon. Members in giving their time to deal with this important issue this afternoon.