(14 years, 3 months ago)
Grand CommitteeMy Lords, like many noble Lords I am a great fan of pre-legislative scrutiny, because I think it improves the quality of the legislation we pass. I also have great faith in this Committee system, because we go through a Bill line by line in order to improve it, amend it, and make good law as a result. I certainly support this amendment, because a trial period does make sense.
I look across at my good colleague the noble Baroness, Lady Browning. She and I sat on the Public Accounts Committee in the other place. Time and again we considered reports from the National Audit Office which showed that some great government scheme, some great initiative, had gone billions of pounds over budget, or gone over time. Inevitably we found that these things had not been trialled beforehand, to see if key elements of the proposals would work effectively.
Some unfortunate Permanent Secretary would be brought before the Public Accounts Committee, and like modern-day Draculas, we drew a lot of blood in our interrogations. Inevitably, this Permanent Secretary was not responsible for what the department had got wrong, anyway; it was the previous incumbent, but that is by the by. We were seeking to learn lessons, but inevitably it was like closing the door after the horse had bolted. If only more care had been taken, or things had been trialled and piloted beforehand, then things would not have gone wrong in the way that they did.
If the Government take this amendment on board, it has the potential to save millions of pounds. If the Bill does not take account of this, then somewhere down the track the NAO will come in, in two or three years, and find that there has been some great failure, or some great cost. The Public Accounts Committee will have to investigate, and the Department for Work and Pensions will be held up again as having failed to pilot or introduce a scheme in a good or effective way, as it promised it would. The amendment makes a lot of sense, and I hope the Minister will see that.
My Lords, this is the first opportunity I have had to contribute to the Committee. I declare my interest both as the named carer of an adult with autism and as, I believe, somebody who will need to attend the assessment meeting with him. I am that other person, so I am more than personally interested in this legislation.
My friend the noble Lord, Lord Touhig, made a good point about getting good value for money and making sure a system works. However, there is another point about trialling it with new applicants. I remain cautious about the ability of a lot of people newly recruited for the purpose to carry out what will be really quite difficult balances of judgment across a wide section of people, particularly those with learning disabilities, mental health conditions and autistic spectrum disorders, some of whom will have two or all three of the conditions.
I refer the Minister to my personal experience over many years: I am very proud to have raised the very first debate on Asperger’s syndrome in the House of Commons many years ago. When it came to getting contracts signed for people to get people into paid employment, one of the contract requirements was that the various agencies and commercial companies had a full understanding of this range of really quite difficult disabilities. All too often that training and preparation was based on reading up and taking a bit of advice. It never, ever, made the mark.
To give an example, in the case of people on the autistic spectrum it is well known—if I am to generalise and as has been said quite rightly they are individuals who will all display individual characteristics—that their lack of imagination and inability to express and understand non-factual things, as opposed to in some cases a quite high level of ability in understanding factual information, very often leads one to read in manuals and books about autism that if you converse with somebody on the spectrum it is best not to deal in generalities but to deal with specific questions that require specific answers. Some of the contracts that have been issued in the past to get people with autism into work have led the people assessing their aptitude for employment to carry out conversations that frankly beggar belief. I have had some personal experience of this. The questioning would be very much along the line not of, “How are you?”—that is a difficult question to answer—but “Do you live in your own home?”, “How many chairs do you have in your sitting room?” and “What size is your television screen?”. There was a mistaken belief that this was a normal conversation that somebody on the autistic spectrum would feel comfortable with. In one example the person being questioned was actually very intelligent and felt straightaway that they were being patronised, as any of us in this Room would have done.
Therefore, a lead-in period is needed to assess not just the value for money and the way in which this new system is working but also to allow for time, which is really needed, to make sure that the people carrying out these assessments have a working knowledge of some of the more complex conditions and a much better understanding to be able to make their judgment.
I hope the Minister will listen carefully to the points that are being made to allow a lead-in time for new applicants so that we can get this right.
(14 years, 4 months ago)
Grand CommitteeI am grateful to my noble friend Lord Kirkwood for initiating this debate, because it gives me an opportunity—my noble friend the Minister will not be surprised to hear me say this—to raise the case of people on the autistic spectrum, particularly in respect of the exemptions as outlined in the order.
Reference has already been made to the fact that there are exemptions. The exemption that would particularly affect people with autism is the one applicable to people who had been able to live independently and are entitled to severe disability premium. However, severe disability premium requires people to be in receipt of the middle or higher rate of the care component of disability living allowance, a benefit which is itself under review. The regulations are due to come into force in January next year. How will this timescale fit in with those people who are currently in receipt of the middle or higher of DLA care component but who may when decisions are being made about their eligibility for exemption under these regulations suddenly find that they are no longer in receipt of DLA at all or have been downgraded to a lower rate?
I know that my noble friend has great knowledge about autism. He has taken particular care to make sure that he understands the way in which autism manifests itself. He will therefore understand, I know only too well, that somebody who has been able to achieve independent living will have been through a journey to reach that point. For somebody on the autistic spectrum to be expected to share accommodation with another person would almost certainly be traumatic. It would affect their whole demeanour and well-being. The consequences of disturbing what for people with autism is very often a rigid way of life may be serious. Getting them to the point where they can maintain independent living is achievable and we are seeing more and more of it. It is sometimes but not always done with some external support—very often, voluntary support comes from family members and others; it is not necessarily an official package of care from social services. However, we aspire as a Government and a society to get more people on the spectrum to live independently.
I am extremely concerned about the impact of these changes, and I have made available to my noble friend’s officials a letter which I received only this week from the mother of a 32 year-old man who has been living independently for three years and who is in receipt of £93.45 a week. That is income support and the lower DLA rate, so he certainly would not qualify for the exemption. At the moment he is being paid £103.56 in housing benefit and it is calculated that he will lose £43 of that when this change comes in. Forty-three pounds out of an income of £93.45 a week is a significant amount. His mother is clearly aware of these changes and what the impact will be for her son. She writes a very moving three-page letter about what she thinks might happen to him as a result, concluding,
“local authorities will have available a pot of money that they can, at their discretion, use to help people make up the shortfalls in their benefit. Knowing this, though, will condemn those with autism to months of anxiety over whether they would be successful in benefiting from this. These months of anxiety will overwhelm many. The waiting is certainly causing James untold worry”.
I note that the Merits Committee report talks about the discretionary sum and expresses some concern. In paragraph 5 on page 5 it states:
“That increase must be used to cover all calls on the discretionary budget; no additional provision has been made to address any demands arising from these changes to the SAR regulations”.
My noble friend will understand immediately my concern about the way in which this might affect those living independently with a diagnosis of autism or Asperger’s syndrome. Many will not qualify for the exemption. The disruption to their lives will not only be severe in terms of their well-being and health but will, like a pack of cards, ripple out to other services that may have been involved in providing for them. Once you destabilise them in one area of their life, everything else starts to fall down like a pack of cards. So I hope my noble friend will take a look at this mother’s letter and perhaps take another look at how we might mitigate the distress that will almost certainly be caused to this very vulnerable group of people.
My Lords, I join the ranks of those thanking the noble Lord, Lord Kirkwood of Kirkhope, for bringing this forward for discussion, to make sure that it is aired, and for taking the opportunity to try to mitigate some of the effect of the regulation. The deficit has been mentioned. The point was made by the noble Lord, Lord Stoneham, that these are not the broadest backs that the pressure is falling on. The pressure is falling on these vulnerable people for an annual saving of £200 million. I believe in fiscal rectitude and I do not have any bother saving money, but with a group of people like this, whose vulnerability has been described by several colleagues, I think the deficit is the excuse for bringing out this measure. A colleague mentioned that perhaps it has been a long-term ambition of the department—not the particular individuals who happen to be here. But the consequences here are so drastic more serious consideration should have been given to pilots. I know that when a new Government come in, there is a determination not to be caught up in delays. The Government are in a hurry and they want to get things through. I have seen it happen and been part of it and I have the experience to regret some of it. I think that is what is happening here. They have been saying, “Get a decision. Get it made. Get it through”. I think it is pretty poor that people like these are in that position.
Although I have no intention of repeating the valuable comments made by colleagues, I will rely heavily on the reports produced by the Social Security Advisory Committee and the Merits Committee. The SSAC report makes a plea for delay by stating:
“We recommend that the proposals do not go ahead in their current form”.
In paragraph 23 of the Government’s response to the advisory committee’s report, after mentioning that the Government,
“does not accept the Committee’s view that the proposals are driven solely by the need to reduce the Housing Benefit budget”,
the Government claim that the changes will remove a “potential work disincentive”. Now, I have seen some daft and totally irrelevant things put into official documents—I might even have put in one or two myself—but what is a “potential work disincentive”? I do not know what that means. Perhaps the Minister could give us examples of where he imagines that might happen; it will be difficult for him to provide proof as there is very little evidence for anything in this measure. I would like to hear some examples of where this disincentive would take place.
Indeed, the Social Security Advisory Committee report states:
“On work incentives the Committee contends”—
and I think that normal life would confirm this—
“that the impact of the changes for Housing Benefit claimants already in work could result in a move to a location some distance from their place of work”.
Colleagues should be clear that, in many people’s lives, this could result in a big disruption, which should not be underestimated. A pilot would have been useful.
We are in danger of creating an itinerant population—a phrase that I have used elsewhere—who will be easily identifiable because they will be vulnerable for many reasons. As I have seen for myself, for people suffering from alcohol problems and from various degrees of mental ill health, security and permanence are very important. Moving people about in this way is not something that any British Government should be doing to part of its population.
I may be a touch cynical, but I wonder whether the reason that this particular group has been selected to bear £200 million-worth of cuts is that these people are not a very effectively organised part of the community: they are invariably not members of trade unions or interested in getting involved with trade union activity; they are not involved with community councils or politics; instead, they are on their own trying to cope with the situation in which they find themselves. Like the Government, I have no evidence for saying this, but it would be realistic to say that the percentage of these people who vote will not be too high, because not many of them will have any faith in politics—I would find it hard to argue with them when they say that. The Government would have picked an easy target for cutting £200 million, were it not for the Motion moved by the noble Lord, Lord Kirkwood.
Another interesting, and depressing, point is that, according to my reading of the Government’s response to the Social Security Advisory Committee’s report—if I am wrong, the Minister will contradict me—not one of the advisory committee’s recommendations was agreed to. Where is the listening to, or taking account of, the terrific experience of the people who serve on that committee? Not one of the committee’s recommendations was agreed to even partially. There is just a total blank.
Others will no doubt speak about their own areas, but I believe that the danger point here is likely to be the cities, where the drifters seem to congregate. For example, page 70 of the advisory committee’s report lists the number of claimants by area and the average amount lost per week. In the City of Edinburgh, 590 people, or 17 per cent of the caseload, will on average lose £37 a week. In Glasgow City—I am not a Glaswegian, but I live next to that city and know that it has many problems—800 people, or 25 per cent of the caseload, will on average lose £22 a week. In my own council area of South Lanarkshire, which does not have a big city but nevertheless includes some big towns, some 270 people, or 23 per cent of that sector of the population, will on average lose £11 a week. I know that some might say, “That’s up to them. It’s just £11 and they will manage with that”. However, as has been mentioned by the noble Lord, Lord Kirkwood, given the current situation in which utility costs and all the rest of it are rocketing up, losing £11 a week against that background of rising prices will be really difficult.
It will not make any difference to the Government, but a lot of us are worried about the availability of accommodation. Will they get accommodation? Will it be suitable? There is no evidence that the landlord sector will be able to guarantee availability of alternative accommodation. Folk will have to deal with that. They will face an upheaval in their lives plus cash losses. Collectively, we should not be proud of doing that to this sector of society. Having mentioned society, I shall finish with this statement. We are told by the Prime Minister—and the Chancellor of the Exchequer in particular—that they want to establish the big society. They say that we are all in it together. I do not see many people in society who will feel in it together with these vulnerable people.
My Lords, I thank the noble Lord, Lord Kirkwood of Kirkhope, for providing this opportunity to discuss planned changes to housing benefit that will affect certain young people currently living in the private sector in self-contained accommodation. These changes are contained in the regulations we are debating.
The change to the shared accommodation rate was announced last October as part of the spending review in the context of reining back welfare expenditure in general and housing benefit in particular. Difficult decisions have had to be made about spending priorities. At the heart of those decisions is fairness and affordability. We need to be fair to taxpayers and mindful of the choices those not in receipt of benefits make when considering what they can afford to pay in rent and the type of accommodation they choose to live in.
The shared accommodation rate reflects local private sector rent levels of accommodation where at least one facility is shared, for example a bathroom, kitchen or living room. The current rules for under-25s avoids the situation in which those in receipt of housing benefit could afford a level of accommodation that they would not be able to maintain were they employed. It also reflects the fact that sharing accommodation is common among younger people. We want work to be people’s first choice and do not think it unreasonable to extend the application of this rate from those aged up to 25 to those aged up to 35 for those who have recourse to public funds. This will realise savings of around £200 million per annum from 2013. That does not necessarily mean that people will have to move, although it is likely that some will need to do so—they will have to make the same sorts of choices about affordability as those who are not on benefits.
Many in this age group already share. Over one-third of the 25 to 34 year-old local housing allowance claimants who are potentially affected by this measure are already choosing shared accommodation and claiming the shared rate. In this age group, 40 per cent of private renters who are not on benefits also share. The Social Security Advisory Committee put forward the view that the majority of older sharers are either professionals or mature students, but the 40 per cent figure that I just cited specifically excludes students, and our survey data indicate that there are people sharing across all types of occupations.
The recent report by the Merits Committee posed the question: if savings are to be made, why choose the age of 35? Why not go higher? Such a move would not be supported by the evidence, which shows that sharing accommodation tails off significantly after age 35. Our equality impact assessment looked at the accommodation arrangements of all single and childless adults. Less than half of 25 to 34 year-olds have their own place, and a third live with their parents. When we look at those over 35, we find that 84 per cent have their own place and that only 6 per cent live with their parents.
We realise that, for some, it is neither desirable nor appropriate to live in shared accommodation. There are already a number of exemptions from the shared accommodation rate for those in vulnerable situations, such as care leavers below the age of 22, those entitled to the severe disability premium and those who have an extra bedroom for a non-resident carer with a home elsewhere who provides overnight care. Those living in social housing and in certain types of supported accommodation are also not subject to that rate. Those exemptions will continue to apply, where appropriate, to claimants in the increased age group of 25 to 34.
Since the announcement of the measure, we have been listening to people's concerns. I and my officials have met with interested parties, and the Social Security Advisory Committee has consulted and reported on the draft regulations. We decided to introduce two further exemptions for the extended age group. Those have been welcomed by several commentators and organisations, as well as by noble Lords who have spoken today.
The first additional exemption is for those who have lived for at least three months in a specialist hostel for the homeless and, while living there, received support to resettle in the community. That exemption addresses the concerns raised by several commentators about the impact of the changes on rough sleepers—in particular, the silting up of hostel accommodation. We accept that, without that exemption, it would be difficult to secure suitable move-on accommodation for that group to help them into a more settled way of life, which could undermine our ambition to end rough sleeping.
That exemption has been targeted at people aged over 25, who are at greater risk of rough sleeping. We believe that the current exemption is well targeted at people who are ready to move on to an independent life, but those people leaving hostels will have to have undergone some support and rehabilitation. That strikes the right balance between cost and fairness. We think that many former rough sleepers will be helped by that.
My noble friend Lord Kirkwood asked about the ministerial homelessness committee, of which I am a member. It was with that ministerial hat on that we framed this support, working closely with my colleague Grant Shapps.
The second new exemption is for those ex-offenders who present a serious risk to the public and who are subject to active multi-agency management under the multi-agency public protection arrangements—MAPPA—in England and Wales or are considered to present similar risks in Scotland. That exemption covers a very small group of ex-offenders who are to be excluded on the grounds of public safety. It is not extended to all ex-offenders because many of them pose no risk to the public. Perversely, the risk is that one might provide an incentive to commit modest crime, which we would not want to encourage.
Other specific groups have been put forward as needing exemption. They include people with disabilities, those with mental health problems, those with a history of substance misuse and those seeking to maintain contact arrangements with their children. The case for those who have shared care of children is complex. We estimate that, of those who will be affected by this measure, around 10,000 have some contact with a child who lives elsewhere. Of these, it is not known how many would normally stay overnight, so the numbers are relatively low. But living in shared accommodation should not preclude both parents from playing a full part in a child’s life. Parents living in hostels or other non-mainstream accommodation will, I am sure, be striving to maintain quality relationships with their children. Ultimately, it is for individual maintenance and custody arrangements to reflect living arrangements, and it is not appropriate for the state to fund two homes for a child. To pick up the question that my noble friend Lord Kirkwood asked, I can assure him that this arrangement does not contravene Article 9 of the UN convention.
We thought long and hard about other exemptions, but the blunt answer is that our analysis suggested that it is better to rely on discretionary housing payments than on specific exemptions because of the difficulty in defining and administering them. Our belief is that the local authority is best placed to consider individual circumstances.
The point raised by my noble friend Lady Browning about the autistic is very moving. I have had a chance to read the letter sent to her from Mrs—
I am sorry to interrupt the Minister, but I quite deliberately did not mention the person’s name.
(14 years, 11 months ago)
Lords ChamberMy Lords, this set of amendments puts forward the first of two alternative routes to achieving a combined retirement age at 66. We shall discuss the second route in the next group of amendments, tabled by the noble Baroness, Lady Greengross.
I thank the noble Lord, Lord McKenzie, and the noble Baroness for giving us a further opportunity to debate the issues that the amendments in this group raise. Let me start by saying that we are not insensitive to the impact that our timetable will have on the women who will face a much steeper increase in their state pension age than they were expecting. We also appreciate that we are asking them to make this adjustment with less notice than we would provide in an ideal world. However, for reasons that I shall explain, we are not in an ideal world, as my noble friend Lord Flight has just said. We remain of the view that, although this is a genuinely difficult decision, it is still the right one.
When my noble friend explains his intentions to the House, will he include an explanation of what the practical implications would be of helping those women most affected by shifting the burden on to the wider pensioner population?
Yes, I will try to address that now. If we were to look for funding by asking men and women, after their pension ages were combined at age 66, to go on for a little later than 66, the sums of the adjustment—although it is not easy to do them—would be roughly £330 million a year per month. It would depend on how many years you have. I will write to my noble friend and try to spell out the figures on making that adjustment.
Let me revert to the amendment, which is fundamentally the same proposition that the noble Lord, Lord McKenzie, made in Committee. I shall recapitulate why—notwithstanding the many concerns that we heard today and in Committee—we believe that we are taking the right course of action. It is common ground all around the House that we simply cannot go on ignoring the increases in life expectancy and the pressure that this puts on the state pension system now and in the future. Indeed, these amendments acknowledge that we need to move faster than the timetable that was set earlier. The impact of the upward revision in the life-expectancy projections is an extra £6.5 billion in state pension spending over the lifetime of just that cohort retiring in 2010.
As many noble Lords have pointed out, the amendment would cost the public purse upwards of £10 billion that would need to be found elsewhere. When the coalition Government came into power, we had not only to combat the huge financial debt the UK was in at that time, but put the country on a sound financial footing for the future.
I remind noble Lords that the financing of old age as a whole is the single biggest structural, long-term economic issue facing this country. We need to address the long-term costs of our pension system and ensure that we can deal with any wider economic problems that may appear on the horizon—a point made by my noble friends Lord Boswell and Lord German.
We expect public debt to be on a declining path by 2015-16, but it will still be well above pre-crisis levels. By the end of this Parliament, we will still have a national debt of £1.3 trillion. Waiting until 2020 to start moving to retirement at 66 would reduce the savings that we are looking for by a third—£10 billion off a total of £30 billion. That is the equivalent of reducing the education budget by 10 per cent over the spending review period, or one year’s capital budget for health. We have not yet heard a plausible alternative that would deliver those savings—with apologies, perhaps, to the noble Lord, Lord Stoddart. This is not an insignificant amount of money that we can easily pass up.
We believe it is right that those people who will benefit from recent increases in life expectancy make a contribution to the additional cost that comes from those longevity improvements. Women, no less than men, have benefited from increases in life expectancy. In three generations, projected average life expectancy at age 65 has risen by nine years for women. At the same time, women’s basic state pension outcomes have been rapidly catching up with those of men and continue to improve. In 2006, only 30 per cent of women retired on a full basic state pension. In 2010-11, that figure has increased to around 75 per cent. The projection is for it to reach 90 per cent by 2018, which is a big change-around in the support that older and retired women will get.
On the point made by the noble Baroness, Lady Howe, we have also taken action to ensure that the state continues to provide a decent income for people when they retire, with the state pension supported by the triple lock and key support elements for pensioners protected, such as free TV licences, cold-weather payments maintained at £25 and so on.
As the Chancellor has now officially announced, we will be consulting shortly on proposals for a simpler state pension, which will boost state pension outcomes further for the groups which are traditionally disadvantaged in the current system by low earnings and by interruptions, which is a point that several noble Lords have made. I have been challenged by my noble friend Lord German to talk more about the single tier. Every time we meet, I think there is more discussion on it than on anything else. A Green Paper is due shortly that contains two proposals. There is a proposal for a single-tier system, which will be looked at alongside the alternative option of accelerating the currently legislated changes to the current system—so-called flat rating.
The single-tier system would be around £140 a week and its main benefit would be much greater simplicity for individuals, which would give them a much clearer idea of how to plan ahead. It is also cost-neutral, a factor that is particularly valuable in the current climate, as I have pointed out. However, this is a complicated thing to do, and it is important that the reforms fit in with the programme of automatic enrolment and we will actively consult on the proposals. I take to heart the point about information made by my noble friend Lord German. I will take that back to the department and see how much clarity I can get.
Women retiring at 66 in 2020 should receive their state pension for 24 years on average. That is the same amount of time that we expected this group of women to receive their state pension for at the time that the pensions commission reported in 2005, when they were due to retire at 64.
Of the 2.6 million women affected by the change in state pension age, around 12 per cent face an increase of 18 months or more, and 1 per cent face the maximum increase of two years. That point was made by the noble Baroness, Lady Bakewell. Survey data show that 70 per cent of these women are still in employment. While I accept that we are asking these women to work longer, they will benefit from additional income and a potential boost to their pension savings and entitlements. In response to the point made by the right reverend Prelate the Bishop of Ripon and Leeds, data show that only 4 per cent of the women affected by these proposals have already retired.
The noble Baroness, Lady Hollins, raised the issue of carers. Clearly, they are a most valuable group in society, and we acknowledge them as such. There has been a downward trend in the proportion of women who say that they are not in the labour market because of caring or domestic responsibilities—the figure fell from 10.7 per cent in 1998 to 6.9 per cent in 2010.
The data show that employment rates decline as people approach the state pension age. Currently, the average age at which women leave the labour market is two years below that of men, although it is still two years above the current state pension age for women. The noble Lord, Lord McKenzie, made the point that women are less able to cushion the impact of any change. Current employment patterns for women in their early 60s are not a reliable indicator of future trends, as those women will already have started getting their state pension. It is difficult to predict with certainty how women will respond to the changes in the state pension age. I recognise that women are more likely than men to face competing demands in the form of caring and other responsibilities. Despite this, the figures show that the age at which women exit the labour market has risen steadily, from sixty-one and a half in 2004 to sixty-two and a half in 2010.
We had to act quickly to reduce the increasing costs imposed on the state pension system by the increase in longevity. It has not been possible to give a notice period similar to those given for previous increases in the pension age, but these women will still have between five and a half and six and a half years’ notice of an increase in their state pension age, enabling them in many cases to change their retirement plans.
In order to get to 66 by 2020, we have had to make some hard decisions. The noble Baroness, Lady Hollis, talked about our coalition plans. I point out to her in reply that the single-tier pension was also not in the government programme. Clearly, the new timetable creates a pension age gap between women born in March 1953 and March 1954, which increases from one to three years, but that is the most extreme contrast and applies only to women born in that month.
(14 years, 11 months ago)
Lords ChamberMy Lords, I begin by declaring an interest as the named carer of an adult in receipt of severe disablement allowance. I also associate myself with the words of my noble friend Lord Kirkwood of Kirkhope. I concur both with his concerns and with his support for the need to enable as many people with a disability as possible who have not worked or have not worked for a long time to be assisted into appropriate work through an appropriate process that takes account not just of what they cannot do but of what they can do.
Among the many disability charities which consider this statutory instrument to be premature due to the as yet incomplete recommendations of the Harrington report is, as the noble Lord, Lord McKenzie of Luton, has mentioned, the National Autistic Society, of which I am a vice-president. I would like to focus on the concerns for people on the autistic spectrum. In order to qualify for the ESA in a work-related activity group, people have to be assessed to have gained more than 15 points. The way in which it is currently proposed to change the descriptors, as we have already heard, has a detrimental impact on people on the autistic spectrum. I remind the Minister that it was only last Thursday at Oral Questions that I asked him to confirm that the Government accept that autism is a communication disorder.
The descriptors take no account of communication difficulties, verbal or non-verbal, due to mental impairment. This is a major omission. Communication and comprehension are essential in the workplace, and it is a critical area of impairment for people with autism. Making oneself understood is covered only by a physical descriptor, descriptor 6. Unless guidance clearly states that this covers people who find it difficult to communicate due to a non-physical disability such as autism or a learning disability, these needs will not be recognised in the assessment. Noble Lords will understand my concern that already I am looking at areas where autistic people should be given a point on that descriptor scale, but getting them to reach the 15 points, if appropriate, is already excluding those areas where they will be in some considerable difficulty. Understanding and comprehension impairments are covered only due to a sensory impairment under descriptor 7, where the emphasis is on aids used by those with hearing or visual impairment.
The wording of the descriptor itself is vague; it is based on an ability to complete “two sequential personal actions” in the context of planning, organisation, and problem-solving. People on the autistic spectrum—even those with honours degrees and high IQs—always struggle with planning, organisation and problem-solving. It is too broad to be meaningful and leaves too much scope for interpretation to accompanying guidance. For people with autism, this may vary from turning on the tap and wetting their hands within the process of washing their hands, or getting ready for work and then making their own way to the workplace. For many, doing that unassisted will be a major challenge.
The National Autistic Society is also very concerned about changes to descriptor 17. It has been simplified to make the wording clearer, but it has become overly simplistic. Someone who frequently has uncontrollable episodes of aggressive or disinhibited behaviour, particularly when under pressure or in an environment with which they are really not familiar—that sort of behaviour would be unreasonable in any workplace due to cognitive impairment or mental disorder—cannot realistically be assessed as not having limited capability for work. As the proposals stand, we do not believe that employers would accept as employees people who the descriptors would deem as capable for work, but showed those sorts of behavioural problems in the workplace.
People with autism may exhibit behaviour which does not meet the minimum criteria set out in this new descriptor 17, but which would cause disruption in the workplace. For example, people will flap, hum or spin. I know of one person who, in a stressful situation in the workplace, would make cat noises as a sort of comforter in order to exclude the distress going around him. There is a limit to how long those working with people like that will put up with somebody making cat noises on a continuous basis in a busy office. These are all regarded as individual or rather quirky, but they are very real parts of their disability.
I say to my noble friend that there is genuine concern about the speed with which these changes are being brought in, ahead of what Professor Harrington is saying.
I mentioned that I am the named carer for a person on severe disablement allowance. This allowance, which comes within this legislation, is a very old disability benefit; it was something often given to young adults and adolescents who, having come out of full-time education, were at that time assessed and deemed not able to apply for paid employment. I would not even want to exclude them from the new opportunities for employment as disabled people, but—and I particularly refer to learning disability, mental health and autism—many of them are now getting on a bit because they were awarded this some years ago. Some of them will be in their 30s and 40s or even older and for many of them, getting the support they have been given to date to enable them to live as independently as possible or to be as socially integrated as possible has not been an easy journey. It has been a long journey and there has been a lot of input to get these people where they are today. But their situation is always going to be fragile, and there is nothing that I can see in the way these assessments are made to take account of what is at the moment a sustainable situation, as far as independent living is concerned. We must not put too many demands on them, however, and ensure that the process associated with it does not give them some form of detriment as a result. As my noble friend Lord Kirkwood mentioned, they might lose money, which is a very important part of their life and allows them to be able to plan and be secure with their finances.
There is another form of detriment. People may find that their self-confidence is shattered after it has taken years to build up; they may find that they can no longer cope with independent living of one sort of another as a result of being put through a process which undermines that stability. You cannot put a price on that detriment. I say cautiously to my noble friend who I know is sympathetic to these issues, please do not let this Government cause detriment to those vulnerable people.
My Lords, I am very pleased to follow the noble Baroness, Lady Browning. I, too, will begin by declaring a personal interest. My 38 year-old son, who has a learning disability, was well described by the noble Baroness towards the end of her speech. He is always being assessed for what he cannot do and not for what he can do, which is incredibly demoralising for him. We his family spend our time trying to help him succeed and he would really like a job.
Some years ago, when I was consulted as president of the Royal College of Psychiatrists on the development of a work capability test, I suggested that the focus should be on capability, not lack of capability, from the point of view of the person being assessed. Although this is called a work capability assessment, it is an assessment of incapability.
I understand that, as my son is in receipt of severe disablement allowance, he may be required to undergo a work capability assessment. I tried out the online work capability self-assessment to see how he would fare. I will not go into the details but, of the three possible outcomes that we have heard about, he fell into the third category and would not be required, according to my assessment, to undertake any work-related activity. Perhaps that is a relief to me, in that his finances might not change, but I am sure that it would be a huge disappointment to him if that was the case.
So far that might be fine, except that the assessor may come to a different decision, in part perhaps because of my son’s lack of insight or understanding of his difficulties. He might then have to undergo an appeal and not everyone has the stomach for, or the capability for, an appeal. My reaction to trying out the test was that there is some sensitivity in the mental, intellectual and cognitive descriptors but probably insufficient sensitivity in the questions which relate to the type of complex difficulties that my son faces in his wish to be part of the workforce. They are difficulties which would require focused and sustained support to enable him to obtain work-related activity. The last thing that I or any parent in my position wants is for my son to fail yet another assessment, especially one which emphasises what he cannot do.
Another concern is that, if the assessment finds that he is capable, he is then given insufficient support, which would do terrible things to his self-worth and self-esteem. I question whether this assessment has been adequately road-tested and would want to avoid even one disabled person and his or her family having to face unnecessary appeals or loss of income through being unwilling to face yet another appeal. Even participating in the process of this assessment could be detrimental to the person’s mental heath.
My noble friend Lord Rix shares my concerns and has asked me to express his support to the noble Lord, Lord Kirkwood, today and to give his apologies as he is unable to contribute to this debate owing to family illness. He believes that many people with a learning disability will be denied vital support to help get them into work if they are not found eligible for employment and support allowance. That mirrors my concern. My noble friend believes that the crude indicators used in the regulations must be changed to more accurately reflect an individual’s capabilities.
For example, my noble friend is deeply concerned about the merging of the three descriptors—“memory and concentration”, “execution of tasks” and “initiating and sustaining personal action”—into one. They have been replaced with just one descriptor, “Initiating and completing personal action”. According to the regulations, this,
“means planning, organisation, problem solving, prioritising or switching tasks”.
The removal of the descriptor titled “execution of tasks” means that the time taken to complete a task will not be included as part of the assessment. This is particularly relevant to people with a learning disability and is likely to be a significant barrier to employment.
The current system already fails to meet the needs of people with a learning disability. My noble friend Lord Rix suggests that these regulations do not effectively assess limited capability for work, which means that the additional barriers and support needs of people with a learning disability are not being fully recognised in the assessment.
With less than 7 per cent of people with a learning disability who are known to social services being in any form of paid employment, the barriers to finding a job, combined with deep-rooted prejudice and discrimination, are already significant. Is it too much to ask that a coalition Government who claim to put fairness at the heart of their decisions should seek to tackle some of these barriers instead of perhaps making them even more difficult to overcome? For this reason alone, I and my noble friend Lord Rix, call for these regulations to be annulled.
(14 years, 11 months ago)
Lords Chamber
To ask Her Majesty’s Government what impact changes to the disability living allowance will have on people with autism.
My Lords, we are still designing the personal independence payment assessment so it is not yet possible to comment on its impact on people with autism spectrum disorders. However, we are committed to ensuring that it reflects the needs of all individuals effectively. We recognise that the current assessment criteria for disability living allowance can favour physical impairments and do not always fully reflect the needs of disabled people with mental, intellectual, cognitive and development impairments, including autism.
My Lords, I declare an interest as the main carer for an autistic adult in receipt of DLA. I am grateful to my noble friend for that Answer. Do the Government accept that autism is a communication disorder, and that a face-to-face interview with a stranger should be carried out only in the presence of a professional or carer who knows the autistic person? Otherwise, autistic people will not turn up at all and so lose their benefit, or the assessment will result in them losing the benefit on which they rely.
My Lords, I thank my noble friend for bringing up this really important matter. As I say, we are designing the personal independence payment now. One of the things that we want to get absolutely right is how we look after the most vulnerable. The default position is that we would like to see people face to face, but where that is not realistic, helpful or appropriate we will not be doing so. We will also encourage people, autistic people as well as others, to bring a carer, a family member or a professional with them so that we get the best evidence-based result that we possibly can.
(15 years, 2 months ago)
Lords ChamberMy Lords, the noble Lord will accept that I beg to differ on part of that question. The universal credit will have a powerful effect on poverty and will at least balance some of the other effects of the reforms. One needs to see all the reforms in their entirety.
Does my noble friend accept that people on the autistic spectrum and those with learning disabilities will find it very difficult to respond to a letter requiring them to attend an assessment or for somebody to visit their home without preparation being done, so that they are comfortable and supported and know exactly what to expect?
My Lords, I thank my noble friend for that. One of Professor Harrington’s recommendations was to make the whole process far more empathetic and to work with people rather than, if you like, doing things in a more hostile way. Looking after people who have autism is one thing that we want to make sure that we do. In my view, people who are autistic could benefit more than virtually anyone else from the package of measures in the work programme that we are introducing. These are people who can work if they are helped to do so.