Lyme Disease

Baroness Warwick of Undercliffe Excerpts

Thursday 22nd October 2015 Grand Committee

[Baroness Warwick of Undercliffe (Lab)]

My Lords, I thank the noble Lord, Lord Greaves, for introducing this debate and for his continued commitment to bringing this complex disease to our attention. As we have heard, many of us know someone or of someone who has experienced the distressing symptoms of Lyme disease. That is certainly what sparked my interest in the topic. The high public profile of some sufferers has meant that their stories and the controversies surrounding the disease have been widely reported in recent weeks.

Lyme disease has been in the UK since the late 1970s, but over the past decade cases of the disease have quadrupled. Public Health England suggests that there are some 3,000 new cases each year, although others put the figure much higher. We know the disease is transmitted by infected ticks, often on deer and mice, and they like grassland and leafy areas, so we are at risk whether we are walking on the Yorkshire moors or in London’s deer parks.

Lyme disease is on the increase across the UK, yet it is not diagnosed easily and there is a lack of adequate treatment. A common thread of the many cases we read about is that the doctors know very little about Lyme disease or have ruled out the diagnosis. Perhaps that is not surprising, given how new the disease is to the UK. Many doctors will simply never have come across a case. However, there is also division within the medical community on just about every aspect of this disease. Some think it is rare and easy to treat with a few weeks’ of antibiotics and that there is no such thing as long-term Lyme disease; others believe that it is becoming more prevalent and is much more difficult to treat than previously suggested, and that it can lead to severe chronic illness. Medical opinion in the UK has tended to the former view.

One complication is that symptoms can vary; not everyone bitten by an infected tick will display the so-called bull’s-eye rash. If this is the case, then what the doctor sees could be just a range of flu-like, non-specific symptoms, such as tiredness, muscle and joint pain, headaches, fever and chills, before more serious neurological or heart problems develop much later. Reliance on a diagnosis has almost exclusively rested on the blood test which detects antibodies to the disease. Yet these tests, as again we have heard, are too often inaccurate or unreliable, and even if antibiotics are prescribed the dose may not be strong enough, or the course long enough, to deal with the Lyme bacteria. UK cautiousness about overprescription of antibiotics is blamed for this.

It is good news that US researchers are making progress on developing a vaccine-like treatment, which would provide immediate protection against Lyme disease for the six months when the ticks are active. But until that emerges, the only way in which to prevent the disease is to avoid getting bitten. So it is vital that people are shown what they can do to protect themselves, and that GPs are given more information about the growing prevalence of the disease.

I am encouraged that the charity Lyme Disease Action and the Public Health England Lyme disease reference laboratory are now able to work together on difficult cases and equivocal test results. But more GPs need to be made aware of the testing facilities and expertise at the Government’s Porton Down laboratories. Public Health England currently recommends guidelines published by the Infectious Diseases Society of America, but we need UK and European guidelines to provide GPs with the full range of scientific evidence and medical opinion available. So will the Minister, on behalf of the Government, ask Public Health England to produce national guidance? We also need better diagnostic tests, more surveillance and more information about the scale of the problem. Can the Minister tell us what consideration is being given to whether Lyme disease should be given notifiable status by medical practitioners? Until we have greater GP and public awareness, more testing and earlier diagnoses, we will continue to have more chronic, life-changing cases of this complicated disease.