ADHD Diagnosis Debate
Full Debate: Read Full DebateBill Esterson
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(1 day, 8 hours ago)
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I beg to move,
That this House has considered ADHD diagnosis.
It is a pleasure to serve with you in the Chair, Ms Vaz. This debate is about how pathways to attention deficit hyperactivity disorder diagnosis might be improved, including by offering screening in schools, so that people can access the right support in good time.
We all have a pretty good idea of what ADHD means, but I am here because a 19-year-old constituent of mine, Matty Lock, took his own life in September 2023. He was diagnosed with autism at the age of 14, but he and his parents, Christine and Richard, who are here this afternoon, did not know about his ADHD until much later. In Matty’s memory, Christine and Richard have set up the Matthew Lock ADHD Charity, and they have been part of the independent taskforce. One of the things that the taskforce has done—this has been accepted by the NHS—is to highlight the proven link between suicide and ADHD. The prevalence of ADHD is 10 times higher among men attempting to take their own lives.
Let me say a few words about Matty. I knew him because he was very interested in politics. He had become a town and parish councillor, and he had campaigned hard with me for some time. Those of us who knew him through politics believed that he would be in this place before much longer. It is very, very sad that that was not to be.
Matty was known on television as “The Vac Mat” for his repairs of vacuum cleaners and his advocacy of domestic appliances on “This Morning”. He was everywhere in the community of Maghull—clearing up and playing his part. He was a real, strong advocate of the community that he grew up and lived in.
Matty’s ADHD was linked to how hyperactive he was. We know that people with ADHD are restless, lack concentration, are impulsive, act without thinking and always talk over others—actually, as I go through the list, I can think of nearly 650 people in this place who have a lot in common with that description.
What is the impact of having ADHD? We know that it leads to a significant number of school exclusions and very high drop-out rates. We know about the link with addiction, and that the prevalence of ADHD among people in prison is five to 10 times higher than among people outside. Sadly, we also know about the link with suicide.
NHS figures suggest that about 700,000 people are waiting for a diagnosis, and that many of them have waited for several years. Nearly two thirds of those people have been waiting for more than a year. The economic cost is estimated to be about £17 billion a year.
Helen Maguire (Epsom and Ewell) (LD)
The hon. Gentleman is making a powerful speech that has affected us all. In November 2025, NHS Surrey Heartlands integrated care board in my constituency paused assessments on the Right to Choose pathway until April 2026, which has caused major disruption. My constituent’s daughter does not know when she will be seen or if she will be seen at all. I have talked to the ICB and I know that there has been a massive increase in referrals for ADHD, so does the hon. Gentleman agree that the Government must set out plans to improve local NHS provision of ADHD assessments?
The example of the hon. Member’s ICB is typical of ICBs around the country. The purpose of this debate is to raise the issue with the Minister and highlight how important it is to improve diagnosis and speed up how quickly people can get access to treatment and medication.
Rachel Taylor (North Warwickshire and Bedworth) (Lab)
I thank my hon. Friend for securing this really important debate. Last year, a number of constituents contacted me because they were similarly concerned that Coventry and Warwickshire ICB decided to pause new ADHD referrals for those 25 and over so that it could prioritise children on its waiting list, which was at a really critical point. I recently met the chief executive of the ICB, who confirmed that referrals for adults will restart in May. Does my hon. Friend agree that we must get the balance right so that children and adults with ADHD get the diagnosis and support that they so desperately need?
It is good news that we are seeing some progress in my hon. Friend’s ICB. I profoundly hope that NHS staff in other ICBs around the country are watching this debate and will follow the lead of her ICB in improving the access that is needed.
I commend the hon. Member for securing the debate. He has outlined the waiting lists, which are no better for us in Northern Ireland—they are over a year, and up to six years. The issue about early diagnosis is that every child with ADHD has a different level of ADHD. The diagnosis is really important because it enables the education system to respond for that child specifically. Does the hon. Member agree that for an educational programme to be tailored to a child, it must be absolutely right, which can be done only if there is early diagnosis?
Yes, I agree with the hon. Member. It is important to realise that everybody is different and that we all need different support. That is very true in school. When we call for diagnosis, we need to take great care around what we mean. Diagnosis is a means of getting support, getting the right treatment and getting the right medication, if medication is right—it is not right for everybody. ADHD is a spectrum and that individual, tailored support in school, and indeed in adult life, is an important part of what we are discussing.
I will give way to both my hon. Friends in a moment.
A key element of the discussion is that we have to be really careful what we are calling for. That situation partly explains some of the delays: at the moment, a specialist is the only person who can give a diagnosis because of the complexities that the hon. Member for Strangford (Jim Shannon) just referred to.
Mr Rand
I thank my hon. Friend for giving way. I met Matty on a number of occasions, like many who sit on the Labour Benches representing the north-west, and he certainly made a lasting impression on me from the few opportunities when we met.
We know that when faced with lengthy waits for an NHS diagnosis, some people with ADHD turn to shared care, receiving a private diagnosis before their care transfers back to the national health service. I have a constituent who tried to do that for her son, but her GP refuses to accept the private diagnosis and provide treatment, meaning that my constituent now faces huge treatment costs, yet just a few years earlier her other son secured a shared care arrangement with the same GP practice. Does my hon. Friend agree that we need to address some of the inconsistencies in ADHD care that are caused by long waiting times?
I am glad that my hon. Friend raised that point, because one of my asks to the Minister is to iron out those inconsistencies.
Perran Moon
I thank my hon. Friend for securing this important debate, and thank the parents of Matty Lock for being in the Public Gallery for it. A couple of years ago, my son was diagnosed with ADHD while he was at university. To my shame, I always thought that his behaviour was simply a case of mischief or laziness. Does my hon. Friend agree not only that it is a case of early diagnosis, but that we need to increase awareness of ADHD—and neurodiversity more broadly—among parents, guardians, medical professionals and Government?
My hon. Friend is absolutely right, and he has made a very good point. My son has been diagnosed with ADHD—belatedly, like so many—but we were told early on that having a diagnosis would not help him. How wrong that was, because the diagnosis was the key to getting support and understanding what we were dealing with, both for him and for us as his carers. There is a lot of misinformation around, and getting that right is key, but yes—
John Milne (Horsham) (LD)
I am sorry for interrupting the hon. Member. Education, health and care plans are not supposed to depend on or require a formal diagnosis of ADHD but, in practice, that is how local authorities apply them. Families are far more likely to be challenged by the local authority if they do not have that diagnosis but, in my own area of West Sussex, the predicted waiting time for assessments has now risen to four and a half years, which is virtually an entire secondary education. Does the hon. Member agree that that Catch-22 situation requires urgent action from the Government?
The hon. Member is making the same point, which is that we need to clarify and have consistency across the country. That is, again, something that I hope will come out of the work that the Department is doing. I know that it is carrying out its own review and drawing on the work of the independent taskforce.
Several hon. Members rose—
I am going to give way. I am conscious that I am at 11 and a half minutes and a lot of people who want to speak. If Members intervene on me from now on, could they please keep it brief? I will give way to the hon. Member for North Down (Alex Easton) first.
Alex Easton (North Down) (Ind)
Based on UK-wide estimates, about 83,000 people in Northern Ireland are likely to have ADHD, yet it is clear that many remain undiagnosed, particularly women and girls. Does the hon. Member agree that there is an urgent need for clear, consistent and properly resourced diagnostic pathways across all health and social care trusts in Northern Ireland, and that a UK-wide source is needed for an even approach right across the United Kingdom?
It is a very well-made point, repeating what colleagues have said. I hope that professionals in Northern Ireland will have heard his point too, and will act on it while we are waiting for the Government to get to the UK-wide approach.
Sarah Russell (Congleton) (Lab)
I have similar stories of incredibly long waiting lists, my local ICB closing waiting lists and my constituents’ general difficulty in accessing support. Does my hon. Friend agree that the Government have already had a two-part report with recommendations on dealing with ADHD, and that there is plenty in there that could be implemented while further evidence is sought?
I do agree. Various Ministers’ answers at oral questions last week referred to the ongoing work. I know we are due a response in the summer; this is my opportunity to say directly to the Minister that sometimes, when Governments say they are going to respond in the summer, that is a very loose term. I hope that, in this case, it means early summer. Perhaps the Minister will come back to us with a bit more clarity on when he expects to respond.
Graeme Downie (Dunfermline and Dollar) (Lab)
My hon. Friend is being incredibly generous with giving way. Oddly, I was told by a Scottish Education Minister on the BBC recently that a diagnosis was not required in Scotland either to get the right support—we all know from our experiences that that is not the case. In Fife, we have more than 40,000 children waiting for neurodevelopmental assessments and there are no pathways at all for adults. Does my hon. Friend agree that it is important that we get this right across the United Kingdom, and that the Scottish Government also need to get their skates on and take some action?
Let us hope that someone from the Scottish Government is listening to the debate and acting on my hon. Friend’s request. We were talking before about the importance of supporting children to avoid stigma in education and ensure that support is in place, that staff understand and that they can improve their chances at school and beyond.
Leigh Ingham (Stafford) (Lab)
I thank my hon. Friend for securing this incredibly important debate. He is right to raise the issue of ADHD waiting lists, and the Health Secretary is right to commission the review, which is needed, into rising demand. Does my hon. Friend agree that the right response is to understand and then fix the system with empathy rather than—as I often see in my constituency—blaming parents who are simply doing the best they can for their children?
It is a good point, and we have to get away from that very inappropriate approach that I am sure all of us have come across from time to time.
I want to say a few words about alternatives to diagnosis. I mentioned briefly that, at the moment, typically a specialist psychiatrist carries out the diagnosis process, yet there are many GPs and other health professionals who would very willingly step in and be in a position to carry out that diagnosis. I wonder whether—and this comes out of the independent taskforce report—there is a big opportunity to speed up waiting times through the use of GP diagnosis and expanding the role of GPs and other professionals who want to specialise in ADHD. That might also be a way of overcoming the problem we heard before about the shared pathway challenge between private clinics and GPs in prescribing.
There are undoubtedly a number of challenges in moving this forward and addressing the very lengthy waiting lists, and their consequences for people. I hope that the Government will pick up these challenges and address the recommendations of the taskforce in a timely fashion. It makes sense to improve the ability of GPs and other professionals to assess and support the management of ADHD. It also makes sense to improve screening in schools. Another recommendation is to extend training for GPs on to an extended role pathway, and shared care between specialists and GPs. All these changes can enable cuts in waiting times and improve life chances and prospects for many people.
I decided to put in for this debate in Matty Lock’s memory, but looking around the room at how many hon. Members are present, I can see that this has touched so many lives across the entire United Kingdom. Whether it is for Matty, for anybody who has been profoundly affected, for the loved ones—for Christine and Richard—or for so many other people, we have a duty to act. We know what is needed and how we can address these concerns. If the Government are minded to respond, we can build a system that supports people living with ADHD, and the people who want to care for them and improve their lives.
Several hon. Members rose—
In that case, I will thank all who have taken part and given their own testimonies and experiences. My hon. Friend the Member for Hertford and Stortford (Josh Dean) described the benefits of treatment and medication in exactly the same way as a constituent of mine did—mentioning the difference that comes from recognising that they can live their life the way that others do. I thank the Minister for what he said about Richard and Christine: that they have already had an impact. I just make a plea to him for early implementation of at least some of the findings ahead of the final response.