Dementia Research in the UK
Debate between Bob Stewart and Margaret Ferrier(2 years, 2 months ago)
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Margaret Ferrier (Rutherglen and Hamilton West) (Ind)
I congratulate the hon. Member for Oldham East and Saddleworth (Debbie Abrahams) on securing today’s debate and on her continued work on this issue, which I know is appreciated by many throughout the House and beyond. It is a pleasure to follow the hon. Member for Bexhill and Battle (Huw Merriman); I enjoyed listening to the stories of his visits.
Dementia has a lasting impact on those who develop it and on their loved ones. While the patient begins to develop symptoms, maybe slowly at first, it may be frightening—memory loss, a struggle to communicate, mood swings, and a change in personality for reasons the person does not understand. Over the course of our lives we get to know ourselves very well, and losing that sense of self is incredibly sad. The impact on carers and family members must not be underestimated either. Depending on the level of severity, caring for someone with dementia can be a full-time 24/7 job, and that can be exhausting. A common feeling among carers is guilt—guilt that perhaps they cannot keep up; guilt that sometimes they resent their newly found role. It is human nature to be hard on ourselves.
About 90,000 people in Scotland are currently living with dementia, and that number is expected to increase to at least 120,000 over the next 20 years. The condition is prevalent, and numbers are rising. It is estimated that in the UK one in three people born this year will develop a form of dementia later in life. In South Lanarkshire, where my constituency sits, dementia is the leading cause of death for women, accounting for 16.2% of female deaths. That is a sobering statistic. Globally, there are now more people living with dementia than with cancer, which is why research on treatment, or a cure, is so important. There is still no effective treatment. We can see how investment in research has allowed scientists to make unprecedented breakthroughs in respect of cancer, for example: sustained funding for cancer research allowed scientists to understand it better, turning what was, at one point, seen as a death sentence into a chronic but manageable disease. However, the human brain is complex, and that plays a big part in why dementia remains so poorly understood. Research has historically suffered from under-investment, and sustained investment is vital if breakthroughs are to be made.
Let me draw another comparison with cancer research. There have been 74,000 cancer-related clinical trials since 2000, but fewer than 2,400 for Alzheimer’s. In the same timeframe, the Food and Drug Administration has approved 512 cancer drugs, but just six drugs for Alzheimer’s. The UK Government’s funding for cancer is almost three times higher than that for dementia. The pressure on the NHS cannot be ignored. More than one in four hospital beds are occupied by someone with dementia, and more than half of dementia patients will have at least one hospital admission each year.
Bob Stewart
It was the story from my friend, the hon. Member for Ochil and South Perthshire (John Nicolson), about his mother that twigged something in my memory. The real problem seems to be that the will to live disappears. People look normal, but they are just vacant. As an ex-soldier, having seen this with soldiers, I know that the will to live is crucial. When someone gives up the will to live, they are gone. We have to find a way of making sure that dementia sufferers keep the will to live because if that is vacant, it is gone. I think that is true but others might disagree.
Margaret Ferrier
I thank the right hon. and gallant Member for that intervention and the hon. Member for Ochil and South Perthshire (John Nicolson) for his story about his lovely mother—a really sparkling lady, who I remember seeing pictures of. It is very sad when people give up the will to live.
One in five hospital admissions are for potentially preventable reasons, such as a fall, infection or psychiatric difficulties. It is not all bleak though. There have been developments and we understand the disease better now than we did just a few years ago. New research from University College London and the University of Paris, published in The BMJ in December, found that those with two or more chronic health problems in middle age are more than twice as likely to develop dementia. That research was based on a long-term clinical trial showing how progress can be made if the resources are available.
I would like to mention the Glasgow Brain Injury Research Group based in the Queen Elizabeth University Hospital. The group looks at traumatic brain injuries, or TBIs, and the impact that they have on patients exposed to varying levels of severity of injury. It is pursuing an interesting workstream on the link between repetitive mild TBIs, incurred through sport such as football and rugby, and the increased risk of dementia. We all know of many famous footballers who have died from dementia, such as the great Billy McNeill. This is a fantastic piece of work and one of the many different research areas that could really deepen our understanding of how dementia occurs and develops and of subsequent treatment methods.
The medical community remains hugely optimistic. A survey of researchers at the UK Dementia Research Institute found that 90% of them felt that new treatments would be found within the next decade, and 72% held the opinion that the pace at which breakthroughs are being made is increasing. Vitally, though, 100% pressed the need for additional funding to allow breakthroughs to be made. They are the experts and we should listen.
Developments are already under way, but the key now is maintaining and accelerating the existing momentum. We have heard of the Join dementia research resource, which is piloting actively writing to all people with dementia after their diagnosis to invite them to participate in research. That would hugely benefit dementia research. In March 2021, Public Health Scotland revealed that less than half the people estimated to have had a new dementia diagnosis in 2018-19 were referred to vital post-diagnostic support. That outreach is essential. How will the Government support the JDR pilot and its roll-out across the four nations?
The lack of timely and accurate diagnosis is making it hard for current clinical trials to identify suitable candidates. The condition is severely underdiagnosed and the current backlog has only slowed things down even further. Transforming the current diagnostic process is pivotal. If diagnosis comes too late, we risk patients not being able to access treatments that might have helped to slow down its development.
The Government talk a lot about levelling up the UK, and I wonder whether that same attention could be given here. As part of the dementia strategy, the Government should invest in the development of multiple dementia clinical trial sites to form a network across the UK. Such a project would be in keeping with a true levelling-up agenda and make the UK an attractive centre for international life science investment. Better understanding of the disease leads to better support medically and emotionally. It will lessen the burdens on our frontline services. Early detection of the disease is crucial to allow patients to continue living independently and with dignity. That is one step that can be taken now. We need a stronger understanding among the general public about what to look out for and how to get help.
I wish to highlight the essential support provided by a number of charities for those with dementia and their support networks. They have also provided a wealth of knowledge to Members to support this debate, for which I am very grateful. Age Scotland, whose remit reaches much further, provides excellent support for older people in Scotland, as do Alzheimer’s Research UK, the Alzheimer’s Society, and Alzheimer Scotland, among many others. Charitable funding has become harder to come by over the past two years, and the work of those organisations in the face of that is invaluable and impressive. Their working commitment is commendable. The UK is a leader in biomedical research. That is something to be proud of, and something we must harness. I look forward to the Minister setting out today how plans for dementia research will be included in a national dementia strategy.
Bahraini Political Prisoners
Debate between Bob Stewart and Margaret Ferrier(2 years, 3 months ago)
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Margaret Ferrier (Rutherglen and Hamilton West) (Ind)
The all-party parliamentary group on human rights, which I co-chair, has been concerned about serious and systematic human rights violations in Bahrain for decades. Then and now, the following have been at the heart of the problems in Bahrain. The Executive retain far too much control, their powers remain largely unchecked and the majority Shi’a Muslim population feel discriminated against by the Sunni, who govern. There is no genuine political Opposition, no press freedom and few independent NGOs are able to operate freely in the country.
The Bahraini Government undertook cosmetic reforms to convince the outside world that things have improved, including the establishment of oversight mechanisms, the extension of the alternative sentencing law to all prisoners, and the development of a national action plan for human rights. But the reality is, sadly, all too apparent to those who scratch the surface. The continued arbitrary detention and inhumane treatment of prisoners of conscience—that is, those in prison solely for peacefully exercising their right to freedom of expression, assembly and/or association—serve to illustrate the true situation in Bahrain.
Margaret Ferrier
No.
Like many colleagues, I visited Ali Mushaima during his hunger strike in front of the Bahraini embassy to highlight the plight of prisoners of conscience such as his father Hassan and Abduljalil al-Singace. I, too, got the same letter from the embassy.
The all-party group on human rights has been trying for some years to promote a genuine and substantive political dialogue between the Bahraini authorities and peaceful human rights defenders and opposition activists. Indeed, in 2012, marking the first anniversary of the publication of the Bahrain independent commission of inquiry report—a positive move by the Bahraini King that still needs to be properly followed through—the right hon. Ann Clwyd, the then all-party group chair and former Member for Cynon Valley, brought together such a group on the parliamentary estate to talk and listen to one another. Sadly, however, that did not result in ongoing engagement.
We all want to see a stable and prosperous Bahrain where every citizen can exercise their fundamental rights without fear of persecution, prosecution or detention. That will not happen until the Bahraini authorities engage in good faith with peaceful human rights and opposition activists. The clearest way to indicate their good faith would be by recognising all remaining prisoners of conscience and releasing them unconditionally, followed by initiating national dialogue with a view to establishing a more representative Government structure—one underpinned by the rule of law and respect for human rights.
If the UK Government are a true friend of Bahrain and the Bahraini people, they could help by persuading the Bahraini Government to take stock and embark on such a course of action. The UK Government should immediately stop parroting the line that abuses should be raised with domestic Bahraini oversight bodies. It has become increasingly clear that those bodies are limited in reach and in the interests they are able to serve. Additionally, the UK should stop funding the Bahraini Government’s reform agenda given that there has been so little to show for it so far. UK Government officials, including Ministers, need to meet a much wider range of Bahraini interlocutors to hear different perspectives and help to get everyone around the table. The alternative—unsuccessfully attempting to paper over the cracks—will lead only to a situation that none of us wants: growing discontent and instability, potential violence and even greater repression.
Let us take action now while we still can. I hope to meet Bahraini authorities and FCDO officials in the coming months and encourage colleagues to sign early-day motion 835 on human rights in Bahrain to express our collective concern about the situation and support a true path to reform.
Summer Adjournment
Debate between Bob Stewart and Margaret Ferrier(7 years, 9 months ago)
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Margaret Ferrier (Rutherglen and Hamilton West) (SNP)
I wish to speak about a very important matter that affects many people in Scotland. It is certainly not the first time the issue has been raised in this place, but, unfortunately, in the light of the circumstances, it needs to be brought to the Government’s attention again.
Yesterday, when giving evidence to the Defence Committee on naval procurement for the Type 26 frigates, First Sea Lord and Chief of the Naval Staff, Tony Douglas, replied in response to a question on when the Type 26 design would be approved, “I can’t give you a time or a date. It could be next year.” This suggestion could in effect place the Type 26 programme on the Clyde on an indefinite delay. That would be wholly unacceptable and nothing short of a betrayal of the workers on the Clyde.
The Ministry of Defence needs to come forward and be absolutely clear, open and honest about the level of uncertainty that the Type 26 programme faces. The new Minister with responsibility for defence procurement, the Under-Secretary of State for Defence, the hon. Member for West Worcestershire (Harriett Baldwin), could give none of the assurances on the future of the contract that were promised to the Clyde shipyards. Yet again, the future of the programme has been cast into very serious doubt.
That news came less than 48 hours after the Tories trooped through the Division Lobby—accompanied, unfortunately, by many of their allies on the Labour Benches—to vote en masse for the renewal of Trident. A blank cheque has in effect been written for weapons of mass destruction. On Monday, my hon. Friend the Member for Argyll and Bute (Brendan O’Hara) asked the Defence Secretary whether the massive expense of Trident and the recent analysis by the Institute for Fiscal Studies showing that UK GDP might be reduced by up to 3.5% as a result of the Brexit vote would result in a black hole in the public finances of up to £40 billion in 2020, and what that would mean for defence procurement. The Defence Secretary could not give an answer.
Bob Stewart
Economists seem to get it consistently wrong. They got it wrong on Brexit. They cannot talk about 2020 when, as far as I can see, they cannot even get it right for next week. Their forecasts are always wrong.
Margaret Ferrier
It does not matter what the figure is; we are going to spend up to £205 billion on a weapon of mass destruction that could kill hundreds of thousands of people worldwide—it is based in Scotland—so I am sorry, but I do not agree with the hon. Gentleman.
The UK’s nuclear weapons programme has a major knock-on effect for the rest of the defence procurement budget. Other massive projects are in the pipeline, including the Type 26 frigates, but the ring-fencing and generous contingencies for Trident are no doubt affecting that project. The workers on the Clyde appear to be paying the price for the obsession on the Government Benches with Trident and Brexit.
I cannot stress enough how much of a betrayal this represents for those shipyard workers, their families and the communities that depend on this work. They have had assurance after assurance from the UK Government, both in this place and from the Scottish Tories, but are now suffering from the continuing uncertainty over and mismanagement of the Type 26 programme. Every penny spent on Trident is a penny less for conventional defence, including the Type 26 frigates.
GMB Scotland organiser Gary Cook admitted in April that £750 million had been removed from the Type 26 programme’s budget. On several occasions during Monday’s debate, the issue of jobs was brought up—when we voice our concern about weapons of mass destruction we are told to shut up and be grateful for the jobs. Without doubt, those jobs come at the expense of other people’s livelihoods. It seems the Government care about defence jobs only when it suits their agenda.
Leaked emails have shown that delays in the delivery of the Type 26 global combat vessels will cost the taxpayer more money than proceeding with the work would. The Type 26 frigates were due to be built by BAE Systems, with work beginning in December. The Ministry of Defence then asked for savings of £500 million over five years, refusing BAE’s Systems’ offer of saving £275 million while still beginning work on time. The delays have put jobs at risk, and the suggestion in the leaked emails that those delays will end up costing the taxpayer more money in the long term has been echoed by former First Sea Lord Admiral Lord West. The delays show the Government’s ideological obsession with making cuts, no matter the cost. By going back on the original deal and rejecting BAE Systems’ offer, the Tories have confirmed that they are prepared to put jobs at risk and waste taxpayers’ money by pursuing cuts across all sectors of Government.
Human Rights and Arms Sales to Saudi Arabia
Debate between Bob Stewart and Margaret Ferrier(7 years, 11 months ago)
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Margaret Ferrier (Rutherglen and Hamilton West) (SNP)
I beg to move,
That this House has considered human rights and the sale of arms to Saudi Arabia.
It is an honour to serve under your chairship, Mrs Gillan.
Last week, BBC parliamentary correspondent Mark D’Arcy remarked that I have emerged as a regular Commons critic of the human rights record of Saudi Arabia. I cannot argue with that assertion, and I have no doubt that in securing this debate I will build upon that reputation.
I am certainly no stranger to Foreign and Commonwealth Office Ministers, and I put on the record my appreciation to the Middle East Minister, the hon. Member for Bournemouth East (Mr Ellwood), for having met me privately on a number of occasions to discuss my concerns about specific human rights cases in Saudi Arabia.
I will use the latter part of my speech to discuss the situation in Yemen, but I will focus first on the domestic human rights record in Saudi. Last September, during a debate in this very room, I first spoke of the case of Ali Mohammed al-Nimr, a Saudi national. Ali was arrested at the age of 17 back in 2012, during the time of the Arab spring protests. After a trial that has been described as unfair by the United Nations special rapporteur, Christof Heyns, among many others, Ali was sentenced to a barbaric death by beheading and crucifixion. His final appeal, heard in secret and without his knowledge, was dismissed. In the nine months since that debate in Westminster Hall, Ali’s case has significantly risen in prominence, with many other politicians adding their voices to the chorus of international condemnation, and more than 1.5 million people from around the world have signed an online petition calling for Ali’s sentence to be commuted.
The UK Government have also raised Ali’s case, and the similar cases of Abdullah al-Zaher and Dawood al-Marhoon, at the highest possible level with Saudi authorities, receiving assurances that the death sentences will not be carried out. However, those three young men remain in prison. Although they have seemingly been spared from their ultimate fate so far, their sentences have not been lifted and the threat of execution still hangs over them. I will continue to campaign for Ali, Dawood and Abdullah, and I wish to see them released from incarceration so that they can live their lives and build their futures. I commend the work of the organisations, in particular Reprieve, that are campaigning to secure the release of these young men.
I hope that the Minister who is here today will be able to indicate whether those cases have been raised again with Saudi authorities recently. Although it has been asserted on several occasions that the UK Government do not expect the three death sentences to be carried out, can he clarify whether the Government have officially asked the Kingdom of Saudi Arabia to commute them?
Bob Stewart (Beckenham) (Con)
Does the hon. Lady know whether, once a decision for execution is made, there are a few days, a few hours or a few weeks before it is carried out? Or do we just not know, and therefore the big problem might be that executions are carried out secretly before we even know that they have happened?
Margaret Ferrier
The hon. Gentleman makes a very good point, and I believe that we do not know. I say that because at the beginning of this year 47 people were executed, and we did not know about those executions until after they had happened. I will talk more about those people later in my speech. I believe that the UK Government do not really have much clout when it comes to stopping death sentences being carried out.
Sadly, the cases I have mentioned are not isolated. There are countless similar cases, and each one points to a corrupt justice system that is being used as a tool for political oppression. Since the Arab spring, Saudi authorities have been purposely targeting civil rights activists and human rights defenders.
Issa al-Hamid, a founding member of the Saudi Civil and Political Rights Association, has been sentenced to nine years in prison by the specialised criminal court in Riyadh. The charges against Issa relate to statements published online on a range of civil and human rights issues, such as the right to peaceful assembly. Freedom of speech is easily taken for granted in the United Kingdom, but it has not been afforded to Issa, nor to Abdulaziz al-Shubaily, another member of the association. The charges against Abdulaziz include communicating with foreign organisations, due to his passing information to Amnesty International for use in its reports. He now faces eight years in prison, and after his release he also faces an eight-year travel ban and will be forbidden from using social media. Clearly, the Saudi Civil and Political Rights Association is being targeted, as the Saudi authorities are determined to crush this movement.
All those things are being done to suppress any criticism of Saudi’s atrocious human rights record. I hope that the Minister will be able to inform me today of whether the Foreign Office has raised with the Saudi authorities the issue of the Saudi Civil and Political Rights Association, and the apparent targeting and imprisonment of its members.
Similarly, the website known as “Free Saudi Liberals” has felt the wrath of the Saudi regime. The man behind the website, Raif Badawi, received 50 lashes in public, purely for exercising free speech. He still languishes in a prison cell, awaiting the remainder of his sentence, which is another 950 lashes. International outcry has so far led to Raif being spared that ordeal, which he would be unlikely to survive and which still looms large over him.
Raif’s punishment has been described as a “gratuitous, violent sentence” by the international representative of the International Humanist and Ethical Union at the UN’s Human Rights Council. Fearing for the safety of herself and her family, Raif’s wife Ensaf escaped to Canada with their three children, where she speaks out against the wide-scale oppression in her home country.
Ensaf’s voice is part of a growing international chorus that is extremely concerned at what is seemingly a worsening situation in the kingdom. Saudi Arabia has executed almost 100 people this year alone, 47 of them on the same day at the start of the year. One of those 47 people was the uncle of Ali Mohammed al-Nimr, Sheikh Nimr al-Nimr, a well-known Muslim cleric. Last year, the equivalent of one person every two days was executed in Saudi. Sadly, that number seems likely to be surpassed this year. Saudi’s record is ruthlessly regressive.
The UK Government have stressed that, despite not renewing their strategy for the global abolition of the death penalty during this Parliament, there is no change in policy and they continue to work towards its global abolition. I hope that the Minister will be able to tell me today when the UK last raised concerns with Saudi Arabia about the number of executions being carried out in the country, and at what level those concerns were raised. Also, in light of the escalation in the number of executions in Saudi and in other countries, do the Government intend to look again at their decision and produce a renewed strategy for the abolition of the death penalty? It is only right that we use our supposed position of influence to lobby Saudi towards having more responsible domestic policy.