Dementia Research in the UK
Debate between Bob Stewart and Margaret Ferrier(2 years, 2 months ago)
Commons ChamberRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Margaret Ferrier (Rutherglen and Hamilton West) (Ind)
I congratulate the hon. Member for Oldham East and Saddleworth (Debbie Abrahams) on securing today’s debate and on her continued work on this issue, which I know is appreciated by many throughout the House and beyond. It is a pleasure to follow the hon. Member for Bexhill and Battle (Huw Merriman); I enjoyed listening to the stories of his visits.
Dementia has a lasting impact on those who develop it and on their loved ones. While the patient begins to develop symptoms, maybe slowly at first, it may be frightening—memory loss, a struggle to communicate, mood swings, and a change in personality for reasons the person does not understand. Over the course of our lives we get to know ourselves very well, and losing that sense of self is incredibly sad. The impact on carers and family members must not be underestimated either. Depending on the level of severity, caring for someone with dementia can be a full-time 24/7 job, and that can be exhausting. A common feeling among carers is guilt—guilt that perhaps they cannot keep up; guilt that sometimes they resent their newly found role. It is human nature to be hard on ourselves.
About 90,000 people in Scotland are currently living with dementia, and that number is expected to increase to at least 120,000 over the next 20 years. The condition is prevalent, and numbers are rising. It is estimated that in the UK one in three people born this year will develop a form of dementia later in life. In South Lanarkshire, where my constituency sits, dementia is the leading cause of death for women, accounting for 16.2% of female deaths. That is a sobering statistic. Globally, there are now more people living with dementia than with cancer, which is why research on treatment, or a cure, is so important. There is still no effective treatment. We can see how investment in research has allowed scientists to make unprecedented breakthroughs in respect of cancer, for example: sustained funding for cancer research allowed scientists to understand it better, turning what was, at one point, seen as a death sentence into a chronic but manageable disease. However, the human brain is complex, and that plays a big part in why dementia remains so poorly understood. Research has historically suffered from under-investment, and sustained investment is vital if breakthroughs are to be made.
Let me draw another comparison with cancer research. There have been 74,000 cancer-related clinical trials since 2000, but fewer than 2,400 for Alzheimer’s. In the same timeframe, the Food and Drug Administration has approved 512 cancer drugs, but just six drugs for Alzheimer’s. The UK Government’s funding for cancer is almost three times higher than that for dementia. The pressure on the NHS cannot be ignored. More than one in four hospital beds are occupied by someone with dementia, and more than half of dementia patients will have at least one hospital admission each year.
Bob Stewart
It was the story from my friend, the hon. Member for Ochil and South Perthshire (John Nicolson), about his mother that twigged something in my memory. The real problem seems to be that the will to live disappears. People look normal, but they are just vacant. As an ex-soldier, having seen this with soldiers, I know that the will to live is crucial. When someone gives up the will to live, they are gone. We have to find a way of making sure that dementia sufferers keep the will to live because if that is vacant, it is gone. I think that is true but others might disagree.
Margaret Ferrier
I thank the right hon. and gallant Member for that intervention and the hon. Member for Ochil and South Perthshire (John Nicolson) for his story about his lovely mother—a really sparkling lady, who I remember seeing pictures of. It is very sad when people give up the will to live.
One in five hospital admissions are for potentially preventable reasons, such as a fall, infection or psychiatric difficulties. It is not all bleak though. There have been developments and we understand the disease better now than we did just a few years ago. New research from University College London and the University of Paris, published in The BMJ in December, found that those with two or more chronic health problems in middle age are more than twice as likely to develop dementia. That research was based on a long-term clinical trial showing how progress can be made if the resources are available.
I would like to mention the Glasgow Brain Injury Research Group based in the Queen Elizabeth University Hospital. The group looks at traumatic brain injuries, or TBIs, and the impact that they have on patients exposed to varying levels of severity of injury. It is pursuing an interesting workstream on the link between repetitive mild TBIs, incurred through sport such as football and rugby, and the increased risk of dementia. We all know of many famous footballers who have died from dementia, such as the great Billy McNeill. This is a fantastic piece of work and one of the many different research areas that could really deepen our understanding of how dementia occurs and develops and of subsequent treatment methods.
The medical community remains hugely optimistic. A survey of researchers at the UK Dementia Research Institute found that 90% of them felt that new treatments would be found within the next decade, and 72% held the opinion that the pace at which breakthroughs are being made is increasing. Vitally, though, 100% pressed the need for additional funding to allow breakthroughs to be made. They are the experts and we should listen.
Developments are already under way, but the key now is maintaining and accelerating the existing momentum. We have heard of the Join dementia research resource, which is piloting actively writing to all people with dementia after their diagnosis to invite them to participate in research. That would hugely benefit dementia research. In March 2021, Public Health Scotland revealed that less than half the people estimated to have had a new dementia diagnosis in 2018-19 were referred to vital post-diagnostic support. That outreach is essential. How will the Government support the JDR pilot and its roll-out across the four nations?
The lack of timely and accurate diagnosis is making it hard for current clinical trials to identify suitable candidates. The condition is severely underdiagnosed and the current backlog has only slowed things down even further. Transforming the current diagnostic process is pivotal. If diagnosis comes too late, we risk patients not being able to access treatments that might have helped to slow down its development.
The Government talk a lot about levelling up the UK, and I wonder whether that same attention could be given here. As part of the dementia strategy, the Government should invest in the development of multiple dementia clinical trial sites to form a network across the UK. Such a project would be in keeping with a true levelling-up agenda and make the UK an attractive centre for international life science investment. Better understanding of the disease leads to better support medically and emotionally. It will lessen the burdens on our frontline services. Early detection of the disease is crucial to allow patients to continue living independently and with dignity. That is one step that can be taken now. We need a stronger understanding among the general public about what to look out for and how to get help.
I wish to highlight the essential support provided by a number of charities for those with dementia and their support networks. They have also provided a wealth of knowledge to Members to support this debate, for which I am very grateful. Age Scotland, whose remit reaches much further, provides excellent support for older people in Scotland, as do Alzheimer’s Research UK, the Alzheimer’s Society, and Alzheimer Scotland, among many others. Charitable funding has become harder to come by over the past two years, and the work of those organisations in the face of that is invaluable and impressive. Their working commitment is commendable. The UK is a leader in biomedical research. That is something to be proud of, and something we must harness. I look forward to the Minister setting out today how plans for dementia research will be included in a national dementia strategy.
Bahraini Political Prisoners
Debate between Bob Stewart and Margaret Ferrier(2 years, 3 months ago)
Commons ChamberRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Margaret Ferrier (Rutherglen and Hamilton West) (Ind)
The all-party parliamentary group on human rights, which I co-chair, has been concerned about serious and systematic human rights violations in Bahrain for decades. Then and now, the following have been at the heart of the problems in Bahrain. The Executive retain far too much control, their powers remain largely unchecked and the majority Shi’a Muslim population feel discriminated against by the Sunni, who govern. There is no genuine political Opposition, no press freedom and few independent NGOs are able to operate freely in the country.
The Bahraini Government undertook cosmetic reforms to convince the outside world that things have improved, including the establishment of oversight mechanisms, the extension of the alternative sentencing law to all prisoners, and the development of a national action plan for human rights. But the reality is, sadly, all too apparent to those who scratch the surface. The continued arbitrary detention and inhumane treatment of prisoners of conscience—that is, those in prison solely for peacefully exercising their right to freedom of expression, assembly and/or association—serve to illustrate the true situation in Bahrain.
Margaret Ferrier
No.
Like many colleagues, I visited Ali Mushaima during his hunger strike in front of the Bahraini embassy to highlight the plight of prisoners of conscience such as his father Hassan and Abduljalil al-Singace. I, too, got the same letter from the embassy.
The all-party group on human rights has been trying for some years to promote a genuine and substantive political dialogue between the Bahraini authorities and peaceful human rights defenders and opposition activists. Indeed, in 2012, marking the first anniversary of the publication of the Bahrain independent commission of inquiry report—a positive move by the Bahraini King that still needs to be properly followed through—the right hon. Ann Clwyd, the then all-party group chair and former Member for Cynon Valley, brought together such a group on the parliamentary estate to talk and listen to one another. Sadly, however, that did not result in ongoing engagement.
We all want to see a stable and prosperous Bahrain where every citizen can exercise their fundamental rights without fear of persecution, prosecution or detention. That will not happen until the Bahraini authorities engage in good faith with peaceful human rights and opposition activists. The clearest way to indicate their good faith would be by recognising all remaining prisoners of conscience and releasing them unconditionally, followed by initiating national dialogue with a view to establishing a more representative Government structure—one underpinned by the rule of law and respect for human rights.
If the UK Government are a true friend of Bahrain and the Bahraini people, they could help by persuading the Bahraini Government to take stock and embark on such a course of action. The UK Government should immediately stop parroting the line that abuses should be raised with domestic Bahraini oversight bodies. It has become increasingly clear that those bodies are limited in reach and in the interests they are able to serve. Additionally, the UK should stop funding the Bahraini Government’s reform agenda given that there has been so little to show for it so far. UK Government officials, including Ministers, need to meet a much wider range of Bahraini interlocutors to hear different perspectives and help to get everyone around the table. The alternative—unsuccessfully attempting to paper over the cracks—will lead only to a situation that none of us wants: growing discontent and instability, potential violence and even greater repression.
Let us take action now while we still can. I hope to meet Bahraini authorities and FCDO officials in the coming months and encourage colleagues to sign early-day motion 835 on human rights in Bahrain to express our collective concern about the situation and support a true path to reform.