Palliative Care Debate
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Main Page: Brian Leishman (Labour - Alloa and Grangemouth)Department Debates - View all Brian Leishman's debates with the Department of Health and Social Care
(1 day, 16 hours ago)
Commons Chamber
Brian Leishman (Alloa and Grangemouth) (Lab)
I thank my hon. Friend the Member for York Central (Rachael Maskell) for bringing the debate to the House, and for all the campaigning that she does. She is a force for getting palliative care the funding that it truly needs.
Laura and Keith Turner and their daughter Kate are at the heart of the community spirit that makes Sauchie such a special place. The Turners shared the story of their son, Kate’s younger brother Calum, who was just 16 when diagnosed with Burkitt lymphoma. No family should face what the Turners did with Calum’s illness.
When the Turners were told that no more could be done, Calum made the decision that he wanted to pass away somewhere familiar—at home. The family did everything they could to make Calum’s final days comfortable and as peaceful as possible, but the Turners experienced a system designed for adults. District nurses and adult hospice services, dedicated as they are, are more equipped to care for elderly patients, not a 16-year-old boy. The sensitivity and understanding required for caring for a young person at that stage of life is very different from that required for caring for someone in their later years. While Calum had the bravery, attitude and confidence of an adult, he was still a child.
Traumatically, the Turners waited more than seven hours for morphine, and were negatively judged for taking the decision to bring Calum home, but that changed when Children’s Hospices Across Scotland became involved. CHAS nurses brought dignity and understanding. They listened. They treated Calum as a young person, not as a patient. Crucially, they allowed his family to stop being carers and simply be mum, dad and a loving sister in those precious final days.
Families deserve a system that recognises that young people at the end of life are individuals, with a unique set of needs. I ask the Minister to please listen to Calum’s story and invest further in palliative care, so that other families do not find themselves in the same position as Laura, Keith and Kate. There is not a pounds-and-pence figure in any budget that can be put on giving families the best treatment and comfort possible at the time they need it most.