Asked by: Cat Smith (Labour - Lancaster and Fleetwood)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether postural tachycardia syndrome is a rare disease as defined in the UK Rare Diseases Framework.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The UK Rare Diseases Framework defines rare diseases as having a prevalence of lower than one in 2000 people. Postural Tachycardia Syndrome (PoTS) UK has estimated the prevalence of PoTS to be 0.2%, or four in 2000 people, which is higher than the definition of a rare disease under the framework.
The Government recognises the significant impact that PoTS symptoms can have on an individual’s life, and is committed to ensuring those with PoTS have timely access to a diagnosis and appropriate treatment and services.