Motor Neurone Disease

David Mundell Excerpts

Thursday 20th October 2022 Commons Chamber

[David Mundell (Dumfriesshire, Clydesdale and Tweeddale) (Con)]

The issues and concerns about MND were brought back to me in the past few weeks when Jim Hughes, a very prominent local businessman in the community where I live, in Moffat, in my constituency, was taken by the disease. Jim was a larger-than-life character and this just reaffirms that the disease can take anyone.

The disease first came to my attention during the referendum campaign. In the “Better Together” campaign, there was a young man called Gordon Aikman who had worked in the Scottish Parliament for the Labour party and was an important support to Alistair Darling during those activities. Gordon was just in his late 20s and his initial symptoms were very minor—he had a numbness in his fingers, for example. When he went to have some medical examination, he received this dreadful diagnosis. The hon. Member for Coatbridge, Chryston and Bellshill (Steven Bonnar) mentioned Doddie Weir, as I will, because the disease has often been dwarfed by the courage of those who, like Jimmy, Doddie and Gordon, have been driven to raise awareness of it. Gordon, before he died at only 31, raised half a million pounds, some of it through a dreadful thing—I think my hon. Friend the Member for Berwickshire, Roxburgh and Selkirk (John Lamont) will remember—called the ice bucket challenge. People had to appear, often on video, and have a bucket of ice poured over their head. Lord Darling having that done to him was a moment of amusement I will retain.

As well as campaigning, Gordon summoned the strength to give a stark message that, a number of years on, is worth repeating. He said:

“MND is a progressive, neurodegenerative condition that eats away at your body until you can no longer walk, talk, eat or breathe for yourself. There is no cure. Soon it will kill me…It’ll be too late for me, but we can and we must find a cure for the next generation. With your help I can turn a negative into a positive.”

From the experiences that Members have relayed in today’s debate, that is what we want to see the Government do, Minister. We want them to take the negative, and the experiences, passion and fervour of these individuals, and turn that into action.

It has been a huge pleasure for me on a number of occasions to meet Doddie Weir, a giant of a man both on and off the pitch. He has the courage and the ability—I am sure Jimmy Johnstone was the same—to reach out to people who do not necessarily take health seriously and connect. We have heard many discussions in the Chamber about how men, particularly middle-aged and older men, do not take their health seriously, but by working with rugby interests and in communities across the Borders and across Scotland, his My Name’5 Doddie Foundation has been a hugely positive force. For anyone who has not visited its website, let me say that it really is very worthwhile and demonstrates a host of ways in which people can help and become involved. Constituents of mine, such as Hilary Carmichael in Boreland, in Dumfriesshire, who had no personal connection to Doddie have been inspired to campaign locally—to run small events to raise funds. We see that happening across the piece, including to larger organisations such as Peebles rugby football club, which took part in August in the MND big pull weekend. Given all the money that has been raised by Gordon, Doddie and those people who have come to understand and be concerned about the disease, we want to see the Government matching that level of support.

Some of these issues are devolved in Scotland, and the Scottish Government have played a positive part. Indeed, the Euan MacDonald Centre for MND research in Edinburgh is making great strides. There is also research into terazosin, which may be able to slow the progression of MND, and, again, that is to be welcomed, along with the £50 million the Government have already committed and the £375 million for research into neuro- degenerative diseases in general.

However, as Members have indicated, they want to see a vigour and a focus in that research and they want to see the Government playing their part to ensure that we can move, hopefully, towards a cure and a fitting real legacy for people such as Doddie, Gordon, Jimmy Johnstone, and Jim Hughes who have effectively given their life for this disease.