Sudden Cardiac Death in Young People

Fleur Anderson Excerpts

Monday 15th December 2025 Commons Chamber

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the Speaker’s Office for finding time for this important Adjournment debate, and my hon. Friend the Minister for being in her place to hear it. I look forward to her response. I know that many Members feel passionate about this issue and look forward to taking as many interventions as I can.

There have been plenty of high-profile examples of sudden cardiac arrest in young people, but I want to speak about a case brought to my attention by one of my constituents, Maureen, who was the aunt of Clarissa Nicholls. Clarissa was studying French and Italian at the University of Cambridge. She was a keen runner and hockey player. Just days before her 21st birthday in May 2023, she collapsed and died while hiking in France with friends. It was later found that she had an undiagnosed life-threatening condition: arrhythmogenic cardiomyopathy. In June 2024, Clarissa was posthumously awarded a first-class honours degree from the University of Cambridge.

I have had the honour of meeting Clarissa’s mum Hilary, both privately and at a recent event in Westminster held by the Cardiac Risk in the Young campaign. I thank my hon. Friend the Member for North West Leicestershire (Amanda Hack) for organising that event. Hilary said:

“Despite a journey cut tragically short we want to celebrate her achievements alongside her cohort, as it should have been. We know that we would have been very proud of her today and we remain proud of her dedication, determination and resilience as she set out to be the very best she could be.”

[Fleur Anderson (Putney) (Lab)]

I congratulate my hon. Friend on securing this debate. I have also met Hilary, Clarissa’s mum, and heard about her death and the fact that a simple electrocardiogram test can save lives. It is chilling to think that my daughters could face this. Does my hon. Friend agree that it is shocking that exercise can triple the risk of sudden cardiac death, but 80% of cases show no symptoms at all? The Government could act now to issue clear guidance, as we have done on concussion, and encourage and enable more young people to have the simple test that could save so many lives.

[Chris Vince]

I do agree with my hon. Friend. Clarissa was a young girl who was very involved in sport. There is no reason why young people with these conditions cannot continue to take part in sport, as long as they are aware of their condition and able to take the necessary precautions.

Hilary said that her daughter

“put everything into her studies, the friends she made here and the staff that supported her along the way including while she was on her year abroad. We are grateful for the happy times she clearly took away with her to the next life.”

When I applied for and secured this Adjournment debate, what really struck me was the number of people who came up to me and shared their personal experiences. In fact, only this morning, two Doorkeepers shared their experiences of this condition. I pay tribute to one of those Doorkeepers, Kieron, whose son Connor—who was born on 13 January 1994—died in 1995 at only 14 months old. When the post-mortem was conducted, it was found that he died of sudden cardiac death through a thickening of a heart muscle. That was over 30 years ago, but I know from talking to Kieron the huge impact it has had on his life; he will always carry that loss with him. It is important that we recognise how long we have been aware of these issues, and that it is time to talk about what action we can take.

This morning, I was in my constituency of Harlow, talking to one of our headteachers, Vic Goddard, who is the head of the Passmores co-operative learning community. He spoke about a young boy dying of cardiac arrest during his time as a PE teacher, and feeling so strongly that every school he works in should have a defibrillator. Again, having spoken to some of the staff in this place, I want to emphasise the huge difference that access to a defib can make to survival chances.

--- Later in debate ---

[Ashley Dalton]

The hon. Member will know that all vaccines are assessed and are not issued unless they are considered safe. We collect data on conditions and potential impacts right across the medical estate. I have not seen any data that would suggest there is a link to any particular vaccine, but if there is, the data would show us that and it would be considered.

My hon. Friend the Member for Harlow and I stood on a manifesto to tackle the biggest killers, including cardiovascular disease, to halve the gap in healthy life expectancy between the richest and poorest regions in England, and to reverse the legacy left to us by the previous Government. Through his work with the CRY campaign and everything he said in the Chamber this evening, it is evident that he is staying true to those promises. I also thank my hon. Friend the Member for North West Leicestershire (Amanda Hack) for further highlighting the work of CRY. Any MP who campaigns on prevention is pushing at an open door with this Government. We are shifting the focus of our NHS from sickness to prevention. As my hon. Friend the Member for Harlow rightly points out, it is a tragedy when young lives are lost to preventable illness. He and others make a powerful case for a national screening programme, so let me address that point head-on.

I fully support a national screening programme, as long as the experts agree that it would do more good than harm. Our National Screening Committee gives advice based on a range of factors and while balancing the pros and cons of screening population level groups, the committee has previously given evidence that introducing mass screening for sudden cardiac death could cause harm by misdiagnosing some people. For example, receiving a false diagnosis could lead to people being prescribed medication they do not need; people undergoing medical procedures they do not need, such as having an implantable defibrillator fitted; and people living in fear of sudden cardiac death when they are not genuinely at risk. However, the committee is currently reviewing the evidence for sudden cardiac death screening and will open a public consultation in early 2026. We will look carefully at the findings of the consultation and I know that the CRY campaign will make its voice heard.

Several Members discussed defibrillators, and their training and use. NHS England runs training sessions on first aid, CPR and the use of defibrillators both in the community and in schools under the Restart a Heart programme. NHS England has trained over 35,800 adults and children in CPR and defibrillator use in the past 13 years, and 2,134 so far this year. NHS England delivers the sessions via its resuscitation team and via its community first responders, and also runs lifesaving skills workshops for harder to reach communities and ethnically diverse groups. It has trained 407 people in lifesaving skills in that group so far this year.

It is important to remember the care and support that loved ones receive when they lose a loved one to sudden cardiac arrest, or when they find out that a family member has an inherited heart condition. NHS England’s service specification sets out how that care should be provided by specialist teams in a way that is tailored to meet the needs of families.

[Fleur Anderson]

I thank the Minister for giving way and for the good news about looking into the possibility of rolling out screening across the whole country, especially bearing in mind the evidence from Italy, where the good has been shown to outweigh the potential downsides. I look forward to getting involved in that consultation. The amount of training on CPR and the use of defibrillators has been extensive. The choice of song to sing along to, to get the rhythm right, is really important. Will the Minister share with us whether she would use “Stayin’ Alive” or “Pink Pony Club” as her defibrillator singalong song?

[Ashley Dalton]

I think “Stayin’ Alive” is a bit of a sharp one, really, isn’t it? Given that once “Pink Pony Club” is in my head I cannot get rid of it for weeks, I think I will probably opt for that one! My hon. Friend makes a really important point, which is that learning CPR and how to use a defibrillator properly is a crucial life skill. I am really pleased and proud that NHS England is continuing to roll that out in our schools and communities.

NHS England is also keeping under review the specialist service specification for providing care to families, working closely with the Association for Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice and the British Heart Foundation. We are also working with the NHS genomics programme to align the service specification with genomics resources. I will talk briefly about our vision of genomics.

We are going through a revolution in medical science that means we can transform the NHS over the coming decade from a service that diagnoses and treats ill health to one that can predict and prevent it. If we can harness the power of life sciences to the health service, we can achieve many of the aims my hon. Friends and others have set out today. Within a decade, every newborn will undergo whole genome sequencing, which assesses future risk of hundreds of diseases, including cardiovascular conditions. Every baby will have their DNA mapped, allowing people to receive tailored healthcare, long before symptoms begin.

Those advances could one day put an end to blanket screening and rudimentary health MOTs. Instead of mass screening, increasingly patients will be offered personalised health checks and targeted medicines far earlier, and adverse drug reactions will be avoided. That will help to transform the NHS from a reactive healthcare system into a proactive one. This ambition will be funded by a £650 million boost to genomics as part of the Government’s life sciences sector plan. We are just scratching the surface of what genomics, gene editing and life sciences can do.

Under this Government, NHS waiting lists are falling, ambulances are arriving faster, and we are lifting hundreds of thousands of kids out of poverty. Our 10-year plan is building on the founding principle of the NHS so that it provides healthcare free at the point of risk, not just at the point of need, and now we are shifting the focus of our NHS from sickness to prevention. Wherever we can go further on prevention, we will.

I have heard the case made by my hon. Friend the Member for Harlow this evening. He is a powerful advocate for those who have lost loved ones to sudden cardiac death, and we are listening to him and others who are pushing us to go further. I shall update him and, of course, the House next year, following the review of evidence and the public consultation.

Question put and agreed to.